المؤلفون: Dobarrio-Sanz, Iria, Fernández-Vargas, Anabel, Fernández-Férez, Alba, Vanegas-Coveña, Diana Patricia, Cordero-Ahiman, Otilia Vanessa, Granero-Molina, José, Fernández-Sola, Cayetano, Hernández-Padilla, José Manuel

مصطلحات موضوعية: health service environment, intimate partner violence, invisible sexism, prevention questionnaire, validation study, Cross-Sectional Studies, Female, Humans, Male, Pilot Projects, Psychometrics, Reproducibility of Results, Surveys and Questionnaires

الوصف: Invisible violence against women (IVAW) can be understood as the set of attitudes, behaviors, and subtle beliefs that men use to subordinate women and that are culturally accepted. These behaviors can be a risk factor for intimate partner violence (IPV), so it is important to design tools that allow us to detect it early. The aim of this study was to design and psychometrically assess a questionnaire for the detection of invisible violence against women (Q-IVAW). A descriptive cross-sectional methodological study carried out in three phases: (1) development of the initial version; (2) pilot study (N = 51); and (3) final validation study (N = 990). The tool's reliability, validity, and legibility were assessed. To assess reliability, the internal consistency (Cronbach's α) was analyzed. The validity assessment included an analysis of content, criterion, and construct validity. The EFA revealed that the Q-IVAW was comprised of five factors that explained 55.85% of the total variance found. The Q-IVAW showed very high reliability (α = 0.937), excellent content validity, and good construct validity. The criterion validity analysis showed a moderate correlation between A-IPVAW and Q-IVAW (r = 0.30; p The psychometric assessment of the Q-IVAW yielded good results, which could support the tool's ability to assess how often women are subjected to inviable violent behaviors by their partners.

وصف الملف: application/pdf

العلاقة: http://hdl.handle.net/10668/21100Test; PMC9518585; https://www.mdpi.com/1660-4601/19/17/11127/pdf?version=1662383333Test; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9518585/pdfTest

الإتاحة: https://doi.org/10.3390/ijerph191711127Test
http://hdl.handle.net/10668/21100Test
https://www.mdpi.com/1660-4601/19/17/11127/pdf?version=1662383333Test
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9518585/pdfTest

المؤلفون: Sáez, Jorge Diaz, Granero-Molina, José, López-Rodríguez, María M, Aceituno Velasco, Longinos, Fernández-Sola, Cayetano, Hernández-Padilla, José Manuel, Fernández-Medina, Isabel María

مصطلحات موضوعية: breastfeeding, breastfeeding barriers, caesarean section, lactation, postpartum care, reproductive techniques, Breast Feeding, Cesarean Section, Female, Humans, Infant, Newborn, Longitudinal Studies, Mothers, Pregnancy, Reproduction, Retrospective Studies

الوصف: The impact of assisted reproduction techniques (ART) when starting to breastfeed is an important issue that has been sparsely addressed in scientific literature and yet has contradictory results. This study aims to determine the relation between the mode of fertilization and breastfeeding by means of a retrospective longitudinal cohort study that included newborns and mothers who gave birth between 2012 and 2019 in a third-level regional hospital. Data were collected from a total of 11,285 women and newborns, of which 302 (2.6%) used ART. Logistic regression was used to establish models that determine the administration of exclusive breastfeeding (BF). Among the 1208 analyzed participants, 30% conceived using fertility treatment. In this group of participants, BF was less prevalent, both in the delivery room (25.8% versus 45.5%; p

وصف الملف: application/pdf

العلاقة: http://hdl.handle.net/10668/21037Test; PMC8909768; https://www.mdpi.com/1660-4601/19/5/2673/pdf?version=1645779639Test; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8909768/pdfTest

الإتاحة: https://doi.org/10.3390/ijerph19052673Test
http://hdl.handle.net/10668/21037Test
https://www.mdpi.com/1660-4601/19/5/2673/pdf?version=1645779639Test
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8909768/pdfTest

المؤلفون: Fernández-Sola, Cayetano, Camacho-Ávila, Marcos, Hernández-Padilla, José Manuel, Fernández-Medina, Isabel María, Jiménez-López, Francisca Rosa, Hernández-Sánchez, Encarnación, Conesa-Ferrer, María Belén, Granero-Molina, José

