Self-Management and Transition Among Adolescents/Young Adults with Chronic or End-Stage Kidney Disease
| العنوان: | Self-Management and Transition Among Adolescents/Young Adults with Chronic or End-Stage Kidney Disease |
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| المؤلفون: | Sarah Cohen, Maria E. Ferris, Karina Javalkar, Jessica Cuttance, Karin True, A. Phillips, Keisha L. Gibson, Kristi Bickford, M. Ted Ferris |
| المصدر: | Blood Purification. 39:99-104 |
| بيانات النشر: | S. Karger AG, 2015. |
| سنة النشر: | 2015 |
| مصطلحات موضوعية: | Adult, Male, Gerontology, Health Knowledge, Attitudes, Practice, Transition to Adult Care, medicine.medical_specialty, Adolescent, media_common.quotation_subject, Psychological intervention, MEDLINE, Literacy, Quality of life (healthcare), Patient Education as Topic, Renal Dialysis, Health care, medicine, Humans, Young adult, Child, Intensive care medicine, media_common, Self-management, business.industry, Hematology, General Medicine, medicine.disease, Self Care, Nephrology, Quality of Life, Kidney Failure, Chronic, Female, business, Delivery of Health Care, Kidney disease |
| الوصف: | Background: Adolescents/young adults (AYA) with chronic kidney disease (CKD) or end-stage kidney disease (ESKD) are at risk for poor health outcomes related to self-management. To improve their health and quality of life, AYA must build self-management (for those in the pediatric- and adult-focused setting) and/or health care transition (HCT) skills (for those in the pediatric setting). Methods: Self-management and/or HCT encompass a variety of domains that must be tailored to each individual. Annual assessments should begin between the ages of 12 and 14 and continue in the adult-focused setting until patients have achieved demonstrated self-management and/or HCT skills mastery. These assessments will guide interventions that are congruent in terms of literacy, development and culture. Facilitation of this process from the perspective of both the pediatric and the adult health-care systems is described. Conclusions: Deficiencies and barriers to self-management and/or HCT for AYA with ESKD remain. There is no consensus on the definition of successful HCT preparation, with few tools to assess transition readiness and/or self-management. It is important for health providers to promote the self-management and/or health-care transition skills of AYA with ESKD. Customization of these activities and involvement of the whole family will contribute towards better health-related quality of life and patient outcomes. |
| تدمد: | 1421-9735 0253-5068 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::17e893f03a298a6c75094a72658925f1Test https://doi.org/10.1159/000368978Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....17e893f03a298a6c75094a72658925f1 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14219735 02535068 |
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