المؤلفون: National Center for Chronic Disease Prevention and Health Promotion (U.S.)

مصطلحات موضوعية: Chronic diseases--Epidemiology--Statistical methods, Chronic diseases--United States--Epidemiology--Statistical methods, Health status indicators, Health status indicators--United States, Community health services--Evaluation, Community health services--United States--Evaluation, Chronically ill--Medical care, Chronically ill--Medical care--United States, Medical care--Needs assessment, Medical care--Needs assessment--United States, Public health surveillance, Public health surveillance--United States, Arthritis--prevention & control, Cardiovascular Diseases--prevention & control, Chronic Disease, Chronic Disease--prevention & control, Diabetes Mellitus--prevention & control, Health Promotion, Community Health Services, Community Health Services--United States, Neoplasms--prevention & control, Oral Health, Quality of Health Care, Quality of Health Care--United States, Tobacco Use Disorder--prevention & control

جغرافية الموضوع: United States

الوصف: The Centers for Disease Control and Prevention (CDC) has developed this book to share its vision of how states and their partners can reduce the prevalence of chronic diseases and their risk factors by instituting comprehensive statewide programs. The recommendations for achieving this vision are based on prevention effectiveness research; program evaluations; and the expert opinions of national, state, and local leaders and public health practitioners, including CDC staff. In addition to describing some of the most promising practices available to state programs, the book provides numerous sources, including Web sites, that describe state and local examples of what can be achieved; state-of-the art strategies, methods, and tools; and training opportunities. We hope that this book will provide a framework that will help state and local health departments build new chronic disease prevention and control programs and enhance existing programs. ; On cover: Chronic Disease Prevention.

وصف الملف: 1 v. (various pagings); 28 cm.; print

العلاقة: http://stacks.cdc.gov/view/cdc/11310Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/11310Test/

المؤلفون: National Center for Health Statistics (U.S.)

المساهمون: O'Connor, Kathleen S., Brooks, Keeshawana S., Nysse-Carris, Kari L., Skalland, Benjamin J., Sipulski, Edward T., Costanzo, Daniel M.

مصطلحات موضوعية: Survey of Adult Transition and Health (U.S.), National Survey of Children with Special Health Care Needs (U.S.), Health surveys--Methodology, Health surveys--United States--Methodology, Telephone surveys--Methodology, Telephone surveys--United States--Methodology, Youth with disabilities--Health and hygiene--Research--Methodology, Youth with disabilities--Health and hygiene--United States--Research--Methodology, Youth with disabilities--Care--Research--Methodology, Youth with disabilities--Care--United States--Research--Methodology, Health Services, Health Services--United States--Statistics, Disabled Persons, Disabled Persons--United States--Statistics, Health Care Surveys, Health Care Surveys--United States--Statistics, Needs Assessment, Needs Assessment--United States--Statistics, Young Adult, Young Adult--United States--Statistics, RA409 .D477 2011, 614.4/273, W2 A N148va no.52 2011

جغرافية الموضوع: United States

الوصف: "March 2011." ; Includes bibliographical references.

وصف الملف: v, 85 p.; 28 cm.; print

العلاقة: http://stacks.cdc.gov/view/cdc/5938Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/5938Test/

المؤلفون: National Center for Health Statistics (U.S.)

المساهمون: Bramlett, Matthew D., National Center for Health Statistics (U.S.) Division of Health Interview Statistics., NORC (Organization)

مصطلحات موضوعية: Design and operation of the National Survey of Adoptive Parents of Children with Special Health Care Needs (U.S.), Special needs adoption, Special needs adoption--United States--Statistics, Adoption, Adoption--United States--Statistics, Data Collection--methods, Data Collection--methods--United States--Statistics, Disabled Children, Disabled Children--United States--Statistics, Health Surveys, Health Surveys--United States--Statistics, Parent-Child Relations, Parent-Child Relations--United States--Statistics, W2 A N148va no. 51 2010

