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المؤلفون: Anna Middleton, Emma Tonkin, Maggie Kirk, Christine Patch, Laurie Badzek, Kathleen A. Calzone, Caroline Benjamin
المصدر: Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing
مصطلحات موضوعية: Knowledge management, Participatory action research, Article, 03 medical and health sciences, 0302 clinical medicine, nursing, Benchmark (surveying), Health care, Critical success factor, Humans, Nurse Administrators, 030212 general & internal medicine, General Nursing, Strategic planning, 030504 nursing, business.industry, Health Policy, Genomics, nursing leadership, Maturity (finance), Benchmarking, Work (electrical), maturity matrix, Workforce, strategy, 0305 other medical science, business, Psychology, Delivery of Health Care
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::72f79a47a69b5524b14620280371579cTest
https://doi.org/10.1111/jnu.12586Test -
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المؤلفون: Lauren Farley, Dianne Nicol, James Smith, Adrian Thorogood, Jerome Atutornu, Katherine I. Morley, Claire Steed, Heidi Carmen Howard, Christine Critchley, Paul Bevan, Anna Middleton, Barbara Prainsack, Danya F. Vears, Erika Kleiderman, Emilia Niemiec, Peter Goodhand, Richard Milne
المساهمون: Middleton, Anna [0000-0003-3103-8098], Apollo - University of Cambridge Repository
المصدر: Human Genetics
مصطلحات موضوعية: Adult, Male, Medical Ethics, Canada, Genetic Research, Adolescent, Big data, Information Dissemination, Legislation, Biology, Trust, Medicinsk etik, Young Adult, 03 medical and health sciences, Databases, Genetic, Genetics, Humans, Relevance (law), Child, Survey, health care economics and organizations, Genetics (clinical), Original Investigation, 030304 developmental biology, 0303 health sciences, Genome, business.industry, 030305 genetics & heredity, Australia, Genomics, Tvärvetenskapliga studier inom samhällsvetenskap, Middle Aged, Public, Public relations, Donation, Biobank, United Kingdom, United States, Latent class model, 3. Good health, Data sharing, Cross-Sectional Studies, Female, Social Sciences Interdisciplinary, business
وصف الملف: application/pdf; text/xml; Print-Electronic
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0c502886a20a722a41ae8722785316eeTest
https://doi.org/10.1007/s00439-019-02062-0Test -
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المؤلفون: Amber L. Johns, Ian Fore, Juha Törnroos, Melissa Haendel, Bimal Chaudhari, J. Patrick Woolley, Brian Walsh, Susan Fairley, Jonathan A. Tedds, Jessica Vamathevan, Martin Kuba, Clara L. Gaff, Ksenia Zaytseva, Sabine Oesterle, David Bujold, Sarion R. Bowers, Alexander Kanitz, Jordi Rambla, Anthony J. Brookes, Alice L. Mann, Gregory A. Rushton, Paul Flicek, Seik-Soon Khor, Khalid A. Fakhro, Aina Jene, Miro Cupak, Moran N. Cabili, Emilio Palumbo, Nathan C. Sheffield, Vivian Ota Wang, James K. Bonfield, Julius O.B. Jacobsen, Michael M. Hoffman, Neerjah Skantharajah, Ewan Birney, Rasko Leinonen, Anna Middleton, Anneke M. Lucassen, Ania Niewielska, Angela Page, Jeffrey Niu, Alastair A. Thomson, Elena M. Ghanaim, Albert V. Smith, Megan Doerr, Lena I. Dolman, Arcadi Navarro, Ada Hamosh, Sean Upchurch, Michael Baudis, Jerome Kelleher, Marc Fiume, Mikael Linden, Roderic Guigó, Orion J. Buske, Tristan H. Nelson, Kyle