المؤلفون: Susan J. Bartlett, John D. Peipert, Evan Tang, David Cella, Marta Novak, Oladapo Ekundayo, Istvan Mucsi, Madeline Li, Nathaniel Edwards, Doris Howell, Candice Richardson, Aarushi Bansal

المصدر: Quality of Life Research. 28:815-827

مصطلحات موضوعية: Male, medicine.medical_specialty, Patient-Reported Outcomes Measurement Information System, Intraclass correlation, 03 medical and health sciences, 0302 clinical medicine, Cronbach's alpha, Surveys and Questionnaires, medicine, Humans, Patient Reported Outcome Measures, 030212 general & internal medicine, Renal Insufficiency, Chronic, business.industry, Public Health, Environmental and Occupational Health, Reproducibility of Results, Construct validity, Middle Aged, medicine.disease, Kidney Transplantation, Confirmatory factor analysis, Patient Health Questionnaire, Cross-Sectional Studies, Convergent validity, 030220 oncology & carcinogenesis, Quality of Life, Physical therapy, Female, business, Kidney disease

الوصف: The Patient-Reported Outcomes Measurement Information System (PROMIS) aims to address the lack of generalizable and universal measure of patient-reported outcomes to assess health-related quality of life. It has not been validated for patients with chronic kidney disease. We aim to validate the PROMIS-57 and PROMIS-29 questionnaires among kidney transplant recipients.A cross-sectional sample of stable kidney transplant recipients was recruited. Each participant completed PROMIS-57, a 57-question instrument covering seven domains-physical function, anxiety, depression, fatigue, pain, sleep disturbance, and social functioning-alongside validated legacy questionnaires [Patient Health Questionnaire (PHQ9), General Anxiety Disorder (GAD7), Edmonton Symptom Assessment Scale revised (ESASr), and Kidney Disease Quality of Life (KDQoL-36)]. PROMIS-29, a 29-question instrument, is nested within PROMIS-57 and measures the same domains. Structural validity of PROMIS was assessed with confirmatory factor analysis, reported using the Comparative Fit Index (CFI). Construct validity was assessed with known-groups comparisons. Internal consistency was evaluated with Cronbach's α and convergent validity was assessed with Spearman's Rho. Test-retest reliability was assessed through the intraclass correlation coefficient (ICC).Mean (± SD) age of the 177 participants was 50 (± 17), 57% were male and 55% Caucasian. Internal consistency of each domain was high (Cronbach's α 0.88). Confirmatory factor analysis showed good structural validity for most domains (CFI 0.95, RMSEA 0.05). Test-retest reliability indicated good agreement (ICC 0.6). Known-groups comparisons by clinical and socio-demographic differences were found as hypothesized.Our results provide evidence that PROMIS-57 and PROMIS-29 are highly reliable and valid instruments among kidney transplant recipients. We propose it as a valuable tool to assess important domains of the illness experience.

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f43c124ac1ab3818adc5cc8eac32ca0aTest
https://doi.org/10.1007/s11136-018-2058-2Test

المؤلفون: Emmett B. Keeler, Ron D. Hays, John D. Peipert, Lee A. Jennings, Neil S. Wenger, David B. Reuben

المصدر: Journal of the American Geriatrics Society. 66:1785-1789

مصطلحات موضوعية: 030214 geriatrics, business.industry, Caregiver burden, medicine.disease, Structural equation modeling, Confirmatory factor analysis, Patient Health Questionnaire, 03 medical and health sciences, 0302 clinical medicine, medicine, Dementia, Patient-reported outcome, 030212 general & internal medicine, Functional ability, Geriatrics and Gerontology, business, Neuropsychiatric Inventory Questionnaire, Clinical psychology

