دورية أكاديمية
How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
العنوان: | How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation |
---|---|
المؤلفون: | Wilson, Patricia, Mathie, Elspeth, Poland, Fiona, Keenan, Julia, Howe, Amanda, Munday, Diane, Kendall, Sally, Cowe, Marion, Staniszewska, Sophie, Goodman, Claire |
المساهمون: | Centre for Research in Public Health and Community Care, Older People's Health and Complex Conditions, Patient Experience and Public Involvement, School of Health and Social Work |
بيانات النشر: | Royal Society of Medicine Press Ltd. SAGE |
سنة النشر: | 2018 |
مصطلحات موضوعية: | Health research, Patient and public involvement and engagement, Realist evaluation, Health Policy, Public Health, Environmental and Occupational Health, droit, scipo |
الوصف: | This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0Test/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sageTest). Disclaimers This paper presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. ; Objectives: To explore how embedded patient and public involvement is within mainstream health research following two decades of policy-driven work to underpin health research with patient and public involvement in England. Methods: Realist evaluation using Normalization Process Theory as a programme theory to understand what enabled patient and public involvement to be embedded as normal practice. Data were collected through a national scoping and survey, and qualitative methods to track patient and public involvement processes and impact over time within 22 nationally funded research projects. Results: In research studies that were able to create reciprocal working relationships and to embed patient and public involvement this was contingent on: the purpose of patient and public involvement being clear; public contributors reflecting research end-beneficiaries; researchers understanding the value of patient and public involvement; patient and public involvement opportunities being provided throughout the research and ongoing evaluation of . |
نوع الوثيقة: | article in journal/newspaper |
اللغة: | English |
العلاقة: | http://hdl.handle.net/2299/20088Test |
الإتاحة: | http://hdl.handle.net/2299/20088Test |
حقوق: | undefined |
رقم الانضمام: | edsbas.EBAB1A7A |
قاعدة البيانات: | BASE |
الوصف غير متاح. |