دورية أكاديمية
Relevant non‐pharmacologic topics for clinical research in rheumatic musculoskeletal diseases: The patient perspective
| العنوان: | Relevant non‐pharmacologic topics for clinical research in rheumatic musculoskeletal diseases: The patient perspective |
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| المؤلفون: | Ingegnoli, Francesca, Schioppo, Tommaso, Ubiali, Tania, Bollati, Valentina, Ostuzzi, Silvia, Buoli, Massimiliano, Caporali, Roberto |
| المساهمون: | F. Ingegnoli, T. Schioppo, T. Ubiali, V. Bollati, S. Ostuzzi, M. Buoli, R. Caporali |
| بيانات النشر: | Wiley Blackwell Publishing |
| سنة النشر: | 2020 |
| المجموعة: | The University of Milan: Archivio Istituzionale della Ricerca (AIR) |
| مصطلحات موضوعية: | diet, emotional well-being, environment, participation, patient perspective, patient-physician relation, research, rheumatic musculoskeletal disease, work ability, Settore MED/16 - Reumatologia |
| الوصف: | Objective: The research approach on rheumatic musculoskeletal diseases (RMDs) is challenging and patient involvement is an emerging issue to obtain relevant informa-tion to research. Despite growing interest in non-pharmacologic aspects of clinical research in RMDs, the patients’ perspectives are currently poorly explored.Methods: A cross-sectional no-profit online survey was devised to identify and rank the priorities for clinical research in RMDs according to patients’ perspectives. Patients were asked to rate the following topics: food/nutrition, air pollution, smok-ing, work activity, social participation, physical activity, emotional well-being/stress, alternative medicine, and patient-physician relationship. The survey was dissemi-nated by ALOMAR (Lombard Association for Rheumatic Diseases) between June and October 2019.Results: Two hundred RMD patients completed the survey. The topic most rated 188 (94%) was the doctor-patient relationship, considered very or extremely important. Other topics rated as follows: psychological well-being 185 (92.5%), physical activity 155 (77.5%), nutrition, eating habits 150 (75%), alternative therapies 144 (72%), work activity 144 (72%), environmental pollution 134 (67%), social life 121 (60.5%) and cigarette smoke 119 (59.5%). The topics considered relevant were perceived to be able to influence disease symptoms. Environmental pollution and smoking were con-sidered the most important for RMD prevention in 43.3% and 48.7% respectively.Conclusions: This survey highlights the relevance of several unmet needs and indi-cates that active patient involvement is essential to design successful translational studies and improve clinical outcomes. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| العلاقة: | info:eu-repo/semantics/altIdentifier/pmid/32757261; info:eu-repo/semantics/altIdentifier/wos/WOS:000555595500001; numberofpages:6; journal:INTERNATIONAL JOURNAL OF RHEUMATIC DISEASES; http://hdl.handle.net/2434/757473Test; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-85088216186 |
| DOI: | 10.1111/1756-185X.13932 |
| الإتاحة: | https://doi.org/10.1111/1756-185X.13932Test http://hdl.handle.net/2434/757473Test |
| حقوق: | info:eu-repo/semantics/closedAccess |
| رقم الانضمام: | edsbas.8CC14DAC |
| قاعدة البيانات: | BASE |
| DOI: | 10.1111/1756-185X.13932 |
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