Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study
| العنوان: | Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study |
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| المؤلفون: | Jane S. Hankins, Jason R. Hodges, Audrey Cole, Jerlym S. Porter, Anjelica C. Saulsberry |
| المصدر: | JMIR Pediatrics and Parenting JMIR Pediatrics and Parenting, Vol 3, Iss 1, p e15093 (2020) |
| بيانات النشر: | JMIR Publications, 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Gerontology, media_common.quotation_subject, Biomedical Engineering, Health Informatics, Disease, Adult care, Health outcomes, 03 medical and health sciences, 0302 clinical medicine, Promotion (rank), sickle cell anemia, 030225 pediatrics, Survivorship curve, medicine, eHealth, media_common, Original Paper, business.industry, lcsh:RJ1-570, lcsh:Pediatrics, Retrospective cohort study, medicine.disease, Sickle cell anemia, Computer Science Applications, transition to adult care, 030220 oncology & carcinogenesis, Pediatrics, Perinatology and Child Health, business |
| الوصف: | Background Advancements in treatment have contributed to increased survivorship among children with sickle cell disease (SCD). Increased transition readiness, encompassing disease knowledge and self-management skills before transfer to adult care, is necessary to ensure optimal health outcomes. The Sickle Cell Transition E-Learning Program (STEP) is a public, Web-based, 6-module tool designed to increase transition readiness for youth with SCD. Objective The objective of our study was to investigate the participation rate of youth with SCD in STEP and its association with transition readiness. Methods This was a single-center, Institution Review Board–approved, retrospective cohort review. A total of 183 youths with SCD, aged between 12 and 15 years, were offered STEP as an adjunct to in-clinic disease education sessions. Participation rate (number of patients who used at least one STEP module divided by those approached) was calculated. The association among the number of STEP modules completed, disease knowledge, and self-management was explored. Results Overall, 53 of the 183 approached adolescents completed at least one STEP module, yielding a participation rate in STEP of 29.0%. Of the 53 participants, 37 and 39 adolescents had disease knowledge and self-management confidence rating available, respectively. A positive correlation (r=0.47) was found between the number of STEP modules completed and disease knowledge scores (P=.003). No association was found between the number of modules completed and self-management confidence ratings. Disease knowledge scores were significantly higher among participants who completed ≥3 STEP modules compared with those who completed Conclusions Improvement in disease knowledge in adolescence is critical to ensure the youth’s ability to self-care during the period of transition to adult care. Despite low participation, the cumulative exposure to the STEP program suggested greater promotion of disease knowledge among adolescents with SCD before transfer to adult care. |
| اللغة: | English |
| تدمد: | 2561-6722 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::faf48b5314b4e42b11e2aab9b6e36a4dTest http://europepmc.org/articles/PMC6996770Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....faf48b5314b4e42b11e2aab9b6e36a4d |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 25616722 |
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