Ellrott, Lauren A. Fromont, Alex H. Wagner, Alexander Senf, Tommi Nyrönen, Michele Mattioni, David Haussler, Alejandro Metke-Jimenez, Francis Jeanson, Mélanie Courtot, David Hansen, Matthew H. Brush, Helen Parkinson, Peter Goodhand, Lindsay Smith, Jonathan Fuerth, Stephanie Li, Tim Beck, Debyani Chakravarty, Kristina Kekesi-Lafrance, Giselle Kerry, James A. Eddy, Torsten Schwede, Jaime M. Guidry Auvil, Xianglin Liu, Soichi Ogishima, Fiona Cunningham, Oliver Hofmann, Dean Hartley, Amy Nisselle, Katsushi Tokunaga, Alfonso Valencia, Hidewaki Nakagawa, Kurt W. Rodarmer, Lawrence J. Babb, Heidi J. Sofia, David Glazer, Angel Pizarro, Ammar Husami, Gil Alterovitz, Serena Scollen, J. Michael Cherry, Helen V. Firth, Zornitza Stark, Monica C. Munoz-Torres, Daniel L Cameron, Robert R. Freimuth, Manuel Rueda, Stephanie O.M. Dyke, Makoto Suematsu, Christina K. Yung, Rosalyn S. Ryan, Chisato Yamasaki, Michael S. Fitzsimons, Amanda B. Spurdle, Renee A. Rider, Karen Eilbeck, Ashley E. Hobb, Roman Valls Guimera, Calvin W. L. Ho, Robert L. Davies, Maxmillian P. Barkley, Malachi Griffith, Rishi Nag, Javier Lopez, Jacob Shujui Hsu, Isuru Udara Liyanage, Petr Holub, Dylan Spalding, Reece K. Hart, Barbara J. Wold, Fruzsina Molnár-Gábor, Sarah E. Hunt, Augusto Rendon, Danielle Denisko, Dipayan Gupta, Obi L. Griffith, Robert J. Carroll, Patrick Tan, Craig Voisin, Saumya Shekhar Jamuar, Mallory A. Freeberg, Michael Brudno, Andreas Prlic, Kenjiro Kosaki, Shu Hui Chen, Edward S. Dove, Tony Burdett, Anthony A. Philippakis, Richard Milne, Bartha Maria Knoppers, Kathryn North, David Torrents, Eva C. Winkler, Marc S. Williams, Melissa A. Konopko, Rachele M. Hendricks-Sturrup, Brian O'Connor, Grant M. Wood, Robert L. Grossman, Timothy L. Tickle, Michael F. Lin, Laura Lyman Rodriguez, Weiniu Gan, Laura A.D. Paglione, Justina Chung, Thomas M. Keane, Susan E. Wallace, Lyndon J. Zass, Heidi L. Rehm, Kazuto Kato, Alexander Bernier, Nicola Mulder, Jamal Nasir, Yann Joly, Junjun Zhang, Adrian Thorogood, Lincoln Stein, Guillaume Bourque, L. Jonathan Dursi, Tudor Groza, Jean-Pierre Hubaux, Coby Viner, Helen Schuilenburg, Sergi Beltran, Michael J.S. Beauvais, Hayley L. Clissold, Elizabeth L. Janes, Jacques S. Beckmann, Michael Lukowski, Melissa S. Cline, John F. Marshall, Alan F. Rubin, Tiffany Boughtwood, Peter N. Robinson, Robert C. Green, Robert Cook-Deegan, Esmeralda Casas-Silva, Jeremy Adams, Steven J.M. Jones, Gary I. Saunders, Danya F. Vears, Jonathan Lawson, Andrew D. Yates, David Bernick, Susheel Varma
المساهمون: Middleton, Anna [0000-0003-3103-8098], Milne, Richard [0000-0002-8770-2384], Apollo - University of Cambridge Repository, Abigail Wexner Research Institute, Academy of Finland, Medical Research Future Fund, BioBank Japan, Canada Foundation for Innovation, Canadian Institutes of Health Research, European Commission, German Research Foundation, Genome Canada, Google, Howard Hughes Medical Institute, Instituto de Salud Carlos III, Japan Agency for Medical Research and Development, Mayo Clinic, Fundación 'la Caixa', Ministère de l'Économie et de l'Innovation (Québec), Monarch Initiative, National Human Genome Research Institute (US), National University of Singapore, Agency for Science, Technology and Research A*STAR (Singapore), National Health and Medical Research Council (Australia), National Institutes of Health (US), National Institute of General Medical Sciences (US), Swiss Institute of Bioinformatics, State Secretariat for Education, Research and Innovation (Switzerland), Terry Fox Research Institute, Canada Research Chairs, European Molecular Biology Laboratory, Ministry of Research, Innovation and Science (Ontario), Ontario Genomics Institute, Natural Sciences and Engineering Research Council of Canada, Wellcome Trust, National Taiwan University
