المؤلفون: Shah, Ami J, Sokolic, Robert, Logan, Brent, Yin, Ziyan, Iyengar, Sumathi, Scalchunes, Chris, Mangurian, Christina, Albert, Michael, Cowan, Morton J

المصدر: Journal of Clinical Immunology. 39(8)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Immunology, Clinical Research, Behavioral and Social Science, Rare Diseases, Pediatric, Management of diseases and conditions, 7.1 Individual care needs, Adolescent, Bone Marrow Transplantation, Caregivers, Child, Child, Preschool, Decision Making, Genetic Diseases, X-Linked, Humans, Male, Parents, Patient Reported Outcome Measures, Quality of Life, Surveys and Questionnaires, Survivors, Thrombocytopenia, Wiskott-Aldrich Syndrome, Young Adult, Wiskott Aldrich Syndrome, X-linked thrombocytopenia, bone marrow transplant, quality of life, WiskottAldrich Syndrome

الوصول الحر: https://escholarship.org/uc/item/2qz4263cTest

المؤلفون: Hernandez-Trujillo, Vivian P, Scalchunes, Chris, Cunningham-Rundles, Charlotte, Ochs, Hans D, Bonilla, Francisco A, Paris, Ken, Yel, Leman, Sullivan, Kathleen E

المصدر: Journal of Clinical Immunology. 34(6)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Clinical Sciences, Autoimmune Disease, Pain Research, Chronic Pain, Pediatric, Clinical Research, Digestive Diseases, Arthritis, Management of diseases and conditions, 7.1 Individual care needs, Inflammatory and immune system, Adolescent, Adult, Agammaglobulinemia, Autoimmunity, Child, Child, Preschool, Crohn Disease, Data Collection, Female, Genetic Diseases, X-Linked, Humans, Infant, Inflammation, Inflammatory Bowel Diseases, Male, Middle Aged, Prevalence, Surveys and Questionnaires, United States, Young Adult, X-linked agammaglobulinemia, primary immunodeficiency, antibody deficiency, autoimmune, inflammation, Immunology

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/7x73d7dgTest

المؤلفون: Robert A. Sokolic, Michael H. Albert, Sumathi Iyengar, Morton J. Cowan, Ami J. Shah, Ziyan Yin, Brent R. Logan, Christopher Scalchunes, Christina Mangurian

المصدر: Journal of clinical immunology, vol 39, iss 8
J Clin Immunol

مصطلحات موضوعية: Parents, Male, Pediatrics, Wiskott Aldrich Syndrome, Wiskott–Aldrich syndrome, 7.1 Individual care needs, Quality of life, Surveys and Questionnaires, Immunology and Allergy, Medicine, Survivors, Child, Bone Marrow Transplantation, media_common, Pediatric, Genetic Diseases, X-Linked, X-linked thrombocytopenia, bone marrow transplant, humanities, Wiskott-Aldrich Syndrome, Caregivers, Genetic Diseases, Child, Preschool, Worry, Psychosocial, medicine.medical_specialty, Adolescent, media_common.quotation_subject, Decision Making, Immunology, Emotional functioning, X linked thrombocytopenia, Article, Young Adult, Rare Diseases, Immune system, Clinical Research, Behavioral and Social Science, WiskottAldrich Syndrome, Humans, Patient Reported Outcome Measures, Preschool, Social functioning, business.industry, X-Linked, medicine.disease, Thrombocytopenia, quality of life, Quality of Life, Management of diseases and conditions, business

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4dd9400421de0d3b662a59f66cdf699aTest
https://doi.org/10.1007/s10875-019-00689-2Test