المؤلفون: Toly, Valerie Boebel, Blanchette, Julia E., Alhamed, Arwa, Musil, Carol M.

المصدر: Neonatal Network; 2019, Vol. 38 Issue 2, p69-79, 11p

مصطلحات موضوعية: CHRONIC diseases in children, COGNITION, CONTENT analysis, EMOTIONS, HOME care services, INTERVIEWING, LONGITUDINAL method, RESEARCH methodology, MEDICAL care, PSYCHOLOGY of mothers, NEONATAL intensive care, RESPIRATORY insufficiency, RESPIRATORY therapy, STATISTICAL sampling, QUALITATIVE research, WELL-being, NEONATAL intensive care units, PATIENT discharge instructions, DISCHARGE planning, TRANSITIONAL programs (Education), FEEDING tubes, DESCRIPTIVE statistics

مستخلص: Purpose: The transition from the NICU to home is a complicated, challenging process for mothers of infants dependent on lifesaving medical technology, such as feeding tubes, supplemental oxygen, tracheostomies, and mechanical ventilation. The study purpose was to explore how these mothers perceive their transition experiences just prior to and during the first three months after initial NICU discharge. Design: A qualitative, descriptive, longitudinal design was employed. Sample: Nineteen mothers of infants dependent on lifesaving technology were recruited from a large Midwest NICU. Main Outcome Variable: Description of mothers' transition experience. Results: Three themes were identified pretransition: negative emotions, positive cognitive-behavioral efforts, and preparation for life at home. Two posttransition themes were negative and positive transition experiences. Throughout the transition, the mothers expressed heightened anxiety, fear, and stress about life-threatening situations that did not abate over time despite the discharge education received. [ABSTRACT FROM AUTHOR]

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المؤلفون: Toly, Valerie Boebel¹ vab@case.edu, Blanchette, Julia E.¹, Sikorski, Shannon^1,2, Musil, Carol M.¹, Al-Hamed, Arwa^1,3

المصدر: Journal of Family Nursing. Aug2017, Vol. 23 Issue 3, p392-417. 26p.

مصطلحات موضوعية: *ADAPTABILITY (Personality), *SIBLINGS, *CHRONIC diseases in children, *CONTENT analysis, *EXPERIENCE, *INTERVIEWING, *RESEARCH methodology, *PARENT-child relationships, *RESEARCH funding, *STATISTICAL sampling, *QUALITATIVE research, *THEMATIC analysis, *ATTITUDES of mothers, *DESCRIPTIVE statistics, *CHILDREN, *PSYCHOLOGY

مستخلص: Technology-dependent (TD) children require complex care and are dependent on medical technology. Approximately 75% of families, in the United States, who are caring for a TD child, also care for a well child. Well siblings are likely to be affected by the experience of living with a TD sibling as the process of family normalization is described as a family affair. The experiences of well siblings are not well described. The purpose of this qualitative analysis was to describe the experiences of well siblings who are living in a family with a TD child. Mothers were interviewed about the experiences of their well children and were digitally audio recorded. The interviews were transcribed, and content analysis was conducted. Content analysis from the interviews revealed the major themes of well sibling adjustment within the family unit, upside (altruistic, prosocial behaviors) and downside (negative internal and external processing behaviors). These results can be applied to advance the delivery of family nursing care offered to these families. [ABSTRACT FROM AUTHOR]