جغرافية الموضوع: United States

الوصف: "Objective: This report presents the development, plan, and operation of the National Survey of Adoptive Parents of Children with Special Health Care Needs (NSAP-SN), a module of the State and Local Area Integrated Telephone Survey conducted by the Centers for Disease Control and Prevention's National Center for Health Statistics. The survey was designed to produce national estimates of the characteristics, health, and well-being of adopted children with special health care needs (CSHCN) and their families, the preadoption experiences of the adoptive parents, and their access to and utilization of postadoption services. Funding was provided by the Office of the Assistant Secretary for Planning and Evaluation and the Administration for Children and Families, both of the U.S. Department of Health and Human Services. Methods: The National Survey of Children with Special Health Care Needs 2005-2006 (NS-CSHCN), a random-digit-dial telephone survey of households with children, included questions that identified whether the sampled child was adopted. Adopted CSHCN under age 18 in 2008 who lived in households where English was spoken were eligible for the NSAP-SN follow-up interview. The NSAP-SN interview was a follow-back telephone call 1 to 3 years after the original NS-CSHCN interview. Sampled children included CSHCN adopted from other countries, from the U.S. foster care system, and from private domestic sources. Respondents were either the adoptive mother or the adoptive father. Results: A total of 1,007 NSAP-SN interviews were completed from February 2008 to July 2008. The interview completion rate (i.e., cooperation rate) for eligible respondents was 67.3%. The overall response rate, taking account of nonresponse to NS-CSHCN, was 37.7%." - p. 1 ; "May 2010." ; "by Matthew D. Bramlett, National Center for Health Statistics, Division of Health Interview Statistics; Keeshawna S. Brooks, Erin B. Foster, Jennifer Satorius, Alicia M. Frasier, Benjamin J. Skalland, Kari L. Nysse-Carris, Heather M. Morrison, and Sadeq R. ...

وصف الملف: vi,115 p.; 28 cm.; print

العلاقة: http://stacks.cdc.gov/view/cdc/5646Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/5646Test/

المساهمون: Blumberg, Stephen J., National Center for Health Statistics (U.S.)

مصطلحات موضوعية: National Survey of Children with Special Health Care Needs (U.S.), Data Collection, Data Collection--United States, Disabled Children, Disabled Children--United States, Health Surveys, Health Surveys--United States, Research Design

جغرافية الموضوع: United States

الوصف: [Stephen J. Blumberg . et al.] ; "June 2003." ; Also available via the World Wide Web. ; Includes bibliographical references (p. 32-33)

وصف الملف: v, 136 p. : 28 cm.; print

العلاقة: http://stacks.cdc.gov/view/cdc/6526Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/6526Test/

المؤلفون: National Center for Health Statistics (U.S.)

المساهمون: Blumberg, Stephen J., National Survey of Children with Special Health Care Needs (U.S.)

مصطلحات موضوعية: National Survey of Children with Special Health Care Needs (U.S.), Health surveys--Methodology, Health surveys--United States--Methodology, Telephone surveys--Methodology, Telephone surveys--United States--Methodology, Children with disabilities--Health and hygiene--Research--Methodology, Children with disabilities--Health and hygiene--United States--Research--Methodology, Children with disabilities--Care--Research--Methodology, Children with disabilities--Care--United States--Research--Methodology, Child Health Services, Child Health Services--United States--Statistics, Data Collection, Data Collection--United States--Statistics, Disabled Children, Disabled Children--United States--Statistics, Needs Assessment, Needs Assessment--United States--Statistics, RA409 .D476 2009, 614.4/2, W2 AN148va no.45 2009

جغرافية الموضوع: United States

الوصف: "Objectives: This report presents the development, plan, and operation of the National Survey of Children with Special Health Care Needs (CSHCN), a module of the State and Local Area Integrated Telephone Survey, conducted by the Centers for Disease Control and Prevention's National Center for Health Statistics. This survey was designed to produce national and state-specific prevalence estimates of CSHCN, describe the types of services that they need and use, and assess aspects of the system of care for CSHCN. Funding for this survey was provided by the Maternal and Child Health Bureau, Health Resources and Services Administration.Methods: A random-digit-dial sample of households with children younger than 18 years of age was constructed for each of the 50 states and the District of Columbia. All children in each identified household were screened for special health care needs. If CSHCN were identified in the household, a detailed interview was conducted for one randomly selected child with special health care needs. Detailed interviews were also conducted for a separate national sample of children, to generate estimates for children without special health care needs, and permit comparisons with CSHCN on all study measures. The respondents were parents or guardians who knew about the children's health and health care. Results: A total of 192,083 household screening interviews were completed from April 2005 to February 2007. This resulted in 40,840 completed special-needs interviews and 6,113 completed interviews for children in the comparison (referent) sample. The weighted overall response rates were 56.1% for special-needs and 50.3% for referent-sample interviews." - p. 1 ; [Stephen J. Blumberg . et al.]. ; "December 2008." ; Also available via the World Wide Web. ; Includes bibliographical references and index. ; Blumberg SJ, Welch EM, Chowdhury SR, Upchurch HL, Parker EK, Skalland BJ. Design and operation of the National Survey of Children with Special Health Care Needs, 2005-2006. National Center for Health ...

