Management of a Rare Disease Population: A Model for Identifying a Patient Population With Tuberous Sclerosis Complex.

التفاصيل البيبلوغرافية
العنوان: Management of a Rare Disease Population: A Model for Identifying a Patient Population With Tuberous Sclerosis Complex.
المؤلفون: Johnson, Michael P., Johnson, Jonathan C., Engel-Nitz, Nicole M., Said, Qayyim, Prestifilippo, Judith, Gipson, Tanjala T., Wheless, James
المصدر: Managed Care; Aug2017, Vol. 26 Issue 8, p34-41, 8p
مصطلحات موضوعية: TUBEROUS sclerosis, SYMPTOMS
مستخلص: Tuberous sclerosis complex (TSC) is a rare genetic disorder affecting the brain and other vital organs with varying symptoms and severity among patients. This study developed and validated a risk model to identify patients with TSC using large databases of medical and pharmacy claims. [ABSTRACT FROM AUTHOR]
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قاعدة البيانات: Complementary Index