Development and Validation of the Self-care in Motor Neuron Disease Index
| العنوان: | Development and Validation of the Self-care in Motor Neuron Disease Index |
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| المؤلفون: | Maura Lusignani, Andrea Lizio, Marco Lucchini, Valeria A. Sansone, Barbara Bassola |
| المصدر: | Journal of Neuroscience Nursing. 51:325-330 |
| بيانات النشر: | Ovid Technologies (Wolters Kluwer Health), 2019. |
| سنة النشر: | 2019 |
| مصطلحات موضوعية: | Male, medicine.medical_specialty, Index (economics), Psychometrics, medicine.medical_treatment, Disease, 030204 cardiovascular system & hematology, 03 medical and health sciences, 0302 clinical medicine, Surveys and Questionnaires, Health care, Content validity, medicine, Humans, Motor Neuron Disease, Aged, Mechanical ventilation, Endocrine and Autonomic Systems, business.industry, Reproducibility of Results, Respiratory infection, Dysphagia, Test (assessment), Hospitalization, Self Care, Medical–Surgical Nursing, Chronic Disease, Physical therapy, Female, Surgery, Neurology (clinical), medicine.symptom, business, 030217 neurology & neurosurgery |
| الوصف: | OBJECTIVE The aim of this study was to develop and psychometrically test the properties of the Self-care in Motor Neuron Disease (SCMND) Index. METHODS This instrument development and validation study was conducted in 3 phases. The first is to identify self-care behaviors in people with motor neuron disease (MND), and the second is to evaluate the content validity of the SCMND Index. Then, between March 2017 and March 2018, the tool was administered to 107 people with MND for psychometric tests. RESULTS The SCMND Index was developed based on the middle-range theory of self-care of chronic illness, including 15 self-care behaviors related to respiration, nutrition, mobility, medication, medical visits, and complication management. Content validity was excellent. Data analysis suggests that the instrument has a good internal consistency in all 3 domains and excellent reproducibility. Increased self-care behaviors' median values were associated with mechanical ventilation, cough assistance, and dysphagia. Domains differed significantly based on access (maintenance), hospital admissions (monitoring and management), and respiratory infection (management). CONCLUSIONS Self-care is a patient-centered outcome, and it is a key point of healthcare. Results suggest that the SCMND Index is useful for both clinicians and researchers to evaluate self-care in MND. |
| تدمد: | 1945-2810 0888-0395 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d38fa47cb70081c7a4ebba0bc87d91aaTest https://doi.org/10.1097/jnn.0000000000000473Test |
| رقم الانضمام: | edsair.doi.dedup.....d38fa47cb70081c7a4ebba0bc87d91aa |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 19452810 08880395 |
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