التفاصيل البيبلوغرافية
| العنوان: |
Family Function, Quality of Life, and Well-Being in Parents of Infants With Hypoplastic Left Heart Syndrome. |
| المؤلفون: |
Mussatto, Kathleen A., Van Rompay, Maria I., Trachtenberg, Felicia L., Pemberton, Victoria, Young-Borkowski, Lisa, Uzark, Karen, Hollenbeck-Pringle, Danielle, Dunbar-Masterson, Carolyn, Infinger, Patricia, Walter, Patricia, Sawin, Kathleen |
| المصدر: |
Journal of Family Nursing; Aug2021, Vol. 27 Issue 3, p222-234, 13p |
| مصطلحات موضوعية: |
PARENT attitudes, WELL-being, MOTHERS, ADAPTABILITY (Personality), STATE-Trait Anxiety Inventory, STATISTICS, PREDICTIVE tests, SOCIAL support, HYPOPLASTIC left heart syndrome, PARENTS of children with disabilities, SELF-evaluation, RESEARCH methodology, MULTIPLE regression analysis, FATHERS, BURDEN of care, RISK assessment, PSYCHOLOGICAL tests, T-test (Statistics), PSYCHOSOCIAL factors, QUALITY of life, QUESTIONNAIRES, DESCRIPTIVE statistics, REPEATED measures design, CHI-squared test, RESEARCH funding, FAMILY relations, PSYCHOLOGICAL adaptation, STATISTICAL sampling, DATA analysis software, STATISTICAL correlation, DATA analysis, PSYCHOLOGICAL stress, ALGORITHMS |
| مصطلحات جغرافية: |
UNITED States, CANADA |
| مستخلص: |
Survival for hypoplastic left heart syndrome (HLHS) has improved dramatically. Little is known about early family function, quality of life (QOL), or well-being/adjustment for parents of infants with HLHS. Parent/family outcomes over time, predictors, and differences in 143 mothers and 72 fathers were examined. Parents reported better family function compared with published norms, but 26% experienced family dysfunction. QOL and well-being were significantly lower than adult norms. QOL scores generally declined over time, whereas self-reported well-being improved. Responses from mothers and fathers showed different trends, with mothers having worse scores on most measures and at most time points. Being a single parent was a risk factor for poorer family function, but not for lower individual QOL or well-being. Family characteristics, stress, and coping skills were predictive of outcomes. Parents' psychosocial responses to the challenges of life with infants with HLHS change over time. Individually tailored psychosocial support is needed. [ABSTRACT FROM AUTHOR] |
|
Copyright of Journal of Family Nursing is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) |
| قاعدة البيانات: |
Complementary Index |