مصطلحات موضوعية: disenfranchised grief, parents care, perinatal death, perinatal grief, qualitative research, Adaptation, Psychological, Adult, Fathers, Female, Grief, Humans, Male, Mothers, Pregnancy, Social Support, Spain

الوصف: Perinatal death (PD) is a painful experience, with physical, psychological and social consequences in families. Each year, there are 2.7 million perinatal deaths in the world and about 2000 in Spain. The aim of this study was to explore, describe and understand the impact of perinatal death on parents' social and family life. A qualitative study based on Gadamer's hermeneutic phenomenology was used. In-depth interviews were conducted with 13 mothers and eight fathers who had suffered a perinatal death. Inductive analysis was used to find themes based on the data. Seven sub-themes emerged, and they were grouped into two main themes: 1) perinatal death affects family dynamics, and 2) the social environment of the parents is severely affected after perinatal death. PD impacts the family dynamics of the parents and their family, social and work environments. Parents perceive that society trivializes their loss and disallows or delegitimizes their grief. Social care, health and education providers should pay attention to all family members who have suffered a PD. The recognition of the loss within the social and family environment would help the families to cope with their grief.

وصف الملف: application/pdf

العلاقة: http://hdl.handle.net/10668/15586Test; PMC7277582; https://www.mdpi.com/1660-4601/17/10/3421/pdf?version=1589454702Test; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7277582/pdfTest

الإتاحة: https://doi.org/10.3390/ijerph17103421Test
http://hdl.handle.net/10668/15586Test
https://www.mdpi.com/1660-4601/17/10/3421/pdf?version=1589454702Test
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7277582/pdfTest

المؤلفون: Hernández-Padilla, José Manuel, Granero-Molina, José, Ruiz-Fernández, María Dolores, Dobarrio-Sanz, Iria, López-Rodríguez, María Mar, Fernández-Medina, Isabel María, Correa-Casado, Matías, Fernández-Sola, Cayetano

مصطلحات موضوعية: COVID-19, psychometrics, self-efficacy, Adult, Betacoronavirus, Coronavirus Infections, Cross-Sectional Studies, Female, Humans, Male, Middle Aged, Pandemics, Pneumonia, Viral, Recognition, Psychology, Reproducibility of Results, SARS-CoV-2, Self Efficacy, Self-Management, Spain, Surveys and Questionnaires, Young Adult

الوصف: In order to control the spread of COVID-19, people must adopt preventive behaviours that can affect their day-to-day life. People's self-efficacy to adopt preventive behaviours to avoid COVID-19 contagion and spread should be studied. The aim of this study was to develop and psychometrically test the COVID-19 prevention, detection, and home-management self-efficacy scale (COVID-19-SES). We conducted an observational cross-sectional study. Six-hundred and seventy-eight people participated in the study. Data were collected between March and May 2020. The COVID-19-SES' validity (content, criterion, and construct), reliability (internal consistency and test-retest reliability), and legibility were studied. The COVID-19-SES' reliability was high (Cronbach's alpha = 0.906; intraclass correlation coefficient = 0.754). The COVID-19-SES showed good content validity (scale's content validity index = 0.92) and good criterion validity when the participants' results on the COVID-19-SES were compared to their general self-efficacy (r = 0.38; p

وصف الملف: application/pdf

العلاقة: http://hdl.handle.net/10668/15854Test; PMC7369931; https://www.mdpi.com/1660-4601/17/13/4653/pdf?version=1593510622Test; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7369931/pdfTest

الإتاحة: https://doi.org/10.3390/ijerph17134653Test
http://hdl.handle.net/10668/15854Test
https://www.mdpi.com/1660-4601/17/13/4653/pdf?version=1593510622Test
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7369931/pdfTest

المؤلفون: Jiménez-Lasserrotte, María Del Mar, López-Domene, Esperanza, Fernández-Sola, Cayetano, Hernández-Padilla, José Manuel, Fernández-Medina, Isabel María, Granero-Molina, José

مصطلحات موضوعية: Childs migrants, accompanied immigrant minors, boat children, qualitative research, Adult, Africa, Northern, Child, Child Welfare, Emergency Medical Services, Female, Health Services Accessibility, Health Services Needs and Demand, Humans, Interviews as Topic, Male, Ships, Spain, Transients and Migrants

