Patient and family perspectives of a Pre-Transition Visit in a paediatric tertiary care diabetes clinic

التفاصيل البيبلوغرافية
العنوان: Patient and family perspectives of a Pre-Transition Visit in a paediatric tertiary care diabetes clinic
المؤلفون: Marr, Alexa, Tsampalieros, Anne, Courtney, Jennilea, Seid Hamid, Jemila, St-Denis-Murphy, Josee, Stevens, Liz, Ahmet, Alexandra, Goldbloom, Ellen B
المصدر: BMJ Open Quality, Vol 11, Iss 1 (2022)
BMJ Open Quality
بيانات النشر: BMJ Publishing Group, 2022.
سنة النشر: 2022
مصطلحات موضوعية: Glycated Hemoglobin, Male, Transition to Adult Care, Medicine (General), patient satisfaction, Adolescent, Tertiary Healthcare, Leadership and Management, Health Policy, Public Health, Environmental and Occupational Health, Infant, Ambulatory Care Facilities, paediatrics, Diabetes Mellitus, Type 1, R5-920, diabetes mellitus, Humans, Female, Original Research
الوصف: IntroductionThe need to better prepare youth with type 1 diabetes for the transition from paediatric to adult care is evident. As part of a regional quality improvement initiative, a novel Pre-Transition (Pre-T) Visit was developed and piloted at a paediatric tertiary care centre in January 2018 for patients aged 15–18 years to capture the status of their self-management skills, introduce transition tools and identify self-care goals and knowledge gaps to be addressed prior to transition.PurposeTo evaluate patient and family satisfaction, visit relevance and patient engagement with a novel Pre-T Visit.MethodsFrom May 2019 to March 2020 a survey was offered to all youth who attended a Pre-T Visit and their parent(s)/caregiver(s). Patient and family satisfaction with, relevance of and engagement with the Pre-T Visit were evaluated using a 5-point Likert scale. Multivariable regression was used to assess patient factors associated with patient level satisfaction.ResultsOf the 63 youth who participated in a Pre-T Visit, 60 completed the survey. Mean age (SD) of participants was 16.7 (0.8) years; 47% were female. Mean (SD) haemoglobin A1C (A1C) was 8.2% (1.8). Patients reported high levels of satisfaction (95% quite or extremely satisfied) that were consistent across age, A1C, gender and disease duration. Visit relevance and engagement were also rated highly by youth. Parent participants (n=27) also reported high levels of satisfaction (89% quite or extremely satisfied) and relevance.ConclusionsPre-T Visits were rated highly by patients and their parents. Their impact on glycaemic control and health outcomes following transition requires further study.
اللغة: English
تدمد: 2399-6641
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::431d2f0752cf081e868491fade13e374Test
https://bmjopenquality.bmj.com/content/11/1/e001563.fullTest
حقوق: OPEN
رقم الانضمام: edsair.doi.dedup.....431d2f0752cf081e868491fade13e374
قاعدة البيانات: OpenAIRE