المصدر: Cell Genonics
Rehm, H L, Page, A J H, Smith, L, Adams, J B, Alterovitz, G, Babb, L J, Barkley, M P, Baudis, M, Beauvais, M J S, Beck, T, Beckmann, J S, Beltran, S, Bernick, D, Bernier, A, Bonfield, J K, Boughtwood, T F, Bourque, G, Bowers, S R, Brookes, A J, Brudno, M, Brush, M H, Bujold, D, Burdett, T, Buske, O J, Cabili, M N, Cameron, D L, Carroll, R J, Casas-Silva, E, Chakravarty, D, Chaudhari, B P, Chen, S H, Cherry, J M, Chung, J, Cline, M, Clissold, H L, Cook-Deegan, R M, Courtot, M, Cunningham, F, Cupak, M, Davies, R M, Denisko, D, Doerr, M J, Dolman, L I, Dove, E S, Dursi, L J, Dyke, S O M, Eddy, J A, Eilbeck, K, Ellrott, K P, Fairley, S, Fakhro, K A, Firth, H V, Fitzsimons, M S, Fiume, M, Flicek, P, Fore, I M, Freeberg, M A, Freimuth, R R, Fromont, L A, Fuerth, J, Gaff, C L, Gan, W, Ghanaim, E M, Glazer, D, Green, R C, Griffith, M, Griffith, O L, Grossman, R L, Groza, T, Guidry Auvil, J M, Guigó, R, Gupta, D, Haendel, M A, Hamosh, A, Hansen, D P, Hart, R K, Hartley, D M, Haussler, D, Hendricks-Sturrup, R M, Ho, C W L, Hobb, A E, Hoffmann, M M, Hoffman, O M, Holub, P, Hsu, J S, Hubaux, J-P, Hunt, S E, Husami, A, Jacobsen, J O, Jamuar, S S, Janes, E L, Jeanson, F, Jené, A, Johns, A L, Joly, Y, Jones, S J M, Kanitz, A, Kato, K, Keane, T M, Kekesi-Lafrance, K, Kelleher, J, Kerry, G, Khor, S-S, Knoppers, B M, Konopko, M A, Kosaki, K, Kuba, M, Lawson, J, Leinonen, R, Li, S, Lin, M F, Linden, M, Liu, X, Liyanage, I U, Lopez, J, Lucassen, A M, Lukowski, M, Mann, A L, Marshall, J, Mattioni, M, Metke-Jimenez, A, Middleton, A, Milne, R J, Molnár-Gábor, F, Mulder, N, Munoz-Torres, M C, Nag, R, Nakagawa, H, Nasir, J, Navarro, A, Nelson, T H, Niewielska, A, Nisselle, A, Niu, J, Nyrönen, T H, O'Connor, B D, Oesterle, S, Ogishima, S, Wang, V O, Paglione, L A D, Palumbo, E, Parkinson, H E, Philippakis, A A, Pizarro, A D, Prlic, A, Rambla, J, Rendon, A, Rider, R A, Robinson, P N, Rodarmer, K W, Rodriguez, L L, Rubin, A F, Rueda, M, Rushton, G A, Ryan, R S, Saunders, G I, Schuilenburg, H, Schwede, T, Scollen, S, Senf, A, Sheffield, N C, Skantharajah, N, Smith, A V, Sofia, H J, Spalding, D, Spurdle, A B, Stark, Z, Stein, L D, Suematsu, M, Tan, P, Tedds, J A, Thomson, A A, Thorogood, A, Tickle, T L, Tokunaga, K, Törnroos, J, Torrents, D, Upchurch, S, Valencia, A, Guimera, R V, Varmathevan, J, Varma, S, Vears, D F, Viner, C, Voisin, C, Wagner, A H, Wallace, S E, Walsh, B P, Williams, M S, Winkler, E C, Wold, B J, Wood, G M, Woolley, J P, Yamasaki, C, Yates, A D, Yung, C K, Zass, L J, Zaytseva, K, Zhang, J, Goodhand, P, North, K & Birney, E 2021, ' GA4GH : International policies and standards for data sharing across genomic research and healthcare ', Cell Genomics, vol. 1, no. 2, 100029 . https://doi.org/10.1016/j.xgen.2021.100029Test
Cell genomics
Digital.CSIC. Repositorio Institucional del CSIC
instname
