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المؤلفون: Mirsalehi, Talieh
مصطلحات موضوعية: Health, care, migration, health inequalities, asylum seekers, liminality, immunity, boundary concepts, health research, methodology, ethnographic research, ethnology, Sweden, Humaniora och konst, Annan humaniora, Etnologi, Humanities, Other Humanities, Ethnology
الوصف: Health inequalities are a persistent and growing issue in different countries worldwide. Sweden, despite being one of the scandinavian countries with internationally recognized welfare system is no exception. The issue of health disparities and its increase among some groups, including those who are categorised as migrant have been acknowledged. Emergence of the COVID-19 pandemic, however, revealed the gravity of the situation when groups of people who had migrated to Sweden from countries mainly within Africa and the Middle East were on the frontline experiencing disproportionate impacts of the Coronavirus. Although the effect of structural factors on health vulnerabilities among these groups have been identified, there is still little knowledge about how individuals who are placed into migrant categories have experienced and responded to health risks caused by the pandemic. This dissertation aims to provide a cultural analytical account of the ways in which people who undergo an asylum process in Sweden relate to, navigate, and negotiate health. By empirically investigating a group of asylum seekers’ perceptions of health, body, and risk, this study demonstrates how the participants make meaning of their embodied experiences of generating health and practicing self-care while living in a transitional state. In a health care landscape where taking responsibility for one’s health is a sociocultural norm, protecting health and preserving body is seen as a moral percept, expected from all members of society. Disparities in health, from this view, may be perceived as avoidable by leading a healthy way of life and avoiding exposure to health risks. By focusing on a group of asylum seekers’ experiences of navigating health and care before and during the COVID-19 pandemic in Sweden, this study reveals how perceptions and practices of health and care are situational, contextual, and negotiable in relation to the conditions within asylum processes. While being expected to actively participate in the society they want to be a part of, those who joined this study revealed how uncertainties about the state of their ‘at-risk’ bodies clash with performances of membership.While making meaning of notions of health and care in the new society and turning it to projects of familiarization, those who joined this study shared challenges of building a fit and equally immune body that matches new parameters of health and well-being under unqual circumstances. However, it may not be translated as passivity and lack of initiation among ‘vulnerable’ groups when it comes to generating health. The notions of health, care, risk, and immunity, from this perspective, are boundary concepts and open to interpretation. In order to access the experiences, perceptions and practices of health among ‘inaccessible’ migrant populations, more emphasis needs to be put on methodological considerations in health research among different groups.
وصف الملف: electronic
الوصول الحر: https://lup.lub.lu.se/record/57e62960-e29b-49dc-90a8-a06da657cb7eTest
https://portalTest.research .lu.se/files/181848479/Health_in_Negoatiation.pdf -
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المؤلفون: Gele, Abdi, Jama Mahmud, Amina, Kumar, Bernadette Nirmal, Wangamati, Cynthia Khamala, Duale, Hodan A., Malik, Mamunur Rahman, Gebremariam, Mekdes, Dybdahl, Ragnhild
المصدر: Frontiers In Public Health. 12
مصطلحات موضوعية: Somalia, humanitarian crisis, health research, enabling research production, Fregile
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-524979Test
https://doi.org/10.3389/fpubh.2024.1377036Test
https://uu.diva-portal.org/smash/get/diva2:1844870/FULLTEXT01.pdfTest -
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المؤلفون: Mirsalehi, Talieh, Hansson, Kristofer
المصدر: Medicine Across Borders STIAS Series. :133-151
مصطلحات موضوعية: migration, health, vulnerabilities, health research, covid-19, Health and society, Hälsa och samhälle
الوصف: Our aim in this chapter is to explore how outbreak of the Covid-19 pandemic has revealed the existing methodological challenges and prospects in research on health vulnerabilities among the groups of foreign-born and migrant in Sweden. We focus on the strengths and weaknesses of different methodological approaches when dealing with the issue of accessibility to the (seemingly) inaccessible and absent groups. In other words, our intention is to discuss the issue of nonresponse bias in different methodological approaches rather than presenting empirical explanations for the situations that have arisen during the pandemic.
وصف الملف: electronic
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المؤلفون: Ortsäter, Gustaf, De Geer, Anna, Rieem Dun, Alexander, Geale, Kirk, Lindberg, Ingrid, Thyssen, Jacob Pontoppidan, von Kobyletzki, Laura B., Metsini, Alexandra, Henrohn, Dan, Neregård, Petra, Cha, Amy, Cappelleri, Joseph C., Romero, William, Neary, Maureen P.
