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International Consortium for Health Outcomes Measurement (ICHOM): standardized patient-centered outcomes measurement set for heart failure patients

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العنوان: International Consortium for Health Outcomes Measurement (ICHOM): standardized patient-centered outcomes measurement set for heart failure patients
المؤلفون: Burns, Daniel J.P., Arora, Jason, Okunade, Oluwakemi, Beltrame, John F., Bernardez-Pereira, Sabrina, Crespo-Leiro, María Generosa, Filippatos, Gerasimos, Hardman, Suzanna, Hoes, Arno W., Hutchinson, Steven, Jessup, Mariell, Kinsella, Tina, Knapton, Michael, Lam, Carolyn S.P., Masoudi, Frederick A., McIntyre, Hugh, Mindham, Richard, Morgan, Louise, Otterspoor, Luuk, Parker, Victoria, Peerson, Hans E., Pinnock, Claude, Reid, Christopher M., Riley, Jillian, Stevenson, Lynne W., McDonagh, Theresa A.
بيانات النشر: American College of Cardiology Foundation
سنة النشر: 2020
المجموعة: RUC - Repositorio Universidade Coruña
مصطلحات موضوعية: Epidemiology, Heart failure, Quality, Outcomes
الوصف: Review ; [Abstract] Whereas multiple national, international, and trial registries for heart failure have been created, international standards for clinical assessment and outcome measurement do not currently exist. The working group's objective was to facilitate international comparison in heart failure care, using standardized parameters and meaningful patient-centered outcomes for research and quality of care assessments. The International Consortium for Health Outcomes Measurement recruited an international working group of clinical heart failure experts, researchers, and patient representatives to define a standard set of outcomes and risk-adjustment variables. This was designed to document, compare, and ultimately improve patient care outcomes in the heart failure population, with a focus on global feasibility and relevance. The working group employed a Delphi process, patient focus groups, online patient surveys, and multiple systematic publications searches. The process occurred over 10 months, employing 7 international teleconferences. A 17-item set has been established, addressing selected functional, psychosocial, burden of care, and survival outcome domains. These measures were designed to include all patients with heart failure, whether entered at first presentation or subsequent decompensation, excluding cardiogenic shock. Sources include clinician report, administrative data, and validated patient-reported outcome measurement tools: the Kansas City Cardiomyopathy Questionnaire; the Patient Health Questionnaire-2; and the Patient-Reported Outcomes Measurement Information System. Recommended data included those to support risk adjustment and benchmarking across providers and regions. The International Consortium for Health Outcomes Measurement developed a dataset designed to capture, compare, and improve care for heart failure, with feasibility and relevance for patients and clinicians worldwide.
نوع الوثيقة: article in journal/newspaper
اللغة: Spanish; Castilian
تدمد: 2213-1779
العلاقة: https://doi.org/10.1016/j.jchf.2019.09.007Test; Burns DJP, Arora J, Okunade O, Beltrame JF, Bernardez-Pereira S, Crespo-Leiro MG, Filippatos GS, Hardman S, Hoes AW, Hutchison S, Jessup M, Kinsella T, Knapton M, Lam CSP, Masoudi FA, McIntyre H, Mindham R, Morgan L, Otterspoor L, Parker V, Persson HE, Pinnock C, Reid CM, Riley J, Stevenson LW, McDonagh TA. International Consortium for Health Outcomes Measurement (ICHOM): standardized patient-centered outcomes measurement set for heart failure patients. JACC Heart Fail. 2020 Mar;8(3):212-222.; http://hdl.handle.net/2183/34388Test
الإتاحة: https://doi.org/10.1016/j.jchf.2019.09.007Test
http://hdl.handle.net/2183/34388Test
حقوق: Atribución-NoComercial-SinDerivadas 3.0 España ; http://creativecommons.org/licenses/by-nc-nd/3.0/esTest/ ; info:eu-repo/semantics/openAccess
رقم الانضمام: edsbas.5C6F0A93
قاعدة البيانات: BASE
الوصف
تدمد:22131779