Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency
| العنوان: | Study to assess the knowledge of caretakers regarding corticosteroid therapy in children with congenital adrenal hyperplasia – 21 hydroxylase deficiency |
|---|---|
| المؤلفون: | Saji James, Vasantha Singarayan, Anita David, Vageesh Ayyar |
| المصدر: | Journal of Family Medicine and Primary Care Journal of Family Medicine and Primary Care, Vol 9, Iss 6, Pp 2814-2817 (2020) |
| بيانات النشر: | Wolters Kluwer - Medknow, 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Pediatrics, medicine.medical_specialty, lcsh:Medicine, 030209 endocrinology & metabolism, 03 medical and health sciences, 0302 clinical medicine, 21 hydroxylase deficiency, parenting, Medicine, congenital adrenal hyperplasia, Congenital adrenal hyperplasia, 030212 general & internal medicine, steroid therapy, Acute stress, biology, business.industry, lcsh:R, 21-Hydroxylase, medicine.disease, Excess androgen, Corticosteroid therapy, Treatment Schedule, Structured interview, Normal growth, biology.protein, Original Article, business |
| الوصف: | Background The primary aim of treating congenital adrenal hyperplasia (CAH) due to 21 hydroxylase deficiency is to replace the deficient glucocorticoids and mineralocorticoids, to minimize the excess androgen production and to facilitate normal growth. Children with CAH require daily treatment lifelong and increased dosage plan during acute stress, in order to obtain the benefit of optimal outcome from the ongoing treatment schedule. This emphasizes the need for the parents of affected children to be empowered with adequate knowledge regarding such lifesaving therapy. Aims & objectives This study was aimed to assess their knowledge regarding corticosteroid therapy. Materials and methods. Caretakers of children with CAH were recruited by using purposive sampling technique. Data was collected by using structured interview technique. Results It was observed that only 10% of study group had adequate knowledge about therapy and the majority of them were from rural areas, lacking in awareness of essential steps of management. Conclusion It was concluded that these caretakers need to be given appropriately planned education regarding corticosteroids, drug actions, and the need for enhanced steroid dosage during stress situations. They should also be given relevant instructional materials to read for improving their knowledge about their child's disorder. |
| اللغة: | English |
| تدمد: | 2278-7135 2249-4863 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::875fc384b256b8e112c065893e7148caTest http://europepmc.org/articles/PMC7491816Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....875fc384b256b8e112c065893e7148ca |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 22787135 22494863 |
|---|