Cell genomics, vol. 1, no. 2, pp. 100029مصطلحات موضوعية: Standards, Knowledge management, data sharing, precision medicine, Interoperability, Technical standard, data federation, Article, 3105 Genetics, 03 medical and health sciences, 0302 clinical medicine, data access, learning health system, Clinical Research, Health care, genomics, Genetics, Data federation, Data access, 030304 developmental biology, 0303 health sciences, business.industry, Precision medicine, Human Genome, Learning health system, 3 Good Health and Well Being, Bioethics, Genomics, Health Services, 3. Good health, Data sharing, Data aggregator, Policy, 030220 oncology & carcinogenesis, FOS: Biological sciences, standards, Business, Generic health relevance, bioethics, policy, 31 Biological Sciences
وصف الملف: application/pdf; text
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c734eb108aca696729e07ad1bb534379Test
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المؤلفون: Peter Goodhand, Claire Steed, Jason Bobe, Katherine I. Morley, Richard Milne, Christine Critchley, Danya F. Vears, Erick R. Scott, Jerome Atutornu, Adrian Thorogood, Anna Middleton, Paul Bevan, Emilia Niemiec, Erika Kleiderman, Barbara Prainsack, Heidi Carmen Howard, Laurens Robarts, James Smith, Dianne Nicol
المساهمون: Middleton, Anna [0000-0003-3103-8098], Milne, Richard [0000-0002-8770-2384], Nicol, Dianne [0000-0002-6553-2839], Vears, Danya F. [0000-0002-6290-545X], Apollo - University of Cambridge Repository
المصدر: European Journal of Human Genetics
مصطلحات موضوعية: Adult, Male, Value (ethics), Canada, Health Knowledge, Attitudes, Practice, medicine.medical_specialty, Genomics, Social sciences, 03 medical and health sciences, 706/689/179, Genetics, medicine, Humans, Genetic Testing, Sociology, Genetik, Genetic Privacy, Genetics (clinical), Other Social Sciences, Medicinsk genetik, 030304 developmental biology, Ethics, 0303 health sciences, Participant Values Work Stream of the Global Alliance for Genomics and Health, Genome, Human, Information Dissemination, business.industry, Genetic exceptionalism, 030305 genetics & heredity, Australia, article, 706/689, Middle Aged, Public relations, Publics, United Kingdom, United States, Data sharing, Public Opinion, Donation, Scale (social sciences), Annan samhällsvetenskap, Medical genetics, Female, business, Medical Genetics
وصف الملف: application/zip; application/pdf; text/xml; Print-Electronic
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::883c0d495f14640aa9176e4d12551cfeTest
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المؤلفون: Vera L. Izhevskaya, Gry Houeland, Aleksandra Jędrzejak, Dianne Nicol, Deborah Mascalzoni, Jerome Atutornu, Josepine Fernow, Jack Pollard, Alexandra Soulier, Aiko Hibino, Christine Critchley, Jusaku Minari, Erika Kleiderman, Lauren Robarts, Keying Liu, James Smith, Álvaro Mendes, Adrian Thorogood, Shamim Anwer, Heidi Carmen Howard, Cornelia Tandre, Katherine I. Morley, Virginia Romano, Brandi Leach, Torsten Heinemann, Charlotta Ingvoldstad Malmgren, Paul Bevan, Nan Wang, Anne V. West, Jonathan Roberts, Cao Jinhong, Anna Middleton, Vigdis Stefansdottir, Barbara Prainsack, Christine Patch, Peter Goodhand, Haytham A. Sheerah, Go Yoshizawa, S. Zakir Hussain, Mohamed A. Almarri, Yali Cong, Claire Steed, Emilia Niemiec, Qurratulain Hasan, Maria Cerezo, Richard Milne, Elena E. Baranova, Marie Rivière, Megumi Kimura
