دورية أكاديمية
Development and validation of an electronic daily control score for asthma (e-DASTHMA) : a real-world direct patient data study
| العنوان: | Development and validation of an electronic daily control score for asthma (e-DASTHMA) : a real-world direct patient data study |
|---|---|
| المؤلفون: | Sousa-Pinto, Bernardo, Jacome, Cristina, Pereira, Ana Margarida, Regateiro, Frederico S., Almeida, Rute, Czarlewski, Wienczyslawa, Kulus, Marek, Shamji, Mohamed H., Boulet, Louis-Philippe, Bonini, Matteo, Brussino, Luisa, Canonica, G. Walter, Cruz, Alvaro A., Gemicioglu, Bilun, Haahtela, Tari, Kupczyk, Maciej, Larenas-Linnemann, Desiree, Kvedariene, Violeta, Louis, Renaud, Niedoszytko, Marek, Pham-Thi, Nhan, Puggioni, Francesca, Romantowski, Jan, Sastre, Joaquin, Scichilone, Nicola, Taborda-Barata, Luis, Teresa Ventura, Maria, JoseVieira, Rafael, Agache, Ioana, Bedbrook, Anna, Bergmann, Karl C., Amaral, Rita, Azevedo, Luis Filipe, Bosnic-Anticevich, Sinthia, Buhl, Roland, Cecchi, Lorenzo, Charpin, Denis, Chaves Loureiro, Claudia, de Blay, Frederic, Del Giacco, Stefano, Devillier, Philippe, Jassem, Ewa, Joos, Guy, Jutel, Marek, Klimek, Ludger, Kuna, Piotr, Laune, Daniel, Pech, Jorge Luna, Mäkelä, Mika, Morais-Almeida, Mario, Nadif, Rachel, Neffen, Hugo E., Ohta, Ken, Papadopoulos, Nikolaos G., Papi, Alberto, Petre, Benoit, Pfaar, Oliver, Yeverino, Daniela Rivero, Cordeiro, Carlos Robalo, Roche, Nicolas, Sa-Sousa, Ana, Samolinski, Boleslaw, Sheikh, Aziz, Ulrik, Charlotte Suppli, Usmani, Omar S., Valiulis, Arunas, Vandenplas, Olivier, Vieira-Marques, Pedro, Yorgancioglu, Arzu, Zuberbier, Torsten, Anto, Josep M., Fonseca, Joo A., Bousquet, Jean, Brusselle, G. |
| المساهمون: | HUS Inflammation Center, Department of Dermatology, Allergology and Venereology, Clinicum |
| بيانات النشر: | Elsevier Ltd. |
| سنة النشر: | 2023 |
| المجموعة: | Helsingfors Universitet: HELDA – Helsingin yliopiston digitaalinen arkisto |
| مصطلحات موضوعية: | Responsiveness, Questionnaire, Reliability, Instruments, Rhinitis, 3121 General medicine, internal medicine and other clinical medicine, 113 Computer and information sciences |
| الوصف: | Background Validated questionnaires are used to assess asthma control over the past 1-4 weeks from reporting. However, they do not adequately capture asthma control in patients with fluctuating symptoms. Using the Mobile Airways Sentinel Network for airway diseases (MASK-air) app, we developed and validated an electronic daily asthma control score (e-DASTHMA).Methods We used MASK-air data (freely available to users in 27 countries) to develop and assess different daily control scores for asthma. Data-driven control scores were developed based on asthma symptoms reported by a visual analogue scale (VAS) and self-reported asthma medication use. We included the daily monitoring data from all MASK-air users aged 16-90 years (or older than 13 years to 90 years in countries with a lower age of digital consent) who had used the app in at least 3 different calendar months and had reported at least 1 day of asthma medication use. For each score, we assessed construct validity, test-retest reliability, responsiveness, and accuracy. We used VASs on dyspnoea and work disturbance, EQ-5D-VAS, Control of Allergic Rhinitis and Asthma Test (CARAT), CARAT asthma, and Work Productivity and Activity Impairment: Allergy Specific (WPAI:AS) questionnaires as comparators. We performed an internal validation using MASK-air data from Jan 1 to Oct 12, 2022, and an external validation using a cohort of patients with physician-diagnosed asthma (the INSPIRERS cohort) who had had their diagnosis and control (Global Initiative for Asthma [GINA] classification) of asthma ascertained by a physician.Findings We studied 135 635 days of MASK-air data from 1662 users from May 21, 2015, to Dec 31, 2021. The scores were strongly correlated with VAS dyspnoea (Spearman correlation coefficient range 0.68-0.82) and moderately correlated with work comparators and quality-of-life-related comparators (for WPAI:AS work, we observed Spearman correlation coefficients of 0.59-0.68). They also displayed high test-retest reliability (intraclass correlation ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| العلاقة: | MASK-air has been supported by EU grants (from the Impact of air Pollution on Asthma and Rhinitis project of the European Institute of Innovation and Technology Health; Structural and Development Funds, Region Languedoc Roussillon, and Provence-Alpes-Cote d'Azur; Twinning, European Innovation Partnership on Active and Healthy Ageing, DG Sante and DG Connect; H2020 and Horizon Europe) and educational grants from Mylan-Viatris, Allergologisk Laboratorium Kobenhavn, GlaxoSmithKline, Novartis, Stallergenes, and Uriach.; Sousa-Pinto , B , Jacome , C , Pereira , A M , Regateiro , F S , Almeida , R , Czarlewski , W , Kulus , M , Shamji , M H , Boulet , L-P , Bonini , M , Brussino , L , Canonica , G W , Cruz , A A , Gemicioglu , B , Haahtela , T , Kupczyk , M , Larenas-Linnemann , D , Kvedariene , V , Louis , R , Niedoszytko , M , Pham-Thi , N , Puggioni , F , Romantowski , J , Sastre , J , Scichilone , N , Taborda-Barata , L , Teresa Ventura , M , JoseVieira , R , Agache , I , Bedbrook , A , Bergmann , K C , Amaral , R , Azevedo , L F , Bosnic-Anticevich , S , Buhl , R , Cecchi , L , Charpin , D , Chaves Loureiro , C , de Blay , F , Del Giacco , S , Devillier , P , Jassem , E , Joos , G , Jutel , M , Klimek , L , Kuna , P , Laune , D , Pech , J L , Mäkelä , M , Morais-Almeida , M , Nadif , R , Neffen , H E , Ohta , K , Papadopoulos , N G , Papi , A , Petre , B , Pfaar , O , Yeverino , D R , Cordeiro , C R , Roche , N , Sa-Sousa , A , Samolinski , B , Sheikh , A , Ulrik , C S , Usmani , O S , Valiulis , A , Vandenplas , O , Vieira-Marques , P , Yorgancioglu , A , Zuberbier , T , Anto , J M , Fonseca , J A , Bousquet , J & Brusselle , G 2023 , ' Development and validation of an electronic daily control score for asthma (e-DASTHMA) : a real-world direct patient data study ' , Lancet digital health , vol. 5 , no. 4 , pp. E227-E238 . https://doi.org/10.1016/S2589-7500Test(23)00020-1; ORCID: /0000-0002-2933-3111/work/140315598; 58cb51cf-45fc-4e59-8386-48332c1065bd; http://hdl.handle.net/10138/563923Test; 001021453100001 |
| الإتاحة: | http://hdl.handle.net/10138/563923Test |
| حقوق: | cc_by_nc_nd ; openAccess ; info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.33E6EE7 |
| قاعدة البيانات: | BASE |
| الوصف غير متاح. |