Living with Sensor-Augmented Pump Therapy in Type 1 Diabetes: Adolescents' and Parents' Search for Harmony

التفاصيل البيبلوغرافية
العنوان: Living with Sensor-Augmented Pump Therapy in Type 1 Diabetes: Adolescents' and Parents' Search for Harmony
المؤلفون: Judy Rashotte, Kelley Tousignant, Patricia Olivier, Margaret L. Lawson, Frances Fothergill-Bourbonnais, Meranda Nakhla, Christine Richardson
المصدر: Canadian Journal of Diabetes. (4):256-262
بيانات النشر: Canadian Diabetes Association.
مصطلحات موضوعية: Adult, Male, Canada, Pediatrics, medicine.medical_specialty, Adolescent, diabète de type 1, type 1 diabetes, Endocrinology, Diabetes and Metabolism, sensor-augmented pump therapy, recherche qualitative, Developmental psychology, Interviews as Topic, Insulin Infusion Systems, Endocrinology, Diabetes management, Internal Medicine, medicine, traitement par pompe reliée à un capteur, Humans, Insulin, adolescents, Harmony (color), Type 1 diabetes, Continuous glucose monitoring, Pediatric diabetes, business.industry, parents, General Medicine, medicine.disease, Diabetes Mellitus, Type 1, Female, Thematic analysis, business, Healthcare providers, Stress, Psychological, qualitative research
الوصف: Objective: Adolescents have difficulty successfully sustaining use of continuous glucose monitoring even when it is introduced to experienced pump users. However, little is known about how adolescents and parents perceive and manage sensor-augmented pump therapy (SAPT) in daily life. The purpose of this study was to explore adolescents’ and parents’ daily experience of living with SAPT. Methods: We used an interpretive phenomenological study design. We conducted in-depth, digitally recorded interviews with 7 adolescents and 9 parents recruited through 1 Canadian pediatric diabetes program. Adolescents who participated were 13 to 17 years of age with type 1 diabetes mellitus and had experience (current or past) living with SAPT. Transcripts of the interviews were subjected to a thematic analysis guided by the procedure outlined by Colaizzi. Results: The overarching theme, seeking harmony, reflected adolescents’ and parents’ daily struggles with balancing multiple tensions that arose from managing SAPT and harmonizing seemingly opposing choices that were brought to the fore, while also struggling to live with both wellness and chronic illness. Four themes constituted the struggle to find harmony living with diabetes managed with SAPT: struggling with hopes and expectations for SAPT, being ready for SAPT, living the burdens of continuous glucose monitoring and creating partnerships. Conclusions: Healthcare providers can facilitate adolescent and parental decision-making about the optimal timing for SAPT introduction. Success with SAPT requires exploration of adolescent and parental expectations for SAPT as well as the degree to which parents have previously fostered their adolescent’s involvement in and responsibility for diabetes management. 2014 Canadian Diabetes Association resume
اللغة: English
تدمد: 1499-2671
DOI: 10.1016/j.jcjd.2014.02.002
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::de026485c7a1ef4d54b7ca574fe42680Test
حقوق: OPEN
رقم الانضمام: edsair.doi.dedup.....de026485c7a1ef4d54b7ca574fe42680
قاعدة البيانات: OpenAIRE
الوصف
تدمد:14992671
DOI:10.1016/j.jcjd.2014.02.002