الوصف: The European Union is the preferred destination of child irregular migrants arrived from northern Africa, who risk their lives crossing the Mediterranean Sea in small boats. Accompanied Child Irregular Migrants (AChIMs) are exposed to physical and psychological risk. The objective of our study is to describe and understand the experiences and health needs of AChIMs who arrive to Spain in small boats, through the testimony of adults who accompany them on the journey. A qualitative study, based on Gadamer's hermeneutic phenomenology, was performed. After obtaining approval from the Ethics and Research Committee, we conducted in-depth interviews on 32 adults who travelled with AChIMs. Two main themes emerged: (1) The journey a child should never have to take, with the subthemes 'AChIMs as a paradigm of vulnerability' and 'Crossing the sea, playing with death' and (2) Characterising emergency care to AChIMs, with the subthemes 'Prioritising specific care', 'Identifying high-risk situations' and 'The detaining of innocent children'. AChIMs, along with adults, risk their lives in such a dangerous and perilous journey, therefore, finding out about their experiences may contribute to improving the treatment of their specific health needs during the phases of rescue and emergency care.

العلاقة: http://hdl.handle.net/10668/14502Test; https://eprints.mdx.ac.uk/27664/1/Accompanied%20child%20irregular%20migrants%20who%20arrive%20to%20Spain%20in%20small%20boats-experiences%20and%20health%20needs.pdfTest

الإتاحة: https://doi.org/10.1080/17441692.2019.1665083Test
http://hdl.handle.net/10668/14502Test
https://eprints.mdx.ac.uk/27664/1/Accompanied%20child%20irregular%20migrants%20who%20arrive%20to%20Spain%20in%20small%20boats-experiences%20and%20health%20needs.pdfTest

المؤلفون: Hernández-Padilla, José Manuel, Correa-Casado, Matías, Granero-Molina, José, Cortés-Rodríguez, Alda Elena, Matarín-Jiménez, Tamara María, Fernández-Sola, Cayetano

مصطلحات موضوعية: Carers, End-of-life care, Family caregivers, Palliative care, Psychometrics, Questionnaire design, Adult, Aged, Cross-Sectional Studies, Culturally Competent Care, Female, Humans, Male, Middle Aged, Reproducibility of Results, Spain, Surveys and Questionnaires, Terminal Care, Translating

الوصف: To translate, culturally adapt, and psychometrically evaluate the Spanish version of the "Scale for End-of Life Caregiving Appraisal" (SEOLCAS). Observational cross-sectional study. Convenience sample of 201 informal end-of-life caregivers recruited in a southern Spanish hospital. The reliability of the questionnaire was assessed through its internal consistency (Cronbach's α) and temporal stability (Pearson's correlation coefficient [r] between test-retest). The content validity index of the items and the scale was calculated. Criterion validity was explored through performing a linear regression analysis to evaluate the SEOLCAS' predictive validity. Exploratory factor analysis was used to examine its construct validity. The SEOLCAS' reliability was very high (Cronbach's α = 0.92). Its content validity was excellent (all items' content validity index = 0.8-1; scale's validity index = 0.88). Evidence of the SEOLCAS' criterion validity showed that the participants' scores on the SEOLCAS explained approximately 79.3% of the between-subject variation of their results on the Zarit Burden Interview. Exploratory factor analysis provided evidence of the SEOLCAS' construct validity. This analysis revealed that two factors ("internal contingencies" and "external contingencies") explained 53.77% of the total variance found and reflected the stoic Hispanic attitude toward adversity.Significance of resultsThe Spanish version of the SEOLCAS has shown to be an easily applicable, valid, reliable, and culturally appropriate tool to measure the impact of end-of-life care provision on Hispanic informal caregivers. This tool offers healthcare professionals the opportunity to easily explore Hispanic informal end-of-life caregivers' experiences and discover the type of support they may need (instrumental or emotional) even when there are communicational and organizational constraints.

العلاقة: http://hdl.handle.net/10668/12799Test; https://eprints.mdx.ac.uk/25295/1/MDX%20Repository%20version.pdfTest

الإتاحة: https://doi.org/10.1017/S1478951518000470Test
http://hdl.handle.net/10668/12799Test
https://eprints.mdx.ac.uk/25295/1/MDX%20Repository%20version.pdfTest

المؤلفون: Fernández-Sola, Cayetano, Granero-Molina, José, Díaz-Cortés, María Del Mar, Jiménez-López, Francisca Rosa, Roman-López, Pablo, Saez-Molina, Encarnación, Aranda-Torres, Cayetano José, Muñoz-Terrón, José María, García-Caro, María Paz, Hernández-Padilla, José Manuel