المصدر: JEADV Clinical Practice. 1(4):326-343
مصطلحات موضوعية: atopic dermatitis, economic burden, eczema, epidemiology, healthcare costs, indirect costs, public health research, Medicin och hälsovetenskap, Klinisk medicin, Dermatologi och venereologi, Medical and Health Sciences, Clinical Medicine, Dermatology and Venereal Diseases
الوصف: Background: Atopic dermatitis (AD) is a common inflammatory skin disease while the economic burden of AD by severity is not adequately understood. Objective: To estimate the societal economic burden and to identify cost determinants of AD. Methods: In this population-based, controlled cohort study in Sweden, patients with AD were identified through diagnosis codes in primary or secondary care or by dispensed medications using administrative healthcare registers. A reference cohort without AD was randomly selected from the general population. Healthcare costs (primary/secondary care visits and dispensed medication) and indirect costs (care for sick children and long-term sick leave for adults) were calculated annually. AD patients were stratified by age (paediatric [age < 12], adolescent [12 ≤ age < 18] or adult [age ≥ 18]), and severity (mild-to-moderate [M2M] or severe AD) and matched to the reference cohort. Results: Compared with controls, the annual mean per-patient direct healthcare costs in the first year following diagnosis were €941 and €1259 higher in paediatric patients with M2M and severe AD, respectively. In the first year following diagnosis, the mean indirect cost for care of sick children was €69 and €78 higher per patient in M2M and severe AD, respectively. In adolescents with M2M and severe AD, direct healthcare costs were €816 and €1260 higher, respectively. In adults, healthcare costs were €1583 and €2963 higher in patients with M2M and severe AD, respectively and indirect costs were €148 and €263 higher compared with controls. Management of comorbid medical conditions was an important driver of incremental healthcare costs. Total incremental societal economic burden for AD was €351 and €96 million higher in patients with M2M and severe AD, respectively, compared to controls. Conclusion: AD is associated with a significant societal economic burden primarily driven by the cost burden of M2M AD due to the high prevalence of this population. Regardless of severity level, management of non-AD comorbidities is a major driver of total costs.
الوصول الحر: https://lup.lub.lu.se/record/939ed6cd-9aec-404d-ab7a-b302aa972c12Test
http://dx.doi.org/10.1002/jvc2.74Test -
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المؤلفون: Ortsäter, Gustaf, De Geer, Anna, Rieem Dun, Alexander, Geale, Kirk, Lindberg, Ingrid, Thyssen, Jacob Pontoppidan, von Kobyletzki, Laura B., Metsini, Alexandra, Henrohn, Dan, Neregård, Petra, Cha, Amy, Cappelleri, Joseph C., Romero, William, Neary, Maureen P.
المصدر: JEADV Clinical Practice. 1(4):326-343
مصطلحات موضوعية: atopic dermatitis, economic burden, eczema, epidemiology, healthcare costs, indirect costs, public health research
الوصف: Background: Atopic dermatitis (AD) is a common inflammatory skin disease while the economic burden of AD by severity is not adequately understood.Objective: To estimate the societal economic burden and to identify cost determinants of AD.Methods: In this population-based, controlled cohort study in Sweden, patients with AD were identified through diagnosis codes in primary or secondary care or by dispensed medications using administrative healthcare registers. A reference cohort without AD was randomly selected from the general population. Healthcare costs (primary/secondary care visits and dispensed medication) and indirect costs (care for sick children and long-term sick leave for adults) were calculated annually. AD patients were stratified by age (paediatric [age < 12], adolescent [12 ≤ age < 18] or adult [age ≥ 18]), and severity (mild-to-moderate [M2M] or severe AD) and matched to the reference cohort.Results: Compared with controls, the annual mean per-patient direct healthcare costs in the first year following diagnosis were €941 and €1259 higher in paediatric patients with M2M and severe AD, respectively. In the first year following diagnosis, the mean indirect cost for care of sick children was €69 and €78 higher per patient in M2M and severe AD, respectively. In adolescents with M2M and severe AD, direct healthcare costs were €816 and €1260 higher, respectively. In adults, healthcare costs were €1583 and €2963 higher in patients with M2M and severe AD, respectively and indirect costs were €148 and €263 higher compared with controls. Management of comorbid medical conditions was an important driver of incremental healthcare costs. Total incremental societal economic burden for AD was €351 and €96 million higher in patients with M2M and severe AD, respectively, compared to controls.Conclusion: AD is associated with a significant societal economic burden primarily driven by the cost burden of M2M AD due to the high prevalence of this population. Regardless of severity level, management of non-AD comorbidities is a major driver of total costs.