الوصف: Author(s): Peipert, John D; Jennings, Lee A; Hays, Ron D; Wenger, Neil S; Keeler, Emmett; Reuben, David B | Abstract: ObjectivesTo better capture the scope of caregiver burden by creating a composite of 3 existing measures that assess different health domains.DesignProspective follow-up study.SettingUniversity-based dementia care management program.ParticipantsCaregivers of persons with dementia (PWD) (N=1,091).MeasurementsThe composite measure (the Dementia Burden Scale-Caregiver (DBS-CG)) was based on the Modified Caregiver Strain Index, Neuropsychiatric Inventory Questionnaire Distress Scale, and Patient Health Questionnaire (PHQ-9). Alternative factor structures were evaluated using 2 confirmatory factor analysis (CFA) models: a bifactor model and a 3 correlated factors model. Good model fit was defined as a root mean square error of approximation (RMSEA) of less than 0.06 and comparative fit index (CFI) value greater than 0.95. Coefficient omega was used to estimate scale reliability. Minimally important differences (MIDs) were estimated by anchoring the magnitude of DBS-CG change to change in caregiver self-efficacy and functional ability of PWD.ResultsThe bifactor CFA model fit best (RMSEA = 0.04, CFI = 0.95). Based on this model, a DBS-CG scale was created wherein all items were transformed to a possible range of 0 to 100 and then averaged. Higher scores indicate higher burden. Mean DBS-CG score was 27.3. The reliability was excellent (coefficient omega=0.93). MID estimates ranged from 4 to 5 points (effect sizes: 0.20-0.49).ConclusionThis study provides support for the reliability and validity of the DBS-CG. It can be used as an outcome measure to assess the effect of interventions to reduce dementia caregiver burden.

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::2be66623715f82a7358f75307fbc9478Test
https://doi.org/10.1111/jgs.15502Test

المؤلفون: Christina J. Goalby, Leanne Peace, John D. Peipert, Amy D. Waterman, Anna Michelle M. McSorley, Jennifer L. Beaumont

المصدر: American journal of kidney diseases : the official journal of the National Kidney Foundation, vol 74, iss 5
Am J Kidney Dis

مصطلحات موضوعية: Male, poverty, medicine.medical_treatment, 030232 urology & nephrology, Psychological intervention, Video Recording, Kidney transplant, patient education, law.invention, Kidney Failure, Kidney transplantation, 0302 clinical medicine, Randomized controlled trial, law, Medicine, 030212 general & internal medicine, Prospective Studies, Chronic, African Americans, end-stage renal disease, Incidence, Middle Aged, Urology & Nephrology, Tissue Donors, Nephrology, racial disparities, Public Health and Health Services, Female, low income, Low income, Adult, medicine.medical_specialty, Randomization, Adolescent, socioeconomic disparities, Clinical Sciences, Article, socioeconomic status, 03 medical and health sciences, Young Adult, Patient Education as Topic, Renal Dialysis, Humans, Poverty, Dialysis, Aged, business.industry, medicine.disease, Kidney Transplantation, United States, Black or African American, randomized controlled trial, Physical therapy, Kidney Failure, Chronic, dialysis, business, Patient education

الوصف: Rationale & Objective Compared with others, black and low-income patients receiving dialysis are less likely to receive kidney transplantation (KT) education within dialysis centers. We examined the efficacy of 2 supplementary KT education approaches delivered directly to patients. Study Design Prospective, 3-arm parallel-group, randomized, controlled trial. Settings & Participants Adult, black, and white low-income patients receiving dialysis in Missouri. Intervention Patients were randomly assigned to 1 of 3 educational conditions: (1) standard of care, usual KT education provided in dialysis centers (control); (2) Explore Transplant @ Home patient-guided, 4 modules of KT education sent directly to patients using print, video, and text messages; and (3) Explore Transplant @ Home educator-guided, the patient-guided intervention plus 4 telephonic discussions with an educator. Outcomes Primary: patient knowledge of living (LDKT) and deceased donor KT (DDKT). Secondary: informed decision making, change in attitudes in favor of LDKT and DDKT, and change in the number of new steps taken toward KT. Results In intent-to-treat analyses, patients randomly assigned to educator- and patient-guided interventions had greater knowledge gains (1.4 point increase) than control patients (0.8 point increase; P=0.02 and P=0.01, respectively). Compared with control patients, more patients randomly assigned to educator- and patient-guided interventions were able to make informed decisions about starting KT evaluation (82% vs 91% and 95%; P=0.003), pursuing DDKT (70% vs 84% and 84%; P=0.003), and pursuing LDKT (73% vs 91% and 92%; P Limitations Potential contamination because of patient-level randomization; no assessment of clinical end points. Conclusions Education presented directly to dialysis patients, with or without coaching by telephone, increased dialysis patients' KT knowledge and informed decision making without increasing educational burden on providers. Funding Source This project was funded by the National Institutes of Health and Health Resources and Services Administration. Trial Registration Registered at ClinicalTrials.gov with study number NCT02268682.

