Current Research in Outcome Measures for Pediatric Rheumatic and Autoinflammatory Diseases
| العنوان: | Current Research in Outcome Measures for Pediatric Rheumatic and Autoinflammatory Diseases |
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| المؤلفون: | Alessandro Consolaro, Dogan Simsek, Angelo Ravelli, Gabriella Giancane, Hafize Emine Sönmez, Erkan Demirkaya |
| المصدر: | Current Rheumatology Reports. 18 |
| بيانات النشر: | Springer Science and Business Media LLC, 2016. |
| سنة النشر: | 2016 |
| مصطلحات موضوعية: | Pediatric rheumatic diseases, medicine.medical_specialty, Biomedical Research, Health-related quality of life, Autoinflammatory diseases, Disease, Outcome measures, Severity of Illness Index, Child health, Disease activity, Outcome Assessment (Health Care), 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), Rheumatology, Rheumatic Diseases, Internal medicine, Outcome Assessment, Health Care, Severity of illness, medicine, Lupus Erythematosus, Systemic, Humans, 030212 general & internal medicine, Child, Intensive care medicine, 030203 arthritis & rheumatology, Disease damage, Lupus Erythematosus, business.industry, Hereditary Autoinflammatory Diseases, Systemic, Clinical trial, Quality of Life, Physical therapy, business |
| الوصف: | A rational management of children and adolescents with rheumatic and autoinflammatory diseases requires the regular assessment of the level of disease activity and of child health and well-being through the use of well-validated outcome measures. Ideally, such instruments should be simple and feasible and easily applicable in standard clinical practice. In recent years, a number of novel outcome measures have been developed and validated for use in pediatric patients with rheumatic and autoinflammatory illnesses. Furthermore, there has been an increased focus on the appraisal of child and parent perception of the disease impact. The new tools have markedly enlarged the spectrum of disorders and health domains that can be assessed in a standardized way. This progress will help to enhance the reliability of research studies and clinical trials. The aim of the present review is to provide an update of the recent advances in this field of research. |
| تدمد: | 1534-6307 1523-3774 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ca0acf75fa1fbff8e74dd800416f85c3Test https://doi.org/10.1007/s11926-015-0558-4Test |
| حقوق: | CLOSED |
| رقم الانضمام: | edsair.doi.dedup.....ca0acf75fa1fbff8e74dd800416f85c3 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 15346307 15233774 |
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