المؤلفون: Carolyn A Young, Ashwin Pinto, G Burke, Tim Williams, Ammar Al-Chalabi, Kevin Talbot, Jannette Walsh, Roger J Mills, Christopher J McDermott, Tahir Majeed, C. Oliver Hanemann, Siddharthan Chandran, Timothy Harrower, John Ealing, Alan Tennant, David Dick

المصدر: Young, C A, Mills, R, Al-chalabi, A, Burke, G, Chandran, S, Dick, D J, Ealing, J, Hanemann, C O, Harrower, T, Mcdermott, C J, Majeed, T, Pinto, A, Talbot, K, Walsh, J, Williams, T L & Tennant, A 2020, ' Measuring quality of life in ALS/MND: validation of the WHOQOL-BREF ', Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, pp. 1-9 . https://doi.org/10.1080/21678421.2020.1752244Test

مصطلحات موضوعية: education.field_of_study, Rasch model, Population, Construct validity, Contrast (statistics), Differential item functioning, humanities, 03 medical and health sciences, 0302 clinical medicine, Neurology, Quality of life, Scale (social sciences), Observational study, Neurology (clinical), Psychology, education, 030217 neurology & neurosurgery, Clinical psychology

وصف الملف: application/vnd.openxmlformats-officedocument.wordprocessingml.document

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7710cc766409a3f1451bd83ad838ff79Test
https://www.pure.ed.ac.uk/ws/files/155198546/ALS_model_final_clean_copy.docxTest

المؤلفون: Simon R. Freeman, Owen M. Thomas, Claire Hartley, Chris Duff, Roger Laitt, Omar N. Pathmanaban, Miriam J. Smith, Andrew J Wallace, D. Gareth Evans, Simon K W Lloyd, Rosalie E. Ferner, John Ealing, Naomi L. Bowers, Scott A. Rutherford, Amy Taylor, Charlotte Hammerbeck-Ward, Dorothy Halliday, Mark Kellett, Simon Tobi, Andrew T. King, Elaine F. Harkness

المصدر: Evans, D G, Bowers, N L, Tobi, S, Hartley, C, Wallace, A J, King, A T, Lloyd, S K W, Rutherford, S A, Hammerbeck-Ward, C, Pathmanaban, O N, Freeman, S R, Ealing, J, Kellett, M, Laitt, R, Thomas, O, Halliday, D, Ferner, R, Taylor, A, Duff, C, Harkness, E F & Smith, M J 2018, ' Schwannomatosis: a genetic and epidemiological study ', Journal of Neurology, Neurosurgery and Psychiatry, vol. 89, no. 11, pp. 1215-1219 . https://doi.org/10.1136/jnnp-2018-318538Test

مصطلحات موضوعية: Adult, Male, Neurofibromatosis 2, Pediatrics, medicine.medical_specialty, Skin Neoplasms, Adolescent, Databases, Factual, Neurofibromatoses, Population, Prevalence, SMARCB1, Young Adult, 03 medical and health sciences, 0302 clinical medicine, vestibular schwannoma, Epidemiology, otorhinolaryngologic diseases, medicine, Humans, education, Schwannomatosis, Aged, Aged, 80 and over, schwannomatosis, Neurofibromin 2, education.field_of_study, business.industry, Incidence, Incidence (epidemiology), Mean age, SMARCB1 Protein, Middle Aged, medicine.disease, Psychiatry and Mental health, England, 030220 oncology & carcinogenesis, Life expectancy, Female, Surgery, Neurology (clinical), LZTR1, business, Neurilemmoma, 030217 neurology & neurosurgery, Transcription Factors

وصف الملف: application/vnd.openxmlformats-officedocument.wordprocessingml.document

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c29c0c07933bb46d6a6fcfe1285e610eTest
https://doi.org/10.1136/jnnp-2018-318538Test

المؤلفون: Carolyn A Young, Alan Tennant, John Ealing, Chris Gibbons, Pamela J. Shaw, Everard W. Thornton, Kevin Talbot

المصدر: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. 14:537-545

مصطلحات موضوعية: Adult, Male, Coping (psychology), medicine.medical_specialty, Cross-sectional study, Population, Social Environment, Structural equation modeling, Surveys and Questionnaires, Adaptation, Psychological, medicine, Humans, Motor Neuron Disease, education, Psychiatry, Fatigue, Aged, Aged, 80 and over, education.field_of_study, Rasch model, Depression, Social environment, Middle Aged, Cross-Sectional Studies, Neurology, Quality of Life, Anxiety, Female, Neurology (clinical), medicine.symptom, Psychology, Psychosocial

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::990ded339cdc9824de17e5fb46644238Test
https://doi.org/10.3109/21678421.2013.799700Test

المؤلفون: Andrea Malaspina, Richard W. Orrell, Christopher J McDermott, Siddharthan Chandran, David Dick, Karen E. Morrison, Kevin Talbot, Ashwin Pinto, Esther V. Hobson, Tim Williams, Alexander J McGeachan, Martin R Turner, Timothy Harrower, Colette Donaghy, Hardev Pall, John Ealing, Pamela J. Shaw, Ammar Al-Chalabi, George Gorrie, Tahir Majeed, Carolyn A Young, Clemens Oliver Hanemann, Agam Jung, C M Ellis, Francesca Crawley

مصطلحات موضوعية: medicine.medical_specialty, Botulinum Toxins, Evidence-based practice, Attitude of Health Personnel, Population, MEDLINE, Disease, Physicians, medicine, Humans, Motor Neuron Disease, Disease management (health), education, education.field_of_study, business.industry, Data Collection, Disease Management, Sialorrhea, Botulinum toxin, Dysphagia, United Kingdom, Neurology, Family medicine, Physical therapy, Observational study, Neurology (clinical), medicine.symptom, business, medicine.drug

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c4c765ef2029f385af2b8301ab1b4385Test
https://ora.ox.ac.uk/objects/uuid:8d82eef9-2ee1-4d1b-8c62-3291af4224c7Test

المؤلفون: Pamela J. Shaw, John Ealing, Everard W. Thornton, Alan Tennant, Roger J Mills, Carolyn A Young, John D Mitchell, Chris Gibbons, Kevin Talbot

المصدر: Health and Quality of Life Outcomes
Health and Quality of Life Outcomes, Vol 9, Iss 1, p 82 (2011)

مصطلحات موضوعية: Male, medicine.medical_specialty, Psychometrics, Scale (ratio), Population, Hospital Anxiety and Depression Scale, lcsh:Computer applications to medicine. Medical informatics, behavioral disciplines and activities, Surveys and Questionnaires, medicine, Humans, Motor Neuron Disease, Psychiatry, education, Psychiatric Status Rating Scales, education.field_of_study, Depressive Disorder, Rasch model, Chi-Square Distribution, Research, Public Health, Environmental and Occupational Health, Construct validity, General Medicine, Middle Aged, Differential item functioning, Anxiety Disorders, humanities, Anxiety, lcsh:R858-859.7, Female, medicine.symptom, Psychology

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d12f482198b0d88091eaecece8644c6bTest