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1دورية أكاديمية
المؤلفون: Morse, Alyssa Rhiannon, Forbes, Owen, Jones, Bethany, Gulliver, Amelia, Banfield, Michelle
المصدر: Health Expectations
الوصف: BACKGROUND: Mental health carers contribute a unique set of perspectives and lived experiences to research; however, national research ethics guidelines do not specifically address the issues that affect informal carers as participants. OBJECTIVE: This study sought to explore Australian mental health consumer and carer views on the ethical conduct of research involving mental health carers. DESIGN: A public forum (n = 14; consumer = 5, carer = 9) and a subsequent series of interviews (n = 10; consumer = 5, carer = 4, both = 1) were conducted to investigate consumer and carer views on mental health research ethics. Data collection and analysis drew strongly on methodological features of grounded theory. RESULTS: Conducting research involving carers and consumer-carer relationships raises potential concerns related to story ownership. Lived experience stories have shared and separate elements; thus, it is important to consider potential risks to the privacy of non-participants and of social harm to participants' relationships when conducting research in this space. These risks could be minimized and managed through communication between researchers and participants, and within relationships. CONCLUSIONS: When conducting research involving carers and consumer-carer relationships, researchers may need to facilitate the negotiation of information-sharing boundaries within relationships and the safe and confidential telling of shared stories. ; ACACIA is supported by ACT Health [contract numbers 2013.21920.590, 2015.27504.340]. At the time of the research, MB was supported by Australian Research Council Discovery Early Career Researcher Award [DE150100637].
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2دورية أكاديمية
المصدر: Health Expectations; May2021 Supplement S1, Vol. 24, p3-9, 7p
مصطلحات موضوعية: MENTAL health personnel, HUMAN research subjects, PATIENT participation, CONSUMER attitudes, RESEARCH ethics, PSYCHOSOCIAL factors, DESCRIPTIVE statistics
مستخلص: Background: Mental health carers contribute a unique set of perspectives and lived experiences to research; however, national research ethics guidelines do not specifically address the issues that affect informal carers as participants. Objective: This study sought to explore Australian mental health consumer and carer views on the ethical conduct of research involving mental health carers. Design: A public forum (n = 14; consumer = 5, carer = 9) and a subsequent series of interviews (n = 10; consumer = 5, carer = 4, both = 1) were conducted to investigate consumer and carer views on mental health research ethics. Data collection and analysis drew strongly on methodological features of grounded theory. Results: Conducting research involving carers and consumer‐carer relationships raises potential concerns related to story ownership. Lived experience stories have shared and separate elements; thus, it is important to consider potential risks to the privacy of non‐participants and of social harm to participants' relationships when conducting research in this space. These risks could be minimized and managed through communication between researchers and participants, and within relationships. Conclusions: When conducting research involving carers and consumer‐carer relationships, researchers may need to facilitate the negotiation of information‐sharing boundaries within relationships and the safe and confidential telling of shared stories. [ABSTRACT FROM AUTHOR]
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3دورية أكاديمية
المؤلفون: Morse, Alyssa Rhiannon, Forbes, Owen, Jones, Bethany, Gulliver, Amelia, Banfield, Michelle
المصدر: Health Expectations
الوصف: BACKGROUND: Mental health carers contribute a unique set of perspectives and lived experiences to research; however, national research ethics guidelines do not specifically address the issues that affect informal carers as participants. OBJECTIVE: This study sought to explore Australian mental health consumer and carer views on the ethical conduct of research involving mental health carers. DESIGN: A public forum (n = 14; consumer = 5, carer = 9) and a subsequent series of interviews (n = 10; consumer = 5, carer = 4, both = 1) were conducted to investigate consumer and carer views on mental health research ethics. Data collection and analysis drew strongly on methodological features of grounded theory. RESULTS: Conducting research involving carers and consumer-carer relationships raises potential concerns related to story ownership. Lived experience stories have shared and separate elements; thus, it is important to consider potential risks to the privacy of non-participants and of social harm to participants' relationships when conducting research in this space. These risks could be minimized and managed through communication between researchers and participants, and within relationships. CONCLUSIONS: When conducting research involving carers and consumer-carer relationships, researchers may need to facilitate the negotiation of information-sharing boundaries within relationships and the safe and confidential telling of shared stories. ; ACACIA is supported by ACT Health [contract numbers 2013.21920.590, 2015.27504.340]. At the time of the research, MB was supported by Australian Research Council Discovery Early Career Researcher Award [DE150100637].
وصف الملف: application/pdf
العلاقة: http://purl.org/au-research/grants/arc/DE150100637Test; http://hdl.handle.net/1885/202667Test; https://openresearch-repository.anu.edu.au/bitstream/1885/202667/5/01_Morse_Whose_story_is_it%253F_Mental_2019.pdf.jpgTest
الإتاحة: https://doi.org/10.1111/hex.12954Test
http://hdl.handle.net/1885/202667Test
https://openresearch-repository.anu.edu.au/bitstream/1885/202667/5/01_Morse_Whose_story_is_it%253F_Mental_2019.pdf.jpgTest
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