How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
| العنوان: | How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation |
|---|---|
| المؤلفون: | Fiona Poland, Marion Cowe, Patricia M. Wilson, Claire Goodman, Amanda Howe, Julia Keenan, Sophie Staniszewska, Diane Munday, Sally Kendall, Elspeth Mathie |
| المصدر: | Journal of Health Services Research & Policy |
| بيانات النشر: | SAGE Publications, 2018. |
| سنة النشر: | 2018 |
| مصطلحات موضوعية: | Advisory Committees, patient and public involvement and engagement, HM, State Medicine, 03 medical and health sciences, 0302 clinical medicine, Political science, Policy implementation, Humans, Mainstream, realist evaluation, 030212 general & internal medicine, Qualitative Research, Health policy, Original Research, business.industry, Research, 030503 health policy & services, Health Policy, Community Participation, Public Health, Environmental and Occupational Health, Public relations, Public involvement, England, health research, Work (electrical), Patient Participation, 0305 other medical science, business, RA |
| الوصف: | Objectives To explore how embedded patient and public involvement is within mainstream health research following two decades of policy-driven work to underpin health research with patient and public involvement in England. Methods Realist evaluation using Normalization Process Theory as a programme theory to understand what enabled patient and public involvement to be embedded as normal practice. Data were collected through a national scoping and survey, and qualitative methods to track patient and public involvement processes and impact over time within 22 nationally funded research projects. Results In research studies that were able to create reciprocal working relationships and to embed patient and public involvement this was contingent on: the purpose of patient and public involvement being clear; public contributors reflecting research end-beneficiaries; researchers understanding the value of patient and public involvement; patient and public involvement opportunities being provided throughout the research and ongoing evaluation of patient and public involvement. Key contested areas included: whether to measure patient and public involvement impact; seeking public contributors to maintain a balance between being research-aware and an outsider standpoint seen as ‘authentically’ lay; scaling-up patient and public involvement embedded within a research infrastructure rather than risk token presence and whether patient and public involvement can have a place within basic science. Conclusions While patient and public involvement can be well-integrated within all types of research, policy makers should take account of tensions that must be navigated in balancing moral and methodological imperatives. |
| وصف الملف: | application/pdf |
| تدمد: | 1758-1060 1355-8196 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bade4c0b38e36ab4869a3d1464cefa06Test https://doi.org/10.1177/1355819617750688Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....bade4c0b38e36ab4869a3d1464cefa06 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 17581060 13558196 |
|---|