دورية أكاديمية
Dementia priority setting partnership with the James Lind Alliance: using patient and public involvement and the evidence base to inform the research agenda.
| العنوان: | Dementia priority setting partnership with the James Lind Alliance: using patient and public involvement and the evidence base to inform the research agenda. |
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| المؤلفون: | Kelly, Sarah, Lafortune, Louise, Hart, Nicola, Cowan, Katherine, Fenton, Mark, Brayne, Carol, Dementia Priority Setting Partnership |
| بيانات النشر: | //dx.doi.org/10.1093/ageing/afv143 Age Ageing Oxford University Press (OUP) |
| سنة النشر: | 2015 |
| المجموعة: | Apollo - University of Cambridge Repository |
| مصطلحات موضوعية: | James Lind Alliance, PPI, care, carer, dementia, diagnosis, older people, patient and public involvement, prevention, priority setting, public health, survey, treatment, Aged, Biomedical Research, Education, Health Priorities, Humans, Surveys and Questionnaires |
| الوصف: | BACKGROUND: The James Lind Alliance (JLA) created an approach to elicit the views of those under-represented in research priority exercises. Building on this, the JLA Dementia Priority Setting Partnership was set up as an independent and evidence-based project to identify and prioritise unanswered questions ('uncertainties') about prevention, diagnosis, treatment and care relating to dementia. METHODS: A survey was widely disseminated to stakeholders with an interest in the needs of the older population. Thematic analysis was used to identify themes from the large amount of questions collected from which research questions were developed using PICO framework (Population, Intervention, Comparator, Outcome). Each question was checked against an extensive evidence base of high-quality systematic reviews to verify whether they were true uncertainties. FINDINGS: One thousand five hundred and sixty-three questionnaires were received, from people with dementia, carers/relatives, and health and care professionals; 85 uncertainties were identified from other sources. Questions were refined and formatted iteratively into 146 unique uncertainties. An interim prioritisation process involving diverse organisations identified the top 25 ranked questions. At a final face-to-face prioritisation workshop, 18 people representing the above constituencies arrived by consensus at the top 10 priority questions. The impact of patient and public involvement on the priorities is discussed. INTERPRETATION: The long (146 questions) and top 10 lists of dementia research priorities provide a focus for researchers, funders and commissioners. They highlight a need for more research into care for people with dementia and carers, and a need for high-quality effectiveness trials in all aspects of dementia research. ; This work was funded by the Alzheimer’s Society, UK (grant number RG66301) and supported by the National Institute for Health Research Collaborations for Leadership in Applied Health Research and Care (CLAHRC) for Cambridgeshire and ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| العلاقة: | https://www.repository.cam.ac.uk/handle/1810/249261Test |
| الإتاحة: | https://www.repository.cam.ac.uk/handle/1810/249261Test |
| حقوق: | Attribution-NonCommercial-NoDerivatives 2.0 UK: England & Wales ; http://creativecommons.org/licenses/by-nc-nd/2.0/ukTest/ |
| رقم الانضمام: | edsbas.BA34C0F8 |
| قاعدة البيانات: | BASE |
| الوصف غير متاح. |