مصطلحات موضوعية: dignity, dying, emergency medicine, end-of-life care, nursing, palliative care, patient experiences, Adult, Aged, 80 and over, Attitude to Death, Emergency Medical Services, Female, Health Personnel, Humans, Male, Middle Aged, Personhood, Qualitative Research, Right to Die, Terminal Care, Terminally Ill

الوصف: To explore and understand the experiences of terminally ill patients and their relatives regarding dignity during end-of-life care in the emergency department. The respect given to the concept of dignity is significantly modifying the clinical relationship and the care framework involving the end-of-life patient in palliative care units, critical care units, hospices and their own homes. This situation is applicable to in-hospital emergency departments, where there is a lack of research which takes the experiences of end-of-life patients and their relatives into account. A phenomenological qualitative study. The protocol was approved in December 2016 and will be carried out from December 2016-December 2020. The Gadamer's philosophical underpinnings will be used in the design and development of the study. The data collection will include participant observation techniques in the emergency department, in-depth interviews with terminally ill patients and focus groups with their relatives. For the data analysis, the field notes and verbatim transcriptions will be read and codified using ATLAS.ti software to search for emerging themes. Emerging themes that contribute to comprehending the phenomenon of dignity in end-of-life care in the emergency department are expected to be found. This study's results could have important implications in the implementation of new interventions in emergency departments. These interventions would be focused on improving: the social acceptance of death, environmental conditions, promotion of autonomy and accompaniment and assumption (takeover) of dignified actions and attitudes (respect for human rights).

العلاقة: http://hdl.handle.net/10668/12100Test; http://repositori.uji.es/xmlui/bitstream/10234/175765/2/59832.pdfTest

الإتاحة: https://doi.org/10.1111/jan.13536Test
http://hdl.handle.net/10668/12100Test
http://repositori.uji.es/xmlui/bitstream/10234/175765/2/59832.pdfTest

المؤلفون: Granero-Molina, José, Sánchez-Hernández, Francisco, Fernández-Sola, Cayetano, Jiménez-Lasserrotte, María Del Mar, Antequera-Raynal, Laura Helena, Hernández-Padilla, José Manuel

مصطلحات موضوعية: burden of illness, family caregivers, hereditary angioedema, phenomenology, rare diseases, Adaptation, Psychological, Angioedemas, Hereditary, Anxiety, Caregivers, Female, Focus Groups, Hermeneutics, Humans, Interviews as Topic, Male, Middle Aged, Qualitative Research

الوصف: The aim of this study was to understand the experiences of family caregivers in the process of diagnosing hereditary angioedema. An interpretive and qualitative research methodology based on Gadamer's philosophical hermeneutics was carried out. Data collection took place between May 2015 and August 2016 and included a focus group and in-depth interviews with 16 family caregivers. Two themes define the experiences of family caregivers: "Family life focuses on identifying the problem" and "Discovering and coping with a complex diagnosis." The process of diagnosis generates fear, anxiety, uncertainty, and incomprehension. Family caregivers are the main support for patients diagnosed with hereditary angioedema. As they share in the patients' suffering, they need a diagnosis to be established to be able to cope with the disease and offer support. Family health nurses can contribute to improving the coping process in this phase of the disease.

العلاقة: http://hdl.handle.net/10668/12540Test; https://eprints.mdx.ac.uk/24358/1/The%20Diagnosis%20of%20Hereditary%20Angioedema-%20Family%20Caregivers%E2%80%99%20Experiences.pdfTest

الإتاحة: https://doi.org/10.1177/1054773818780102Test
http://hdl.handle.net/10668/12540Test
https://eprints.mdx.ac.uk/24358/1/The%20Diagnosis%20of%20Hereditary%20Angioedema-%20Family%20Caregivers%E2%80%99%20Experiences.pdfTest

المؤلفون: Ferrer-Márquez, Manuel, Espínola-Cortés, Natalia, Reina-Duarte, Ángel, Granero-Molina, José, Fernández-Sola, Cayetano, Hernández-Padilla, José Manuel

مصطلحات موضوعية: Anal fistula, Calidad de vida, Fístula anal, QoLAF-Q, Quality of life, Adolescent, Adult, Cross-Sectional Studies, Diagnostic Self Evaluation, Female, Humans, Male, Middle Aged, Rectal Fistula, Young Adult

