Psychological correlates of adherence to photoprotection in a rare disease: International survey of people with Xeroderma Pigmentosum
| العنوان: | Psychological correlates of adherence to photoprotection in a rare disease: International survey of people with Xeroderma Pigmentosum |
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| المؤلفون: | Alain Sarasin, Natalie Morrison-Bowen, Jessica Walburn, Robert Sarkany, Mark Berneburg, Sam Norton, Kirby Sainsbury, Vera Araujo-Soares, John Weinman, Lesley Foster, Martha Canfield, Falko F. Sniehotta |
| المصدر: | British Journal of Health Psychology Walburn, J, Canfield, M, Norton, S, Sainsbury, K, Araujo-Soares, V, Foster, L, Berneburg, M, Sarasin, A, Morrison-Bowen, N, Sniehotta, F, Sarkany, R & Weinman, J 2019, ' Psychological correlates of adherence to photoprotection in a rare disease : International survey of people with Xeroderma Pigmentosum ', British Journal of Health Psychology, vol. 24, no. 3, AID-BJHP12375, pp. 668-686 . https://doi.org/10.1111/bjhp.12375Test |
| بيانات النشر: | John Wiley and Sons Inc., 2019. |
| سنة النشر: | 2019 |
| مصطلحات موضوعية: | Adult, Male, Xeroderma pigmentosum, Skin Neoplasms, Ultraviolet Rays, Population, Health Behavior, Psychological intervention, 03 medical and health sciences, Social support, 0302 clinical medicine, Radiation Protection, Rare Diseases, Germany, Surveys and Questionnaires, Medicine, Humans, 030212 general & internal medicine, adherence, education, Applied Psychology, illness perceptions, education.field_of_study, Xeroderma Pigmentosum, 030505 public health, business.industry, Incidence, treatment beliefs, General Medicine, Original Articles, medicine.disease, Self Efficacy, United Kingdom, Risk perception, Europe, Distress, photoprotection, Cross-Sectional Studies, Photoprotection, Original Article, Female, Skin cancer, 0305 other medical science, business, Clinical psychology |
| الوصف: | OBJECTIVES Xeroderma pigmentosum (XP) is an extremely rare genetic disorder (approximately 100 known cases in the United Kingdom), where DNA damage caused by ultraviolet radiation in daylight cannot be repaired. Adherence to photoprotection is essential to prevent skin cancer. We investigated psychological correlates of photoprotection in the XP population of Western Europe and the United States. DESIGN Cross-sectional survey of adults with XP and caregivers of patients |
| وصف الملف: | application/pdf |
| اللغة: | English |
| تدمد: | 2044-8287 1359-107X |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f96bd35fed2c2d437a22495be1d31557Test http://europepmc.org/articles/PMC6772157Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....f96bd35fed2c2d437a22495be1d31557 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 20448287 1359107X |
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