التفاصيل البيبلوغرافية
| العنوان: |
Self-management for pulmonary fibrosis: Insights from people living with the disease and healthcare professionals. |
| المؤلفون: |
Lee, Joanna Y.T.1 (AUTHOR) joanna.lee2@monash.edu, Tikellis, Gabriella1 (AUTHOR) gabriella.tikellis@monash.edu, Glaspole, Ian2 (AUTHOR) i.glaspole@alfred.org.au, Khor, Yet H.2,3,4 (AUTHOR) yet.KHOR@austin.org.au, Symons, Karen2 (AUTHOR) K.Symons@alfred.org.au, Holland, Anne E.1,2,4,5 (AUTHOR) a.holland@alfred.org.au |
| المصدر: |
Patient Education & Counseling. Apr2022, Vol. 105 Issue 4, p956-964. 9p. |
| مصطلحات موضوعية: |
*MEDICAL personnel, *LUNG diseases, *GROUNDED theory, *HELP-seeking behavior, *THEMATIC analysis, *PULMONARY fibrosis treatment, *SOCIAL participation, *ARTHRITIS Impact Measurement Scales, *SOCIAL networks, *SELF-evaluation, *MEDICAL care, *QUALITATIVE research, *PSYCHOLOGICAL tests, *HEALTH self-care |
| مستخلص: |
Objective: People with pulmonary fibrosis (PF) consider self-management essential for maintaining health. This study aims to explore the needs and expectations of PF self-management from the patient and healthcare professionals (HCPs) perspectives.Methods: Semi-structured interviews were conducted with people with PF and HCPs. Purposive sampling was used to recruit participants. Thematic analysis was performed using the principles of grounded theory.Results: 18 individuals with PF and 15 HCPs were interviewed. Common self-management components reported included exercise, nutrition, maintaining healthy mind, avoiding infections, recognising deterioration and seeking help, managing symptoms and treatments, social support, and end-of-life planning. Both groups felt that effective self-management required individualised strategies, supports, and reliable information. People with PF identified access to personal health data and self-acceptance as part of self-management. HCPs highlighted the importance of accessible supports and managing patient expectations of disease course and treatments. Some HCPs concerned about missed detection of deterioration and suggested that self-management strategies for PF may differ to other lung diseases.Conclusion: This study identified components important for self-management in PF and provides a basis for designing a PF self-management package.Practice Implications: Self-management of PF can be facilitated with individualised support from HCPs and reliable information that is accessible. [ABSTRACT FROM AUTHOR] |
| قاعدة البيانات: |
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