المساهمون: DILTEC - Didactique des langues, des textes et des cultures - EA 2288 (DILTEC), Université Sorbonne Nouvelle - Paris 3
المصدر: American Journal of Human Genetics
American Journal of Human Genetics, Elsevier (Cell Press), 2020, ⟨10.1016/j.ajhg.2020.08.023⟩
The American journal of human genetics 107(4), 743-752 (2020). doi:10.1016/j.ajhg.2020.08.023مصطلحات موضوعية: 0301 basic medicine, Male, Health Knowledge, Attitudes, Practice, data sharing, health data, Disease, 030105 genetics & heredity, Health data, [SHS.HISPHILSO]Humanities and Social Sciences/History, Philosophy and Sociology of Sciences, data donation, Surveys and Questionnaires, Genetics (clinical), media_common, [SHS.SOCIO]Humanities and Social Sciences/Sociology, attitudes, public, High-Throughput Nucleotide Sequencing, Genomics, global, Europe, Donation, Female, Public Health, Psychology, Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning, Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, Adult, Asia, media_common.quotation_subject, Internet privacy, Information Systems, Social aspects, Trust, Article, 03 medical and health sciences, Perception, ddc:570, Genetics, Genomic data, Humans, survey, Global perceptions, [SDV.GEN]Life Sciences [q-bio]/Genetics, business.industry, Genome, Human, Information Dissemination, Perspective (graphical), genomic data sharing, Australia, Health Care Service and Management, Health Policy and Services and Health Economy, Sequence Analysis, DNA, [SDV.ETH]Life Sciences [q-bio]/Ethics, Data sharing, Public perceptions, 030104 developmental biology, Attitudes, Public trust, genomic data, Americas, business, Medical ethics
وصف الملف: application/pdf
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::072c94135fd2d8d37b9ee4804a4866efTest
https://hdl.handle.net/11250/2760207Test -
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المؤلفون: Maggie Kirk, Christine Patch, Emma Tonkin, Anna Middleton, Laurie Badzek, Kathleen A. Calzone, Caroline Benjamin
المصدر: J Nurs Scholarsh
مصطلحات موضوعية: Research program, Internationality, 030504 nursing, Scope (project management), business.industry, Genomics, Sample (statistics), Nursing, Maturity (finance), Article, 03 medical and health sciences, InformationSystems_GENERAL, Leadership, 0302 clinical medicine, Alliance, Political science, Health care, Humans, 030212 general & internal medicine, Implementation research, 0305 other medical science, business, General Nursing
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::63efa70b126557a87c7803104a6b6d83Test
https://europepmc.org/articles/PMC7202994Test/ -
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المؤلفون: Anna Middleton
المصدر: Human Molecular Genetics
مصطلحات موضوعية: Big Data, 0301 basic medicine, Big data, Genomics, 030105 genetics & heredity, Biology, Computing Methodologies, 03 medical and health sciences, Order (exchange), Databases, Genetic, Genetics, Humans, Invited Reviews, Molecular Biology, Genetic Association Studies, Genetics (clinical), Genome, Human, Information Dissemination, business.industry, Interpretation (philosophy), General Medicine, Tipping point (climatology), Data science, 3. Good health, 030104 developmental biology, Variation (linguistics), Scale (social sciences), business, Personal genomics