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-219539Test
https://doi.org/10.1002/jvc2.74Test
https://umu.diva-portal.org/smash/get/diva2:1828128/FULLTEXT01.pdfTest -
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المؤلفون: Ortsäter, Gustaf, De Geer, Anna, Rieem Dun, Alexander, Geale, Kirk, Lindberg, Ingrid, Thyssen, Jacob Pontoppidan, von Kobyletzki, Laura B., Metsini, Alexandra, 1976, Henrohn, Dan, Neregård, Petra, Cha, Amy, Cappelleri, Joseph C., Romero, William, Neary, Maureen P.
المصدر: JEADV Clinical Practice. 1(4):326-343
مصطلحات موضوعية: Atopic dermatitis, economic burden, eczema, epidemiology, healthcare costs, indirect costs, public health research
الوصف: Background: Atopic dermatitis (AD) is a common inflammatory skin disease while the economic burden of AD by severity is not adequately understood.Objective: To estimate the societal economic burden and to identify cost determinants of AD.Methods: In this population‐based, controlled cohort study in Sweden, patients with AD were identified through diagnosis codes in primary or secondary care or by dispensed medications using administrative healthcare registers. A reference cohort without AD was randomly selected from the general population. Healthcare costs (primary/secondary care visits and dispensed medication) and indirect costs (care for sick children and long‐termsick leave for adults) were calculated annually. AD patients were stratified by age (paediatric [age < 12], adolescent [12≤age < 18] or adult [age≥18]), and severity (mild‐to‐moderate [M2M] or severe AD) and matched to the reference cohort.Results: Compared with controls, the annual mean per‐patient direct healthcare costs in the first year following diagnosis were €941 and €1259 higher in paediatric patients with M2M and severe AD, respectively. In the first year following diagnosis, the mean indirect cost for care of sick children was €69 and €78 higher per patient in M2M and severe AD, respectively. In adolescents with M2M and severe AD, direct healthcare costs were €816 and €1260 higher, respectively. In adults, healthcare costs were €1583 and €2963 higher in patients with M2M and severe AD, respectively and indirect costs were €148 and €263 higher compared with controls. Management of comorbid medical conditions was an important driver of incremental healthcare costs.Total incremental societal economic burden for AD was €351 and €96 million higher in patients with M2M and severe AD, respectively, compared to controls.Conclusion: AD is associated with a significant societal economic burden primarily driven by the cost burden of M2M AD due to the high prevalence of this population. Regardless of severity level, management of non‐ADcomorbidities is a major driver of total costs.
وصف الملف: print
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-102842Test
https://doi.org/10.1002/jvc2.74Test -
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المؤلفون: Pattaro, Cristian, Barbieri, Giulia, Foco, Luisa, Weichenberger, Christian X., Biasiotto, Roberta, De Grandi, Alessandro, Fuchsberger, Christian, Egger, Clemens, Amon, Vera S. C., Hicks, Andrew A., Mian, Michael, Mahlknecht, Angelika, Lombardo, Stefano, Meier, Horand, Weiss, Helmuth, Rainer, Robert, Dejaco, Christian, Weiss, Günter, Lavezzo, Enrico, Crisanti, Andrea, Pizzato, Massimo, Domingues, Francisco S., Mascalzoni, Deborah, 1973, Gögele, Martin, Melotti, Roberto, Pramstaller, Peter P.
المصدر: Pathogens and Global Health. 116(2):128-136
مصطلحات موضوعية: COVID-19, SARS-CoV-2, Cooperative Health Research In South Tyrol (CHRIS) study, general population, novel coronavirus
الوصف: The COVID-19 pandemic has been threatening the healthcare and socioeconomic systems of entire nations. While population-based surveys to assess the distribution of SARS-CoV-2 infection have become a priority, pre-existing longitudinal studies are ideally suited to assess the determinants of COVID-19 onset and severity.The Cooperative Health Research In South Tyrol (CHRIS) study completed the baseline recruitment of 13,393 adults from the Venosta/Vinschgau rural district in 2018, collecting extensive phenotypic and biomarker data, metabolomic data, densely imputed genotype and whole-exome sequencing data.Based on CHRIS, we designed a prospective study, called CHRIS COVID-19, aimed at: 1) estimating the incidence of SARS-CoV-2 infections; 2) screening for and investigating the determinants of incident infection among CHRIS participants and their household members; 3) monitoring the immune response of infected participants prospectively.An online screening questionnaire was sent to all CHRIS participants and their household members. A random sample of 1450 participants representative of the district population was invited to assess active (nasopharyngeal swab) or past (serum antibody test) infections. We prospectively invited for complete SARS-CoV-2 testing all questionnaire completers gauged as possible cases of past infection and their household members. In positive tested individuals, antibody response is monitored quarterly for one year. Untested and negative participants receive the screening questionnaire every four weeks until gauged as possible incident cases or till the study end.Originated from a collaboration between researchers and community stakeholders, the CHRIS COVID-19 study aims at generating knowledge about the epidemiological, molecular, and genetic characterization of COVID-19 and its long-term sequelae.