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9ea69af5f49e36d51a850f6f7dee1350Test
https://escholarship.org/uc/item/4h86w4g5Test

المؤلفون: Ron D. Hays, John D. Peipert

المصدر: Journal of the American Society of Nephrology. 30:530-532

مصطلحات موضوعية: 0301 basic medicine, Nephrology, medicine.medical_specialty, Health Status, medicine.medical_treatment, 030232 urology & nephrology, Food and drug administration, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), Up Front Matters, Internal medicine, Health care, medicine, Humans, Patient Reported Outcome Measures, Intensive care medicine, Dialysis, business.industry, Health condition, S Voice, General Medicine, Patient-centered care, 030104 developmental biology, Quality of Life, Kidney Failure, Chronic, business

الوصف: As patient-oriented care has expanded in health care, the use of patient-reported outcomes (PROs) to evaluate patients’ health has increased as well. A PRO is defined by the US Food and Drug Administration as “any report coming from patients about a health condition and its treatment, without

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cf6155e994a81c53d49af959044f01c7Test
https://doi.org/10.1681/asn.2019010019Test

المؤلفون: John D. Peipert, Cynthia M. Gonzalez, Keith C. Norris, Anna Michelle M. McSorley, Amy D. Waterman, Christina J. Goalby, Leanne Peace

المصدر: World Medical & Health Policy. 9:399-417

مصطلحات موضوعية: Low income, medicine.medical_specialty, business.industry, Health Policy, medicine.medical_treatment, media_common.quotation_subject, 030232 urology & nephrology, Dialysis patients, Focus group, Mixed methods analysis, 03 medical and health sciences, surgical procedures, operative, 0302 clinical medicine, Family medicine, Perception, medicine, Social ecological model, 030212 general & internal medicine, business, Socioeconomic status, Dialysis, media_common

الوصف: Author(s): McSorley, AMM; Peipert, JD; Gonzalez, C; Norris, KC; Goalby, CJ; Peace, LJ; Waterman, AD | Abstract: Although mandates require all dialysis patients be informed about transplant, Black and low-income patients remain less likely to receive transplant education, and significant racial and socioeconomic disparities in access to transplant persist. This mixed methods study, utilizing surveys and focus groups, examined 48 dialysis providers’ perceptions of transplant barriers for Black and low-income patients. Focus group transcripts were coded for common themes, which were organized by level of the Socio-Ecological Model for Transplant (SEMT). On surveys, over 50 percent of providers reported having insufficient time to provide transplant education. In focus groups, providers perceived that Black and low-income patients experience greater barriers to transplant. These perceptions, as well as limited time and resources, could enable subtle biases against comprehensive transplant education for these patient groups to emerge. Raising awareness among providers about existing biases and supplementing transplant education within dialysis centers may improve the consistency of education and access to transplant.

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::916822b7e99820d839e4baf60bf18217Test
https://doi.org/10.1002/wmh3.251Test

المؤلفون: John D. Peipert, Ron D. Hays

المصدر: Journal of Patient-Reported Outcomes, Vol 1, Iss 1, Pp 1-10 (2017)
Peipert, JD; & Hays, RD. (2017). Methodological considerations in using patient reported measures in dialysis clinics.. Journal of patient-reported outcomes, 1(1), 11. doi: 10.1186/s41687-017-0010-9. UCLA: Retrieved from: http://www.escholarship.org/uc/item/1k32q900Test
Journal of patient-reported outcomes, vol 1, iss 1
Journal of Patient-Reported Outcomes

مصطلحات موضوعية: medicine.medical_specialty, Quality management, medicine.medical_treatment, 030232 urology & nephrology, Health Informatics, Outcomes, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), Health Information Management, Health care, medicine, Patient reported measures, 030212 general & internal medicine, Intensive care medicine, Dialysis, Reimbursement, business.industry, lcsh:Public aspects of medicine, lcsh:RA1-1270, medicine.disease, Commentary, Hemodialysis, business, Medicaid, Kidney disease

الوصف: Patient reported measures (PRMs), including patient-reported outcomes, play a critical role in dialysis care. The usage of PRMs is extensive in dialysis clinics. While there are excellent PRMs to choose from, and their implementation as part of quality improvement and performance monitoring is extensive, there are still methodological challenges to be addressed. In this paper, we identify key methodological concerns around use of PRMs in dialysis centers in the United States and make recommendations for improving the use of PRMs in dialysis related to Selection of PRMs, Mode of Administration, and Support for PRM Use. These recommendations include: (1) Continue the use of Kidney Disease Quality of Life 36-item survey (KDQOL™-36) for dialysis centers’ internal quality improvement activities and the In-Center Hemodialysis Consumer Assessment of Health Care Providers and Systems (ICH-CAHPS survey®) for public dialysis center performance monitoring, but promote efforts to modify these instruments by incorporating PROMIS general health items (KDQOL-36) and reducing the length of the ICH-CAHPS. (2) Adopt a PRM of whether dialysis patients have been informed about all dialysis and transplant options. (3) Evaluate equivalence between electronic and paper versions of PRMs prior to widespread use of electronic administration. (4) Explore reimbursement of costs of PRM administration by the Centers for Medicare and Medicaid Services and kidney organizations. (5) Continue development of provider trainings in PRM administration and interpretation. These recommendations will help dialysis care decision-makers, clinicians, and applied researchers take the next steps toward enhancing PRM use in dialysis.

