دورية أكاديمية
Global Emerging HEmophilia Panel (GEHEP): A Multinational Collaboration for Advancing Hemophilia Research and Treatment
| العنوان: | Global Emerging HEmophilia Panel (GEHEP): A Multinational Collaboration for Advancing Hemophilia Research and Treatment |
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| المؤلفون: | James, Paula, Kasthuri, Raj, Kruse-Jarres, Rebecca, Soni, Amit, Kulkarni, Roshni, Bidlingmaier, Christoph, Chitlur, Meera, Fogarty, Patrick, Gomez, Keith, Holm, Pål Andrè, Mahlangu, Johnny, Mancuso, Maria Elisa, Mingot-Castellano, Maria Eva, Dolan, Gerry |
| المصدر: | Transfusion Medicine and Hemotherapy ; volume 40, issue 5, page 352-355 ; ISSN 1660-3796 1660-3818 |
| بيانات النشر: | S. Karger AG |
| سنة النشر: | 2013 |
| مصطلحات موضوعية: | Hematology, Immunology and Allergy |
| الوصف: | GEHEP, established in 2009, is an independent, multi-institutional, international consortium of early career hematology specialists in the field of hemophilia and other inherited bleeding disorders. The main objective of the group, whose members practice at institutions in North America, Europe, and South Africa, is to advance hemophilia care by providing a forum for mentored collaborative research, developing programs for improving clinical care, and promoting academic career development of junior faculty. GEHEP members collect and document anonymized data on intra- and interinstitutional differences in patient populations, diagnosis, and treatment in the field of hemophilia and other bleeding disorders. To facilitate sharing of aggregated data among GEHEP members, a global protocol was developed and approved by most members' local institutional review board. Current GEHEP research initiatives are varied, encompassing work in pediatric and adult patients. GEHEP members have presented research at international meetings on the initiation of prophylaxis in children, use of immune tolerance induction in adults, and prevalence of acute coronary syndromes in older patients with hemophilia. The main goal of the continuing work of GEHEP is to advance the care of patients with hemophilia worldwide. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| DOI: | 10.1159/000354843 |
| الإتاحة: | https://doi.org/10.1159/000354843Test https://www.karger.com/Article/Pdf/354843Test |
| حقوق: | https://www.karger.com/Services/SiteLicensesTest ; https://www.karger.com/Services/SiteLicensesTest |
| رقم الانضمام: | edsbas.536FD6E2 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1159/000354843 |
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