دورية أكاديمية
A 'pretty normal' life: a qualitative study exploring young people's experience of life with bronchiectasis.
| العنوان: | A 'pretty normal' life: a qualitative study exploring young people's experience of life with bronchiectasis. |
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| المؤلفون: | Blamires, Julie, Dickinson, Annette, Tautolo, El Shadan, Byrnes, Catherine A |
| بيانات النشر: | Informa UK Limited |
| سنة النشر: | 2022 |
| المجموعة: | University of Auckland Research Repository - ResearchSpace |
| مصطلحات موضوعية: | Humans, Bronchiectasis, Adaptation, Psychological, Qualitative Research, Quality of Life, Adolescent, Child, Self-Management, interpretive description, normal life, youth, Pediatric, Clinical Research, 7.1 Individual care needs, Science & Technology, Social Sciences, Life Sciences & Biomedicine, Public, Environmental & Occupational Health, Nursing, Biomedical, Biomedical Social Sciences, CYSTIC-FIBROSIS BRONCHIECTASIS, MISSED APPOINTMENTS, CHRONIC ILLNESS, HEALTH-CARE, ADOLESCENTS, CHILDREN, TRANSITION |
| جغرافية الموضوع: | United States |
| الوصف: | Purpose Bronchiectasis is a chronic respiratory disease that impacts significantly on quality of life for those who have it. There is a paucity of literature exploring the perspectives of children and young people. The aim of this study was to examine the day-to-day life experience of a group of young people with bronchiectasis. Method A qualitative study using semi-structured interviews explored fifteen young people's perspectives of life with bronchiectasis. Key themes were identified using an inductive iterative approach through constant comparative analysis guided by Thorne's interpretive description. Results Life with bronchiectasis was conceptualized by participants as "Pretty Normal". This consisted of two co-existing life views which represented how young people balanced the ups and downs of adolescence while learning to accommodate the demands of living with bronchiectasis. Three key thematic elements "sore and tired", 'life interrupted and "looking after self", influenced and challenged these two views of life. Conclusions Young people with bronchiectasis portray life as being the same as their peers. Despite this, they recognized that the symptoms, interruptions, and self-management responsibilities led them to find ways of coping and integrating their experience into a new and modified view of normal. |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | Print; application/pdf |
| اللغة: | English |
| تدمد: | 1748-2623 1748-2631 |
| العلاقة: | International journal of qualitative studies on health and well-being; (2021). International Journal of Qualitative Studies on Health and Well-being, 16(1), 2003520-.; https://hdl.handle.net/2292/59884Test; 34793292 (pubmed) |
| DOI: | 10.1080/17482631.2021.2003520 |
| الإتاحة: | https://doi.org/10.1080/17482631.2021.2003520Test https://hdl.handle.net/2292/59884Test |
| حقوق: | Items in ResearchSpace are protected by copyright, with all rights reserved, unless otherwise indicated. Previously published items are made available in accordance with the copyright policy of the publisher. ; https://researchspace.auckland.ac.nz/docs/uoa-docs/rights.htmTest ; https://creativecommons.org/licenses/by/4.0Test/ ; Copyright: The author ; http://purl.org/eprint/accessRights/OpenAccessTest |
| رقم الانضمام: | edsbas.8C7BB61 |
| قاعدة البيانات: | BASE |
Full Text Finder | تدمد: | 17482623 17482631 |
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| DOI: | 10.1080/17482631.2021.2003520 |