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::957ed7e16b4620a67f2bba7d21b017a4Test
http://link.springer.com/article/10.1186/s41687-017-0010-9Test

المؤلفون: Edmund Huang, John D. Peipert, Suphamai Bunnapradist, Keith C. Norris, Amy D. Waterman, Carol M. Mangione, Efrain Talamantes, Gerardo Moreno

المصدر: Talamantes, E; Norris, KC; Mangione, CM; Moreno, G; Waterman, AD; Peipert, JD; et al.(2017). Linguistic isolation and access to the active kidney transplant waiting list in the United States. Clinical Journal of the American Society of Nephrology, 12(3), 483-492. doi: 10.2215/CJN.07150716. UC Davis: Retrieved from: http://www.escholarship.org/uc/item/9w68c8wbTest
Clinical journal of the American Society of Nephrology : CJASN, vol 12, iss 3

مصطلحات موضوعية: Male, Epidemiology, waitlist, 030232 urology & nephrology, 030230 surgery, Critical Care and Intensive Care Medicine, Health Services Accessibility, 0302 clinical medicine, Risk Factors, Interquartile range, Cumulative incidence, Registries, race, Kidney transplantation, Language, African Americans, education.field_of_study, Communication Barriers, Censuses, Hispanic or Latino, Urology & Nephrology, Middle Aged, Linguistics, Nephrology, ethnicity, Population study, Female, Medical Record Linkage, Hispanic Americans, Adult, United Network for Organ Sharing, Waiting Lists, European Continental Ancestry Group, Clinical Sciences, Population, kidney transplantation, White People, 03 medical and health sciences, Clinical Research, medicine, Humans, Healthcare Disparities, education, Socioeconomic status, Retrospective Studies, Transplantation, Asian, business.industry, Organ Transplantation, Original Articles, medicine.disease, Kidney Transplantation, United States, Black or African American, Asian Americans, business

الوصف: © 2017 by the American Society of Nephrology. Background and objectives Waitlist inactivity is a barrier to transplantation, because inactive candidates cannot receive deceased donor organ offers. We hypothesized that temporarily inactive kidney transplant candidates living in linguistically isolated communities would be less likely to achieve active waitlist status. Design, setting, participants, & measurements We merged Organ Procurement and Transplantation Network/ United Network for Organ Sharing data with five-digit zip code socioeconomic data from the 2000 US Census. The cumulative incidence of conversion to active waitlist status, death, and delisting before conversion among 84,783 temporarily inactive adult kidney candidates from 2004 to 2012 was determined using competing risks methods. Competing risks regression was performed to characterize the association between linguistic isolation, incomplete transplantation evaluation, and conversion to active status. A household was determined to be linguistically isolated if all members ≥14 years old speak a non-English language and also, speak English less than very well. ResultsA total of 59,147 candidates (70% of the studypopulation) achieved active status over the studyperiod of 9.8 years. Median follow-up was 110 days (interquartile range, 42–276 days) for activated patients and 815 days (interquartile range, 361–1244 days) for candidates not activated. The cumulative incidence of activation over the studyperiod was 74%, the cumulative incidence of death before conversion was 10%, and the cumulative incidence of delisting was 13%. After adjusting for other relevant covariates, living in a zip code with higher percentages of linguistically isolated households was associated with progressively lower subhazards of activation both in the overall population (reference

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::25ac6f174e007db50f0a431deb599452Test
https://doi.org/10.2215/cjn.07150716Test

المؤلفون: Claude Messan Setodji, John D. Peipert, Ron D. Hays

المصدر: Qual Life Res
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, vol 28, iss 11

