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1دورية أكاديمية
العنوان البديل: Value for Patient - results of a Value Based Healthcare workshop for the management of Lysosomal storage disease in 3 Italian regions. (English)
المؤلفون: Di Brino, Eugenio, Basile, Michele, Rumi, Filippo, Fortunato, Agostino, Antonini, Debora, Annicchiarico, Giuseppina, Limongelli, Giuseppe, Piccione, Maria, Filippelli, Amelia, Cicchetti, Americo
المصدر: Giornale Italiano di Health Technology Assessment Delivery; 12/23/2022, Vol. 15 Issue 5, p1-5, 5p
مصطلحات موضوعية: EVALUATION of medical care, HEALTH facilities, STAKEHOLDER analysis, LYSOSOMAL storage diseases, VALUE-based healthcare, THEMATIC analysis, RARE diseases, ADULT education workshops
مصطلحات جغرافية: ITALY
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2دورية أكاديمية
المؤلفون: Rita Gomes, Bebiana Sousa, Cláudia Falcão Reis, Anabela Bandeira, Lurdes Morais, Sandra Pereira, Sara Leite, Carmen Carvalho
المصدر: Journal of Pediatric and Neonatal Individualized Medicine, Vol 11, Iss 2, Pp e110227-e110227 (2022)
مصطلحات موضوعية: hydrops fetalis, lysosomal storage diseases, galactosialidosis, genetic counseling, neonatal care, palliative care, Medicine, Pediatrics, RJ1-570
وصف الملف: electronic resource
العلاقة: https://jpnim.com/index.php/jpnim/article/view/1380Test; https://doaj.org/toc/2281-0692Test
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3مؤتمر
المؤلفون: BECCARI, Tommaso, EMILIANI, Carla, ORLACCHIO, Aldo
المساهمون: Beccari, Tommaso, Emiliani, Carla, Orlacchio, Aldo
مصطلحات موضوعية: therapy lysosomal storage diseases
العلاقة: ispartofbook:Convegno-Progetto Finalizzato Biotecnologie C.N.R. 1998-2003; http://hdl.handle.net/11391/8851Test
الإتاحة: http://hdl.handle.net/11391/8851Test
