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1دورية أكاديمية
المؤلفون: Melodi Harfouche, Priya S. Kishnani, Eva Krusinska, Jamie Gault, Sheela Sitaraman, Amanda Sowinski, Irina Katz, Stephanie Austin, Margi Goldstein, Andrew E. Mulberg
المصدر: Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-11 (2020)
مصطلحات موضوعية: PROMIS, Pompe disease, Patient-reported outcomes (PROs), Clinical research, Drug development, Public aspects of medicine, RA1-1270
وصف الملف: electronic resource
العلاقة: http://link.springer.com/article/10.1186/s41687-020-00245-2Test; https://doaj.org/toc/2509-8020Test
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2
المؤلفون: Andrew E. Mulberg, Irina Katz, Sheela Sitaraman, Priya S. Kishnani, Eva Krusinska, Jamie Gault, Melodi Harfouche, Margi Goldstein, Stephanie Austin, Amanda Sowinski
المصدر: Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-11 (2020)مصطلحات موضوعية: Patient-Reported Outcomes Measurement Information System, medicine.medical_specialty, Drug development, Health Informatics, Disease, Clinical research, PROMIS, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), Health Information Management, Patient experience, medicine, Content validity, 030212 general & internal medicine, business.industry, lcsh:Public aspects of medicine, Research, Pompe disease, lcsh:RA1-1270, Test (assessment), Clinical trial, Patient-reported outcomes (PROs), Physical therapy, business, 030217 neurology & neurosurgery
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d26137045fddd76eba8a4737c4daad26Test
https://doi.org/10.1186/s41687-020-00245-2Test