نتائج البحث - "Adrian Thorogood"

المصدر: Thorogood, A, Rehm, H L, Goodhand, P, Page, A J H, Joly, Y, Baudis, M, Rambla, J, Navarro, A, Nyronen, T H, Linden, M, Dove, E S, Fiume, M, Brudno, M, Cline, M S & Birney, E 2021, ' International federation of genomic medicine databases using GA4GH standards ', Cell Genomics, vol. 1, no. 2, 100032 . https://doi.org/10.1016/j.xgen.2021.100032Test
Cell Genomics
Cell genomics

وصف الملف: application/pdf; Internation_federation_of_genomic_medicine.pdf - application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6284455bffd9d1742c6c3b5394d5d6d4Test
https://hdl.handle.net/20.500.11820/aec5b5de-ac0d-4655-9ff3-4bc8cf332348Test

7

Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

المؤلفون: Lauren Farley, Dianne Nicol, James Smith, Adrian Thorogood, Jerome Atutornu, Katherine I. Morley, Claire Steed, Heidi Carmen Howard, Christine Critchley, Paul Bevan, Anna Middleton, Barbara Prainsack, Danya F. Vears, Erika Kleiderman, Emilia Niemiec, Peter Goodhand, Richard Milne

المساهمون: Middleton, Anna [0000-0003-3103-8098], Apollo - University of Cambridge Repository

المصدر: Human Genetics

مصطلحات موضوعية: Adult, Male, Medical Ethics, Canada, Genetic Research, Adolescent, Big data, Information Dissemination, Legislation, Biology, Trust, Medicinsk etik, Young Adult, 03 medical and health sciences, Databases, Genetic, Genetics, Humans, Relevance (law), Child, Survey, health care economics and organizations, Genetics (clinical), Original Investigation, 030304 developmental biology, 0303 health sciences, Genome, business.industry, 030305 genetics & heredity, Australia, Genomics, Tvärvetenskapliga studier inom samhällsvetenskap, Middle Aged, Public, Public relations, Donation, Biobank, United Kingdom, United States, Latent class model, 3. Good health, Data sharing, Cross-Sectional Studies, Female, Social Sciences Interdisciplinary, business

وصف الملف: application/pdf; text/xml; Print-Electronic

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0c502886a20a722a41ae8722785316eeTest
https://doi.org/10.1007/s00439-019-02062-0Test

8

Data Access Governance

المؤلفون: Madeleine J Murtagh, Adrian Thorogood, Mahsa Shabani

المساهمون: Laurie, Graeme, Dove, Edward, Ganguli-Mitra, Agomoni, McMillan, Catriona, Postan, Emily, Sethi, Nayha, Sorbie, Annie

المصدر: The Cambridge handbook of health research regulation

مصطلحات موضوعية: medicine.medical_specialty, business.industry, Corporate governance, Public health, Proportionality (mathematics), Public relations, Transparency (behavior), Data sharing, Data access, Medicine and Health Sciences, Key (cryptography), medicine, Law and Political Science, business, Ethical code

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e7ef4b2dc6cc060b6629bcdac642c2afTest
https://doi.org/10.1017/9781108620024.023Test

9

Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

المؤلفون: Qurratulain Hasan, Heidi C. Howard, Richard Milne, Lauren Robarts, Jack Pollard, Vigdis Stefansdottir, Vera L. Izhevskaya, Cornelia Tandre, Alexandra Soulier, Jerome Atutornu, Virginia Romano, Claire Steed, Megumi Kimura, Jonathan Roberts, Marie Rivière, Peter Goodhand, A. P. Costa, Charlotta Ingvoldstad Malmgren, Go Yoshizawa, Adrian Thorogood, Josepine Fernow, Aleksandra Jędrzejak, Brandi Leach, Torsten Heinemann, Deborah Mascalzoni, Haytham A. Sheerah, Christine Critchley, Anne V. West, Paul Bevan, Shamim Anwer, Emilia Niemiec, Maria Cerezo, Mohamed A. Almarri, Elena E. Baranova, Yali Cong, Keying Liu, Nan Wang, Erika Kleiderman, Christine Patch, Dianne Nicol, Aiko Hibino, Álvaro Mendes, Katherine I. Morley, Cao Jinhong, Gry Houeland, Jusaku Minari, S. Zakir Hussain, James Smith, Anna Middleton, Barbara Prainsack

المساهمون: Institut d'Histoire et de Philosophie des Sciences et des Techniques (IHPST), Université Paris 1 Panthéon-Sorbonne (UP1)-Centre National de la Recherche Scientifique (CNRS), DILTEC - Didactique des langues, des textes et des cultures - EA 2288 (DILTEC), Université Sorbonne Nouvelle - Paris 3, Milne, Richard [0000-0002-8770-2384], Apollo - University of Cambridge Repository

المصدر: Genome Medicine
Genome Medicine, BioMed Central, 2021, 13, pp.92. ⟨10.1186/s13073-021-00903-0⟩
Genome Medicine, BioMed Central, 2021, 13 (1), ⟨10.1186/s13073-021-00903-0⟩
Genome medicine 13, 92 (2021). doi:10.1186/s13073-021-00903-0
Genome Medicine, Vol 13, Iss 1, Pp 1-12 (2021)

مصطلحات موضوعية: Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, 0301 basic medicine, International surveys, QH426-470, 030105 genetics & heredity, Trust, Online Systems, [SHS.HISPHILSO]Humanities and Social Sciences/History, Philosophy and Sociology of Sciences, 03 medical and health sciences, Surveys and Questionnaires, Genomic data, Genetics, Humans, Sanctions, ddc:610, Public value, Marketing, Molecular Biology, Genetics (clinical), Trustworthiness, Medicinsk genetik, [SDV.GEN]Life Sciences [q-bio]/Genetics, Relative value, [SHS.SOCIO]Humanities and Social Sciences/Sociology, Information Dissemination, Public trust, Research, Genomics, Health Care Service and Management, Health Policy and Services and Health Economy, Transparency (behavior), Genomic research, [SDV.ETH]Life Sciences [q-bio]/Ethics, 3. Good health, Data sharing, 030104 developmental biology, Data access, [SDV.GEN.GH]Life Sciences [q-bio]/Genetics/Human genetics, Ranking, Medicine, Molecular Medicine, Business, Medical Genetics

وصف الملف: application/pdf; application/zip; text/xml

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::624a25559396cd2fb1595d4e9b9e3a32Test
https://doi.org/10.1186/s13073-021-00903-0Test

10

Genomics: data sharing needs an international code of conduct

المؤلفون: Adrian Thorogood, Yann Joly, Mark M. Phillips, Jan O. Korbel, David Townend, Fruzsina Molnár-Gábor, Donald Chalmers, Bartha Maria Knoppers

المساهمون: RS: CAPHRI - R4 - Health Inequities and Societal Participation, Metamedica, RS: FdR Institute IGIR

المصدر: Nature, 578(7793), 31-33. Nature Publishing Group

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::beb9719055b4b675f998be15a7f605baTest
https://doi.org/10.1038/d41586-020-00082-9Test

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