دورية أكاديمية
What happens when people develop dementia whilst working? An exploratory multiple case study
| العنوان: | What happens when people develop dementia whilst working? An exploratory multiple case study |
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| المؤلفون: | Nygard, Louise, Nedlund, Ann-Charlotte, Leinonen, Anna Maki Petaja, Astell, Arlene, Boger, Jennifer, Issakainen, Mervi, Engvall, Ann-Louise, Heuchemer, Birgit, Rosenberg, Lena, Ryd, Charlotta |
| بيانات النشر: | Linköpings universitet, Avdelningen för samhälle och hälsa Linköpings universitet, Medicinska fakulteten Karolinska Inst, Sweden Univ Eastern Finland, Finland Univ Toronto, Canada; Univ Toronto, Canada Univ Waterloo, Canada Fac Social Sci & Business Studies, Finland Karolinska Inst, Sweden; Jonkoping Univ, Sweden Karolinska Inst, Sweden; Stockholm Gerontol Res Ctr, Sweden TAYLOR & FRANCIS LTD |
| سنة النشر: | 2023 |
| المجموعة: | Linköping University Electronic Press (LiU E-Press) |
| مصطلحات موضوعية: | Accessibility, accommodation, agency, Alzheimers disease, case study, disclosure, early onset, employment, subjective experiences, stigma, Gerontology, specialising in Medical and Health Sciences, Gerontologi, medicinsk/hälsovetenskaplig inriktning |
| الوصف: | Purpose This study is an in-depth exploration of the unfolding experiences of five persons who developed dementia while still in paid work/employment, and of their significant others. Namely, we explore how they experienced the actions and decisions taken with respect to work, and what the consequences meant to them. Methods A qualitative longitudinal case study design with multiple cases was used, including five participants with dementia and significant others of their choice. Interviews were undertaken longitudinally and analysed with the Formal Data-Structure Analysis approach. Results The joint analysis resulted in two intertwined themes: 1) The significance and consequences of a dementia diagnosis: a double-edged trigger, and 2) Sensemaking and agency. The prevalent images of what dementia is, who can/cannot get it and what it will bring, were revealed as the critical aspects. Having the opportunity to make sense of what has happened and participate in decision-making, contributed decisively to the participants experiences. Conclusions Findings illustrate how a dementia diagnosis is alien in work-life, but once diagnosed, it may trigger self-fulfiling expectations based upon stereotypical understanding of dementia. A shift is needed from a deficit-focused perspective, to viewing people with dementia as citizens capable of agency. |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| العلاقة: | International Journal of Qualitative Studies on Health and Well-being, 1748-2623, 2023, 18:1; orcid:0000-0003-0204-4536; http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-192303Test; PMID 36799733; ISI:000934371400001 |
| DOI: | 10.1080/17482631.2023.2176278 |
| الإتاحة: | https://doi.org/10.1080/17482631.2023.2176278Test http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-192303Test |
| حقوق: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.B24D8184 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1080/17482631.2023.2176278 |
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