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-468464Test
https://doi.org/10.1080/20477724.2021.1978225Test
https://uu.diva-portal.org/smash/get/diva2:1640687/FULLTEXT01.pdfTest -
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المؤلفون: Berglund, Aseel, 1973, Jaarsma, Tiny, Berglund, Erik, Strömberg, Anna, Klompstra, Leonie
المصدر: European Journal of Cardiovascular Nursing. 21(6):630-638
مصطلحات موضوعية: Research methods, Gamification, Serious gaming, Exergaming, Nursing research, Health research
الوصف: Gamification is defined as the use of game design elements in contexts other than gaming to increase user engagement and experience. Gamification in cardiovascular care can contribute to positively change health behaviour with possible effects and benefits on physical health and mental well-being. Based on previous literature, in this article we describe: the conceptualization of gamification, the five gamification principles for gamified digital health programmes or applications, the six most common game elements used to impact health behaviour applied in gamified digital health interventions and finally scientifically validated instruments to use for assessment of gamification in terms of self-reported psychological outcomes.
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-186491Test
https://liu.diva-portal.org/smash/get/diva2:1677866/FULLTEXT01.pdfTest -
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المؤلفون: Inge, Elin, Sarkadi, Anna, Professor, 1974, Tökés, Antónia, Warner, Georgina
المصدر: The Journal of Refugee Studies.
مصطلحات موضوعية: patient and public involvement, forced migrants, health research, mixed methods, observations
الوصف: Although participatory approaches in health research are increasingly used, critical voices are being raised around lack of diversity among the public contributors involved. This article explores enabling and hindering factors in participatory meetings with forced migrants involved as public contributors in health research, using a convergent parallel mixed methods design including behavioural observations and questionnaires, with the aim of contributing to practices of meaningful and inclusive involvement in research. Our findings indicated that relationship-building and adapting to team development over time were key. Additionally, researcher responsivity and transparency enabled relevant contributions, but few decisions were taken. Although linguistic barriers existed and were rated higher by the researchers, engaging interpreters as co-facilitators of the meetings enabled nuanced discussions. In addition to following PPI recommendations, involving public contributors with experience of forced migration requires considering relationship-focused factors; inclusive communication, relationships and trust, and process-focused factors: where and how decisions are taken.
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-511736Test
https://doi.org/10.1093/jrs/fead062Test
https://uu.diva-portal.org/smash/get/diva2:1797452/FULLTEXT01.pdfTest -
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المؤلفون: Maus, Benjamin, Olsson, Carl Magnus, Salvi, Dario
المصدر: Frontiers in Digital Health. 3:1-12
مصطلحات موضوعية: Citizen science, IoT-based health research, privacy calculus, privacy personas, survey
الوصف: The reliance on data donation from citizens as a driver for research, known as citizen science, has accelerated during the Sars-Cov-2 pandemic. An important enabler of this is Internet of Things (IoT) devices, such as mobile phones and wearable devices, that allow continuous data collection and convenient sharing. However, potentially sensitive health data raises privacy and security concerns for citizens, which research institutions and industries must consider. In e-commerce or social network studies of citizen science, a privacy calculus related to user perceptions is commonly developed, capturing the information disclosure intent of the participants. In this study, we develop a privacy calculus model adapted for IoT-based health research using citizen science for user engagement and data collection. Based on an online survey with 85 participants, we make use of the privacy calculus to analyse the respondents' perceptions. The emerging privacy personas are clustered and compared with previous research, resulting in three distinct personas which can be used by designers and technologists who are responsible for developing suitable forms of data collection. These are the 1) Citizen Science Optimist, the 2) Selective Data Donor, and the 3) Health Data Controller. Together with our privacy calculus for citizen science based digital health research, the three privacy personas are the main contributions of this study.
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-48206Test
https://doi.org/10.3389/fdgth.2021.675754Test
https://mau.diva-portal.org/smash/get/diva2:1620566/FULLTEXT01.pdfTest