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f6fc0596660d1f7a11371c58b6a5a2e7Test
https://doi.org/10.1093/hmg/ddy084Test -
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المؤلفون: Laurie Badzek, Maggie Kirk, Kathleen A. Calzone, Anna Middleton, Caroline Benjamin, Emma Tonkin
مصطلحات موضوعية: Attitude of Health Personnel, media_common.quotation_subject, Nurses, Genomics, Health literacy, Global Health, Literacy, Article, Education, 03 medical and health sciences, 0302 clinical medicine, Nursing, Surveys and Questionnaires, Health care, Global health, Humans, 030212 general & internal medicine, Competence (human resources), General Nursing, media_common, Internet, 030504 nursing, business.industry, Health Literacy, Alliance, Cross-Sectional Studies, Health Resources, The Internet, Business, Clinical Competence, 0305 other medical science, Delivery of Health Care
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eedeec0434e2a4f421839b5f1557223aTest
https://europepmc.org/articles/PMC6112149Test/ -
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المؤلفون: Lauren Farley, Claire Steed, Adrian Thorogood, Christoph Schickhardt, Natasha Bonhomme, Erick R. Scott, Nadezda V. Kovalevskaya, Anna Middleton, Barbara Prainsack, Paul Bevan, Heidi Carmen Howard, Chiara Garattini, Katherine I. Morley, James Smith, Elissa Levin, Jason Bobe, Natalie Banner, Danya F. Vears, Erika Kleiderman, Katherine Littler, Emilia Niemiec
المصدر: Personalized medicine. 15(4)
مصطلحات موضوعية: Medical Ethics, 0301 basic medicine, data sharing, Internet privacy, Information Dissemination, 030105 genetics & heredity, film, Public opinion, metaphor, Medicinsk etik, public engagement, 03 medical and health sciences, 0302 clinical medicine, Surveys and Questionnaires, genomics, Science communication, Humans, genetics, survey, 030212 general & internal medicine, Sociology, Public engagement, Bespoke, Pharmacology, Internet, attitudes, business.industry, public, General Medicine, Genomics, science communication, Data sharing, Cross-Sectional Studies, Attitude, Privacy, Public Opinion, Molecular Medicine, The Internet, business, Medical ethics
وصف الملف: application/pdf; Print-Electronic
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9de04ee4afc7e860e7e9486934e336e6Test
https://pubmed.ncbi.nlm.nih.gov/29856292Test -
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المؤلفون: Heidi Carmen Howard, Anna Middleton, Álvaro Mendes, Caroline Benjamin
المصدر: Personalized medicine. 14(3)
مصطلحات موضوعية: 0301 basic medicine, C490, Medicin och hälsovetenskap, Genetic counseling, A990, Genomics, Genetic Counseling, Computational biology, Disease, 030105 genetics & heredity, Medical and Health Sciences, connecting science, 03 medical and health sciences, Direct-To-Consumer Screening and Testing, medicine, genomics, Humans, CHIP ME, Genetic Testing, Precision Medicine, direct-to-consumer, Genetic testing, Pharmacology, Genetics, genetic counseling, medicine.diagnostic_test, business.industry, DTCGT, General Medicine, Bioethics, C400, 3. Good health, genetic test, Molecular Medicine, website, business
وصف الملف: application/pdf
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9aa8e991df4e0859038e42e86935cb24Test
https://pubmed.ncbi.nlm.nih.gov/29767582Test