مصطلحات موضوعية: Gerontology, Male, Quality management, medicine.medical_treatment, Health Status, Patient experiences of care, Item response theory, Kidney Failure, 0302 clinical medicine, Psychology, Chronic, African Americans, 030503 health policy & services, Confounding, Middle Aged, Patient Satisfaction, 030220 oncology & carcinogenesis, Health Policy & Services, Public Health and Health Services, Female, Hemodialysis, Differential item functioning, 0305 other medical science, Health care disparities, Adult, medicine.medical_specialty, Psychometrics, Health Personnel, European Continental Ancestry Group, Article, White People, Measurement equivalence, 03 medical and health sciences, Patient satisfaction, Renal Dialysis, Patient experience, medicine, CAHPS In-Center Hemodialysis (ICH) Survey, Humans, Healthcare Disparities, Aged, Quality of Health Care, business.industry, Public health, Public Health, Environmental and Occupational Health, Black or African American, Health Care Surveys, Quality of Life, Kidney Failure, Chronic, business

الوصف: PURPOSE: End-stage renal disease patients’ experience of care is an integral part of the assessment of the quality of the care provided at hemodialysis centers and are needed to promote patient choice, quality improvement, and accountability. The purpose of this study is to evaluate the In-Center Hemodialysis Consumer Assessment of Healthcare Providers and Systems (ICH-CAHPS®) survey and its equivalence in different age, gender, race and education subgroups. METHODS: The ICH-CAHPS survey was administered to 1,454 patients from 32 dialysis facilities. For the characteristics compared, the sample had 756 participants younger than 65 years old, 739 men, 516 Black, 567 White, and 970 with less than high school diploma. Three different patient experience constructs were studied including nephrologist’s communication and caring, quality of care and operations, and providing information to patients. We used item response theory analysis to examine the possibility of differential item functioning (DIF) by patient age, gender, race and education separately after controlling for the other DIF characteristics and additional confounding variables including survey mode, mental and general health status as well as duration on dialysis. RESULTS: The three constructs studied were unidimensional and no major DIF was observed on the composites. Some non-equivalences were observed when confounders were not controlled for, suggesting that such covariates can be important factors in understanding the possibility of disparity in patients’ experience. CONCLUSIONS: The ICH-CAHPS is a promising survey to elicit hemodialysis patients’ experience that has good psychometric properties and provides a standardized tool for assessing age, gender, race or education disparity.

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7aeabe5de5c202b47075f78e73e090a8Test
https://europepmc.org/articles/PMC6810787Test/

المؤلفون: Dorian Schatell, Devika Nair, John D. Peipert, Ron D. Hays, Kristi Klicko

المصدر: Peipert, John D; Nair, Devika; Klicko, Kristi; Schatell, Dorian R; & Hays, Ron D. (2019). Kidney Disease Quality of Life 36-Item Short Form Survey (KDQOL-36) Normative Values for the United States Dialysis Population and New Single Summary Score.. Journal of the American Society of Nephrology : JASN, 30(4), 654-663. doi: 10.1681/asn.2018100994. UCLA: Retrieved from: http://www.escholarship.org/uc/item/8nw3g99bTest
Journal of the American Society of Nephrology : JASN, vol 30, iss 4

مصطلحات موضوعية: Male, medicine.medical_treatment, 030232 urology & nephrology, outcomes, Kidney Failure, 0302 clinical medicine, Quality of life, 030212 general & internal medicine, Chronic, African Americans, education.field_of_study, Hispanic or Latino, General Medicine, Middle Aged, Urology & Nephrology, Confirmatory factor analysis, Nephrology, Female, Metric (unit), Hispanic Americans, Patient self-assessment, Clinical psychology, Adult, Adolescent, Psychometrics, European Continental Ancestry Group, Population, Clinical Sciences, White People, Structural equation modeling, Young Adult, 03 medical and health sciences, Clinical Research, Renal Dialysis, Up Front Matters, medicine, Humans, Patient Reported Outcome Measures, education, Dialysis, Aged, Asian, business.industry, medicine.disease, United States, Black or African American, Asian Americans, quality of life, Quality of Life, Kidney Failure, Chronic, Normative, dialysis, business, Kidney disease

الوصف: BACKGROUND: The Kidney Disease Quality of Life 36-item short form survey (KDQOL-36) is a widely used, patient-reported outcome measure for patients on dialysis. Efforts to aid interpretation are needed. METHODS: We used a sample of 58,851 dialysis patients participating in the Medical Education Institute (MEI) KDQOL Complete program, and 443,947 patients from the US Renal Data System (USRDS) to develop the KDQOL-36 Summary Score (KSS) for the kidney-targeted KDQOL-36 scales (Burdens of Kidney Disease [BKD], Symptoms and Problems of Kidney Disease [SPKD], and Effects of Kidney Disease [EKD]). We also used the MEI and USRDS data to calculate normative values for the Short Form-12 Health Survey’s Physical Component Summary (PCS) and Mental Component Summary (MCS), and the KDQOL-36’s BKD, SPKD, and EKD scales for the United States dialysis population. We used confirmatory factor analysis (CFA) models for KDQOL-36 kidney-targeted items, evaluated model fit with the comparative fit index (CFI; >0.95 indicates good fit) and root-mean-squared error of approximation (RMSEA

