دورية أكاديمية
Preconception Expanded Carrier Screening : A Discourse Analysis of Dutch Webpages
| العنوان: | Preconception Expanded Carrier Screening : A Discourse Analysis of Dutch Webpages |
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| المؤلفون: | Morberg Jämterud, Sofia, Snoek, Anke |
| بيانات النشر: | Linköpings universitet, Tema teknik och social förändring Linköpings universitet, Filosofiska fakulteten Univ Amsterdam, Netherlands MDPI |
| سنة النشر: | 2023 |
| المجموعة: | Linköping University Electronic Press (LiU E-Press) |
| مصطلحات موضوعية: | preconception expanded carrier screening, epistemology, ethics, rationalities, discourse analysis, genetics, Medical Ethics, Medicinsk etik, Etik |
| الوصف: | Preconception expanded carrier screening (PECS) informs prospective parents about the risk of conceiving a child with a heritable genetic condition. PECS will also, for many, become an important screening test, and websites will likely play a vital role in providing information on this practice. The aim of this article is to examine rationalities in the information on PECS on Dutch websites. The method used is multimodal critical discourse analysis. This method allows an examination of norms and assumptions in the descriptions, as well as of the positions that are discursively made available. The data consist of publicly available material on websites from two genetics departments in the Netherlands. In the results, we present the three main discourses and subject positions that were identified: risk and the couple as possible mediators of severe conditions; the focus on scientific facts and rational conceivers; and severity of the conditions and the responsible couple. In this study, we highlight the importance of acknowledging the interrelation between epistemology and ethics in the discourse on PECS. Finally, it is claimed that the focus on scientific facts in information on PECS risks making existential and ethical dilemmas and choices invisible. ; Funding: Swedish Research Council (Vetenskapsradet); research programme A Feminist Approach to Medical Screening [2016-00784]; Swedish Research Council |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| العلاقة: | Healthcare, 2023, 11:10; orcid:0000-0003-2998-3971; http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-194050Test; PMID 37239797; ISI:000997940700001 |
| DOI: | 10.3390/healthcare11101511 |
| الإتاحة: | https://doi.org/10.3390/healthcare11101511Test http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-194050Test |
| حقوق: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.711EC5FE |
| قاعدة البيانات: | BASE |
| DOI: | 10.3390/healthcare11101511 |
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