التفاصيل البيبلوغرافية
| العنوان: |
SELF-ASSESSMENT AND PARENTAL ASSESSMENT OF QUALITY OF LIFE CHILDREN WITH COELIAC DISEASE. |
| العنوان البديل: |
SAMOPROCENA I RODITELjSKA PROCENA KVALITETA ŽIVOTA DECE SA CELIJAČNOM BOLEŠĆU. (Bosnian) |
| المؤلفون: |
Stojanović-Jovanović, Biljana, Jovanović, Stevan, Vuletić, Biljana |
| المصدر: |
Timocki Medicinski Glasnik; 2019, Vol. 44 Issue 1, p15-21, 7p |
| مصطلحات موضوعية: |
SELF-evaluation, CELIAC disease, CHILDREN, AUTOIMMUNE diseases, GLUTEN |
| الملخص (بالإنجليزية): |
Background: Celiac disease is a chronic autoimmune disease characterized by intolerance to gluten. Treatment is carried out by strict lifelong gluten-free diet. Study aims to determine the quality of life children and adolescents with celiac disease who are on controlled diet, based on self-assessment and proxy assessment by their parents. Methods: The study included 116 children and adolescents diagnosed with celiac disease who are on a gluten free diet for at least one year and the same number of their parents. The children were aged 5 to 18 years. The patients and their parents were recruited at the Institute for Maternal and Childs healthcare of Serbia and the University Children's Hospital in Belgrade. The used instruments were a child and parent version of the Pediatric Quality of Life Inventory and the Screen for Child Anxiety Related Disorder. Results: The results in both versions of the questionnaires Pediatric Quality of Life Inventory showed similar values. (P> 0.05, all analyzes). There was a greater value of three scores in instrument named Screen for Child Anxiety Related Disorder (questionnaire for children) compared to (questionnaire for parents). These are the total score (p<0.05), separation anxiety (p<0.01) and the avoidance of the school (p<0.05). Conclusions: Disagreement between the children's selfassessment and parental assessment, justifies the importance of hearing subjective children's opinion on their quality of life as well as of their parents. This research has given us information about some of the critical points by which we can focus future studies. [ABSTRACT FROM AUTHOR] |
| Abstract (Bosnian): |
Celijakija je hronična autoimuna bolest koju karakteriše netolerancija na gluten. Lečenje se vrši striktnom doživotnom dijetom bez glutena. Cilj rada je da se utvrdi kvalitet života dece i adolescenata sa celijakijom koji su na kontrolisanoj ishrani, na osnovu samoprocene i procene od strane roditelja. Metode: Istraživanje je obuhvatilo 116 dece i adolescenata sa dijagnozom celijakije koji su na dijeti bez glutena najmanje godinu dana i isto toliko roditelja. Deca su uzrasta od 5 do 18 godina. Istaraživanje je realizovano u Institutu za zdravstvenu zaštitu majke i deteta Srbije i Univerzitetskoj dečjoj klinici u Beogradu. Korišćeni instrumenti su dečija i roditeljska verzija Pedijatrijskog upitnika za procenu kvaliteta života (PedsQL) i Upitnika za pretragu anksioznih poremećaja kod dece (SCARED). Rezultati: Rezultati u obe verzije Pedijatrijskog upitnika za procenu kvaliteta života pokazali su slične vrednosti (P> 0,05, sve analize). Rezultati procene prisustva anksioznih poremećaja na dečjoj verziji SCARED skale, pokazuju statistički značajno veću vrednost tri skora u odnosu na procenu njihovih roditelja. To su, Ukupan skor (p < 0,05), Socijalna anksioznost (p < 0,01) i Izbegavanje škole (p < 0,05). Zaključak: Život sa celijakijom i bezglutenskom ishranom može biti težak za decu i adolescente jer se osećaju da su drugačiji od svojih vršnjaka zbog čega redukuju druženja i izoluju se. U ovoj studiji došli smo do saznanja da deca i adolescenti sa celijakijom imaju značajno niži ukupni QOL i to kako na osnovu samoprocene tako i na osnovu roditeljske procene. [ABSTRACT FROM AUTHOR] |
|
Copyright of Timocki Medicinski Glasnik is the property of Timocki Medicinski Glasnik and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) |
| قاعدة البيانات: |
Complementary Index |