الوصف: In patients diagnosed with anal fistula, knowing the quality of life specifically related to the disease can help coloproctology specialists to choose the most appropriate therapeutic strategy for each case. The aim of our study is to analyzse and describe the factors related to the specific quality of life in a consecutive series of patients diagnosed with anal fistula. Observational, cross-sectional study carried out from March 2015 to February 2017. All patients were assessed in the colorectal surgery unit of a hospital in southeast of Spain. After performing an initial anamnesis and a physical examination, patients diagnosed with anal fistula completed the Quality of Life in Ppatients with Anal Fistula Questionnaire (QoLAF-Q). This questionnaire specifically measures quality of life in people with anal fistula and its score range is the following: zero impact = 14 points, limited impact = 15 to 28 points, moderate impact = 29 to 42 points, high impact = 43 to 56 points, and very high impact = 57 to 70 points. A total of 80 patients were included. The median score obtained in the questionnaire for the sample studied was 34.00 (range=14-68). Statistically significant differences between patients with "primary anal fistula" (n=65) and "recurrent anal fistula" (n=15) were observed (mean rank=42.96 vs. mean rank=29.83, p=0.048). Furthermore, an inverse proportion (P=.016) between "time with clinical symptoms" and "impact on quality of life" was found (5 years: mean rank = 19.00). There were no statistically significant differences (P=.149) between quality of life amongst patients diagnosed with complex (mean rank = 36.13) and simple fistulae (mean rank = 43.59). Anal fistulae exert moderate-high impact on patients' quality of life. "Shorter time experiencing clinical symptoms" and the "presence of primary fistula" are factors that can be associated with worse quality of life.

العلاقة: http://hdl.handle.net/10668/12147Test; https://eprints.mdx.ac.uk/23651/1/Analysis%20and%20description%20of%20disease-specific%20quality%20of%20life%20in%20patients%20with%20anal%20fistula%20%5BSpanish%5D.pdfTest

الإتاحة: https://doi.org/10.1016/j.ciresp.2017.12.003Test
http://hdl.handle.net/10668/12147Test
https://eprints.mdx.ac.uk/23651/1/Analysis%20and%20description%20of%20disease-specific%20quality%20of%20life%20in%20patients%20with%20anal%20fistula%20%5BSpanish%5D.pdfTest

المؤلفون: Díaz-Cortés, María Del Mar, Granero-Molina, José, Hernández-Padilla, José Manuel, Pérez Rodríguez, Rocío, Correa Casado, Matías, Fernández-Sola, Cayetano

مصطلحات موضوعية: Dignity, Doctor, Emergency department, End-of-life care, Experiences, Nurse, Adult, Attitude of Health Personnel, Emergency Service, Hospital, Female, Focus Groups, Humans, Male, Middle Aged, Personhood, Qualitative Research, Spain, Terminal Care

الوصف: Preservation of a dying person's dignity in the emergency department (ED) is fundamental for the patient, his/her relatives and healthcare professionals. The aim of this study was to explore and interpret physicians' and nurses' experiences regarding conservation of dignity in end-of-life care in dying patients in the ED. A qualitative study based on the hermeneutic phenomenological approach, was carried out in the emergency department of two general hospitals. A total of 16 nurses and 10 physicians participated in the study. Data collection included 12 individual in-depth interviews and 2 focus groups. The findings revealed that two themes represent the practices and proposals for the conservation of dignity in the emergency department: dignified care in hostile surroundings and the design of a system focused on the person's dignity. Dignifying treatment, redesigning environmental conditions, and reorienting the healthcare system can contribute to maintaining dignity in end-of-life care in the ED.

العلاقة: http://hdl.handle.net/10668/11351Test; https://eprints.mdx.ac.uk/22985/1/PROMOTING%20DIGNIFIED%20END-OF-LIFE%20CARE%20IN%20THE%20EMERGENCY%20DEPARTMENT-%20A%20QUALITATIVE%20STUDY.pdfTest

الإتاحة: https://doi.org/10.1016/j.ienj.2017.05.004Test
http://hdl.handle.net/10668/11351Test
https://eprints.mdx.ac.uk/22985/1/PROMOTING%20DIGNIFIED%20END-OF-LIFE%20CARE%20IN%20THE%20EMERGENCY%20DEPARTMENT-%20A%20QUALITATIVE%20STUDY.pdfTest