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::406397045d9c9c781ba243ae6073f295Test
http://www.escholarship.org/uc/item/8nw3g99bTest

المؤلفون: Amy D. Waterman, Lizeth Ambriz, Amanda Faye Lipsey, Angelika Alem, Crystal Anderson, Bhanuja Dub, Brian S. Mittman, Neha Bijjala, Shayna L. Henry, Jennifer L. Beaumont, John D. Peipert

المصدر: BMC nephrology, vol 20, iss 1
BMC Nephrology
BMC Nephrology, Vol 20, Iss 1, Pp 1-12 (2019)

مصطلحات موضوعية: Nephrology, Health Knowledge, Attitudes, Practice, Kidney Disease, medicine.medical_treatment, Hispanics, 030232 urology & nephrology, 030204 cardiovascular system & hematology, lcsh:RC870-923, law.invention, Kidney transplantation, Study Protocol, Transtheoretical model, 0302 clinical medicine, Randomized controlled trial, law, Models, Educational, Renal Insufficiency, Racial disparities, Chronic, Randomized Controlled Trials as Topic, education.field_of_study, Practice, attitudes, Living donor, Educational Technology, Patient education, Health Services, Urology & Nephrology, Tissue Donors, 3. Good health, medicine.medical_specialty, Models, Educational, Tissue and Organ Procurement, Population, Clinical Trials and Supportive Activities, Clinical Sciences, Renal and urogenital, African-Americans, 03 medical and health sciences, Patient Education as Topic, Clinical Research, Internal medicine, Behavioral and Social Science, medicine, Health knowledge, Humans, Renal Insufficiency, Chronic, Health knowledge/attitudes, education, Dialysis, Transplantation, business.industry, Patient Acuity, Organ Transplantation, medicine.disease, lcsh:Diseases of the genitourinary system. Urology, Kidney Transplantation, Quality Education, Good Health and Well Being, Family medicine, business, Kidney disease

الوصف: Five-year survival on dialysis is only 40%, compared to 74% with a deceased donor kidney transplant (DDKT) and 87% with a living donor kidney transplant (LDKT). An American Society of Transplantation (AST) Consensus Conference recommended that patients with chronic kidney disease (CKD) Stages 3–5 have the opportunity to learn about and decide which treatment option is right for them, particularly about LDKT. However, early education about LDKT and DDKT outside of transplant centers is inconsistent and often poor, with patients in CKD 3 and 4 and ethnic/racial minorities even less likely to receive it. A new randomized control trial (RCT), in partnership with Kaiser Permanente Southern California (KPSC), will assess knowledge gaps and the effectiveness of a supplementary video-guided, print and technology-based education intervention for English- and Spanish-speaking patients in CKD Stages 3, 4, and 5 to increase LDKT knowledge and decision-making. To date, no published LDKT educational interventions have studied such a large and diverse CKD population. In this RCT, 1200 English and Spanish-speaking CKD Stage 3–5 patients will be randomly assigned to one of two education conditions: ET@Home or KPSC standard of care education. Randomization will be stratified by CKD stage and primary language spoken. Those in the ET@Home condition will receive brochures, postcards, DVDs, and text messages delivering educational content in modules over a six-month period. Baseline data collection will measure demographics, transplant derailers, and the amount of previous CKD and transplant education they have received. Changes in CKD and transplant knowledge, ability to make an informed decision about transplant, and self-efficacy to pursue LDKT will be captured with surveys administered at baseline and at six months. At the conclusion of the study, investigators will understand key knowledge gaps for patients along the CKD continuum and between patients who speak different languages and have assessed the effectiveness of both English- and Spanish-language supplementary education in increasing KPSC patients’ knowledge about the opportunities for and risks and benefits of LDKT. We hope this program will reduce disparities in access to transplant. ClinicalTrials.gov Identifier: NCT03389932; date registered: 12/26/2017.

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::187fc749e4a490be5a0876358f3e9560Test
https://escholarship.org/uc/item/3xf3s22kTest