Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey
| العنوان: | Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey |
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| المؤلفون: | Melissa Baker, Mary Anne Toledo-Tamula, Claas Rohl, Stephanie Reda, Pamela L. Wolters, Vanessa L. Merker, Tena Rosser, Barbara Franklin, Beverly Oberlander, Stephanie Reeve, Ana-Maria Vranceanu, Staci Martin, Nour Al Ghriwati, Gregg Erickson, Dale Berg |
| المصدر: | American Journal of Medical Genetics. Part a |
| بيانات النشر: | Wiley, 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Adult, Male, psychosocial, medicine.medical_specialty, Adolescent, Neurofibromatoses, telehealth, media_common.quotation_subject, coronavirus, Telehealth, Anxiety, COVID‐19, Surveys and Questionnaires, Pandemic, Health care, Genetics, Humans, Medicine, Schwannomatosis, Genetics (clinical), Aged, media_common, Aged, 80 and over, neurofibromatosis, SARS-CoV-2, business.industry, COVID-19, Original Articles, Middle Aged, medicine.disease, Mental health, Telemedicine, United States, Europe, Mental Health, Family medicine, Female, Original Article, medicine.symptom, Worry, business, Psychosocial, Stress, Psychological |
| الوصف: | The coronavirus pandemic increased anxiety and stress and prevented access to health care worldwide; it is unclear how COVID‐19 affected adults with a multisystem genetic disorder such as neurofibromatosis (NF). An anonymous online survey was distributed through an international registry and foundations to adults with NF (June–August 2020) to assess the impact of the pandemic on mental health and NF health care. Six hundred and thirteen adults (18–81 years; M = 45.7) with NF1 (77.8%), NF2 (14.2%), and schwannomatosis (7.8%) provided complete responses. Respondents rated moderate‐to‐high amounts of worry about the impact of COVID‐19 on their emotional (46.3%) and physical health (46.7%), and 54.8% endorsed moderate‐to‐high pandemic‐related stress. Adults with diagnosed/suspected mental health disorders or moderate‐to‐severe NF symptom impact as well as females endorsed higher COVID‐19 stress (ps |
| تدمد: | 1552-4833 1552-4825 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c27c08af4f9b58e5a0610f7da6fb0073Test https://doi.org/10.1002/ajmg.a.62490Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....c27c08af4f9b58e5a0610f7da6fb0073 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 15524833 15524825 |
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