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1دورية أكاديمية
المؤلفون: Adrian Thorogood (Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine), Jason Bobe (Icahn School of Medicine at Mount Sinai), Barbara Prainsack (Department of Political Science, Faculty of Social Sciences, University of Vienna), Anna Middleton (Society and Ethics Research, Connecting Science, Wellcome Genome Campus), Erick Scott (Icahn Institute for Genomics & Multiscale Biology), Sarah Nelson (University of Washington), Manuel Corpas (Cambridge Precision Medicine), Natasha Bonhomme (Genetic Alliance), Laura Lyman Rodriguez (National Human Genome Research Institute, National Institutes of Health, USA), Madeleine Murtagh (Newcastle University), Erika Kleiderman (Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine)
المصدر: Human Genomics
مصطلحات موضوعية: Ethics, Law, Genomic data, Individual access, Whole genome sequencing, Direct-to-consumer, Privacy, Raw genomic data, Patient engagement, Citizen science
وصف الملف: application/pdf
العلاقة: isPartOf:https://phaidra.univie.ac.at/o:243553Test[u:scholar collection]; hdl:11353/10.1047935; https://phaidra.univie.ac.at/o:1047935Test
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المؤلفون: Jason Bobe, Laura Lyman Rodriguez, Madeleine J Murtagh, Natasha Bonhomme, Adrian Thorogood, Anna Middleton, Barbara Prainsack, Erick R. Scott, Manuel Corpas, Sarah C. Nelson, Erika Kleiderman
المساهمون: Thorogood, Adrian [0000-0001-5078-8164], Apollo - University of Cambridge Repository
المصدر: Human Genomics
Human Genomics, Vol 12, Iss 1, Pp 1-6 (2018)مصطلحات موضوعية: 0301 basic medicine, lcsh:QH426-470, Patients, Genomic data, Internet privacy, Patient engagement, lcsh:Medicine, Participatory action research, Review, 030105 genetics & heredity, Citizen science, Ethics, Research, 03 medical and health sciences, Data sequences, Drug Discovery, Genetics, medicine, Humans, Genetic Testing, Molecular Biology, Genetic testing, Ethics, medicine.diagnostic_test, Base Sequence, business.industry, Genome, Human, Genomic sequencing, Research, lcsh:R, Raw genomic data, Genomics, Individual level, 3. Good health, lcsh:Genetics, 030104 developmental biology, Current practice, Privacy, Whole genome sequencing, Molecular Medicine, Psychology, business, Individual access, Law, Direct-to-consumer
وصف الملف: application/pdf
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e61c0e5647dec452ed00ea9765040cc0Test
https://pubmed.ncbi.nlm.nih.gov/29454384Test