دورية أكاديمية

Difference in reported pre-morbid health-related quality of life between ARDS survivors and their substitute decision makers.

التفاصيل البيبلوغرافية
العنوان: Difference in reported pre-morbid health-related quality of life between ARDS survivors and their substitute decision makers.
المؤلفون: Scales, Damon C., Tansey, Catherine M., Matte, Andrea, Herridge, Margaret S.
المصدر: Intensive Care Medicine; Nov2006, Vol. 32 Issue 11, p1826-1831, 6p, 3 Charts
مصطلحات موضوعية: ADULT respiratory distress syndrome, CRITICAL care medicine, QUALITY of life, HEALTH status indicators, DECISION making in nursing, ADULT respiratory distress syndrome treatment, FAMILIES & psychology, APACHE (Disease classification system), DECISION making, GUARDIAN & ward, HEALTH surveys, MULTIVARIATE analysis, REGRESSION analysis
مصطلحات جغرافية: CANADA
مستخلص: Context: Substitute decision makers may consider the pre-morbid health status of their critically ill loved one when making treatment decisions on her/his behalf.Objective: To compare estimates of pre-morbid health-related quality of life (HRQOL) obtained from survivors of the acute respiratory distress syndrome (ARDS) with those of their substitute decision makers using the Short Form 36 (SF-36).Design: Prospective cohort study.Setting: University-affiliated intensive care unit in Toronto, Canada.Patients: A sample of 46 ARDS survivors and their substitute decision makers drawn from a previously described cohort.Interventions: We measured agreement and differences between responses on the SF-36 obtained from survivors (at 3 months after ICU discharge) and their substitute decision makers (at study entry).Measurements and Results: Agreement was poor for all SF-36 components and differences reached significance in three domains. In multivariable analysis considering age; sex; Acute Physiology, Age, and Chronic Health Evaluation II score; and Lung Injury Score, only patient age was associated with the mean difference between estimates for the 'Mental Health' domain. On average, estimates of pre-morbid HRQOL obtained from substitute decision makers were lower than those obtained from survivors.Conclusion: Agreement between estimates of pre-morbid HRQOL provided by ARDS survivors and their substitute decision makers was poor. Compared with survivors, proxies tended to provide lower estimates of pre-morbid HRQOL. Substitute decision making for incapacitated patients is an imperfect process during which family members may underestimate their loved ones' own perception of pre-morbid health status. Alternatively, survivors of critical illness may overestimate pre-morbid HRQOL. [ABSTRACT FROM AUTHOR]
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قاعدة البيانات: Complementary Index
الوصف
تدمد:03424642
DOI:10.1007/s00134-006-0333-0