دورية أكاديمية
Systematic Review on Family Functioning in Families of Children With Rare Diseases
| العنوان: | Systematic Review on Family Functioning in Families of Children With Rare Diseases |
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| المؤلفون: | Javiera Ortega, Natalia Vázquez, Florencia Assalone, Victoria Vázquez |
| المصدر: | Papeles del Psicólogo, Vol 45, Iss 1, Pp 39-47 (2024) |
| بيانات النشر: | Spanish Psychological Association (Colegio Oficial de Psicólogos), 2024. |
| سنة النشر: | 2024 |
| المجموعة: | LCC:Psychology |
| مصطلحات موضوعية: | Psychology, BF1-990 |
| الوصف: | The present study is a systematic review of the research on family functioning in families who have a child with a rare disease. The research was carried out using the databases Pubmed, EBSCO, and Google Scholar, following PRISMA guidelines. After applying the inclusion and exclusion criteria to the 460 articles initially found, a total of 49 articles made up the final sample. The following topics regarding family functioning were identified: impact of diagnosis; caregiver’s role and responsibilities; family functioning; impact on the emotional sphere; effects on marital and social life; coping strategies; family, and care and health system. The results of this study may provide justification for considering factors associated with family functioning when diagnosing a rare disease and deciding on treatment. |
| نوع الوثيقة: | article |
| وصف الملف: | electronic resource |
| اللغة: | English Spanish; Castilian |
| تدمد: | 1886-1415 0214-7823 |
| العلاقة: | https://www.papelesdelpsicologo.es/pii?pii=3031Test; https://doaj.org/toc/0214-7823Test; https://doaj.org/toc/1886-1415Test |
| DOI: | 10.23923/pap.psicol.3031 |
| الوصول الحر: | https://doaj.org/article/3b5c832b4225442d99de85d3a4627b68Test |
| رقم الانضمام: | edsdoj.3b5c832b4225442d99de85d3a4627b68 |
| قاعدة البيانات: | Directory of Open Access Journals |
| تدمد: | 18861415 02147823 |
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| DOI: | 10.23923/pap.psicol.3031 |