Snap shot: Achieving better care through a one-page personal health profile
| العنوان: | Snap shot: Achieving better care through a one-page personal health profile |
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| المؤلفون: | Sheri Price, Jordan Sheriko, Cathy Walls, Jillian H. Filliter, Emma Vanderlee, Erin McAfee, Krista Sweet, Amanda Bye, Patrick J. McGrath, Megan Aston, Joelle Monaghan |
| المصدر: | Journal of Intellectual Disabilities. 25:230-241 |
| بيانات النشر: | SAGE Publications, 2019. |
| سنة النشر: | 2019 |
| مصطلحات موضوعية: | Parents, 030506 rehabilitation, Health professionals, Communication, education, Health Professions (miscellaneous), Focus group, 03 medical and health sciences, Psychiatry and Mental health, 0302 clinical medicine, Nursing, Intellectual Disability, 030225 pediatrics, Humans, Family, Personal health, Medical diagnosis, Child, 0305 other medical science, Psychology, Qualitative Research, Qualitative research |
| الوصف: | Children with intellectual disabilities (IDs) can have complex health conditions that require intense and ongoing care management by multiple healthcare professionals (HCPs). Families often experience frustrations and challenges sharing necessary information about their children’s unique emotional and communicative needs with HCPs. In turn, these needs are often poorly documented and shared with other HCPs. This contributes to compromised care and frustrations for families and HCPs. We conducted a qualitative study using focus groups to examine how 10 parents and 3 HCPs experienced provision of care for children with ID, as well as their suggestions for developing a one-page personal health profile (PHP) to improve communication. Parents suggested including behavioural descriptors rather than diagnoses. All participants believed a one-page PHP that was child and parent led would be very helpful and would improve communication between HCPs, parents and children leading to effective and supportive care. |
| تدمد: | 1744-6309 1744-6295 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::629917aad0ccb0d17fa87e694014dfefTest https://doi.org/10.1177/1744629519873503Test |
| حقوق: | CLOSED |
| رقم الانضمام: | edsair.doi.dedup.....629917aad0ccb0d17fa87e694014dfef |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 17446309 17446295 |
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