دورية أكاديمية
Clinical data for paediatric research: the Swiss approach : Proceedings of the National Symposium in Bern, Switzerland, Dec 5-6, 2019.
| العنوان: | Clinical data for paediatric research: the Swiss approach : Proceedings of the National Symposium in Bern, Switzerland, Dec 5-6, 2019. |
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| المؤلفون: | Rakic, M., Jaboyedoff, M., Bachmann, S., Berger, C., Diezi, M., do Canto, P., Forrest, C.B., Frey, U., Fuchs, O., Gervaix, A., Gluecksberg, A.S., Grotzer, M., Heininger, U., Kahlert, C.R., Kaiser, D., Kopp, M.V., Lauener, R., Neuhaus, T.J., Paioni, P., Posfay-Barbe, K., Ramelli, G.P., Simeoni, U., Simonetti, G., Sokollik, C., Spycher, B.D., Kuehni, C.E. |
| المصدر: | BMC proceedings, vol. 15, no. Suppl 13, pp. 19 |
| سنة النشر: | 2021 |
| المجموعة: | Université de Lausanne (UNIL): Serval - Serveur académique lausannois |
| مصطلحات موضوعية: | Conference proceedings, Electronic health record, Learning health system, Paediatric research, Terminology harmonization |
| الوصف: | Continuous improvement of health and healthcare system is hampered by inefficient processes of generating new evidence, particularly in the case of rare diseases and paediatrics. Currently, most evidence is generated through specific research projects, which typically require extra encounters with patients, are costly and entail long delays between the recognition of specific needs in healthcare and the generation of necessary evidence to address those needs. The Swiss Personalised Health Network (SPHN) aims to improve the use of data obtained during routine healthcare encounters by harmonizing data across Switzerland and facilitating accessibility for research. The project "Harmonising the collection of health-related data and biospecimens in paediatric hospitals throughout Switzerland (SwissPedData)" was an infrastructure development project funded by the SPHN, which aimed to identify and describe available data on child health in Switzerland and to agree on a standardised core dataset for electronic health records across all paediatric teaching hospitals. Here, we describe the results of a two-day symposium that aimed to summarise what had been achieved in the SwissPedData project, to put it in an international context, and to discuss the next steps for a sustainable future. The target audience included clinicians and researchers who produce and use health-related data on children in Switzerland. The symposium consisted of state-of-the-art lectures from national and international keynote speakers, workshops and plenary discussions. This manuscript summarises the talks and discussions in four sections: (I) a description of the Swiss Personalized Health Network and the results of the SwissPedData project; (II) examples of similar initiatives from other countries; (III) an overview of existing health-related datasets and projects in Switzerland; and (IV) a summary of the lessons learned and future prospective from workshops and plenary discussions. Streamlined processes linking initial collection of information ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| تدمد: | 1753-6561 |
| العلاقة: | info:eu-repo/semantics/altIdentifier/pmid/34538238; info:eu-repo/semantics/altIdentifier/pissn/1753-6561; info:eu-repo/semantics/altIdentifier/urn/urn:nbn:ch:serval-BIB_588CC6F9758B2; https://serval.unil.ch/notice/serval:BIB_588CC6F9758BTest; urn:issn:1753-6561; https://serval.unil.ch/resource/serval:BIB_588CC6F9758B.P001/REF.pdfTest; http://nbn-resolving.org/urn/resolver.pl?urn=urn:nbn:ch:serval-BIB_588CC6F9758B2Test |
| DOI: | 10.1186/s12919-021-00226-3 |
| الإتاحة: | https://doi.org/10.1186/s12919-021-00226-3Test https://serval.unil.ch/notice/serval:BIB_588CC6F9758BTest https://serval.unil.ch/resource/serval:BIB_588CC6F9758B.P001/REF.pdfTest http://nbn-resolving.org/urn/resolver.pl?urn=urn:nbn:ch:serval-BIB_588CC6F9758B2Test |
| حقوق: | info:eu-repo/semantics/openAccess ; CC BY 4.0 ; https://creativecommons.org/licenses/by/4.0Test/ |
| رقم الانضمام: | edsbas.DA19DBB5 |
| قاعدة البيانات: | BASE |
Full Text Finder | تدمد: | 17536561 |
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| DOI: | 10.1186/s12919-021-00226-3 |