وصف الملف: v, 188 p.; 28 cm.; print

العلاقة: http://stacks.cdc.gov/view/cdc/5161Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/5161Test/

المساهمون: Blumberg, Stephen J., National Survey of Children with Special Health Care Needs (U.S.), National Center for Health Statistics (U.S.)

مصطلحات موضوعية: National Survey of Children with Special Health Care Needs (U.S.), Medically Uninsured--Adolescent, Medically Uninsured--Adolescent--United States--Statistics, Medically Uninsured--Child, Medically Uninsured--Child--United States--Statistics, Medically Uninsured--Infant, Medically Uninsured--Infant--United States--Statistics, Bias (Epidemiology), Bias (Epidemiology)--United States, Data Collection--methods, Data Collection--methods--United States, Health Care Surveys, Health Care Surveys--United States, Research Design, Research Design--United States, Medically uninsured persons--Research, Medically uninsured persons--United States--Research, Child health services--Research, Child health services--United States--Research, W2 A N148vb no.136 2004

جغرافية الموضوع: United States

الوصف: "The National Survey of Children with Special Health Care Needs revealed that 8.3% of children under 18 years of age were uninsured, a rate lower than the rate estimated by other national surveys. This report presents the results of an evaluation of the quality of this estimate, based on analyses of non-response, question design, interviewer and respondent effects, and the weighing and estimation process. National and State-level statistics on health insurance coverage for children with special health care needs (CSHCN) and for children without special needs are included in an appendix. SOURCE OF DATA: The National Survey of CSHCN is a survey module of the State and Local Area Integrated Telephone Survey. This survey of parents and guardians collected health insurance coverage information for a national sample of 215, 162 children. Data were collected from October 2000 through April 2002. RESULTS: Compared with other surveys, weighted data from the National Survey of CSHCN describe a population with a slightly larger proportion of Hispanic children and children from households with higher incomes. The National Survey of CSHCN was also the only survey to use a child-level design: A randomized experiment that varied the health insurance questions found that repeating the coverage questions for each child produced lower unisurance rates than household-level questions that first asked if anyone in the househol was insured. CONCLUSION: Question design differences explain much of the discrepancy between survey estimates of the uninsurance rate, but a definitive conclusion regarding the relative accuracy of the uninsurance rates is not possible." - p. 1 ; By Stephen J. Blumberg . [et al.]. ; "January 2004." ; Also available via the World Wide Web. ; Includes bibliographical references (p. 26-27).

وصف الملف: vi, 38 p.; print

العلاقة: http://stacks.cdc.gov/view/cdc/6507Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/6507Test/

المساهمون: Bethell, Christina D., Blumberg, Stephen J., Stein, Ruth E. K., Strickland, Bonnie, Robertson, Julie, Newacheck, Paul W.

المصدر: Acad Pediatr. 15(2):165-176.

مصطلحات موضوعية: Article, children with special health care needs, children with chronic conditions, complex CSHCN, National Survey of Children With Special Health Care Needs, National Survey of Children’s Health, Medical Expenditures Panel Survey

الوصف: Since 2000, the Children with Special Health Care Needs (CSHCN) Screener (CS) has been widely used nationally, by states, and locally as a standardized and brief survey-based method to identify populations of children who experience chronic physical, mental, behavioral, or other conditions and who also require types and amounts of health and related services beyond those routinely used by children. Common questions about the CS include those related to its development and uses; its conceptual framework and potential for under- or overidentification; its ability to stratify CSHCN by complexity of service needs and daily life impacts; and its potential application in clinical settings and comparisons with other identification approaches. This review recaps the development, design, and findings from the use of the CS and synthesizes findings from studies conducted over the past 13 years as well as updated findings on the CS to briefly address the 12 most common questions asked about this tool through technical assistance provided regarding the CS since 2001. Across a range of analyses, the CS consistently identifies a subset of children with chronic conditions who need or use more than a routine type or amount of medical- and health-related services and who share common needs for health care, including care coordination, access to specialized and community-based services, and enhanced family engagement. Scoring algorithms exist to stratify CSHCN by complexity of needs and higher costs of care. Combining CS data with clinical diagnostic code algorithms may enhance capacity to further identify meaningful subgroups. Clinical application is most suited for identifying and characterizing populations of patients and assessing quality and system improvement impacts for children with a broad range of chronic conditions. Other clinical applications require further implementation research. Use of the CS in clinical settings is limited because integration of standardized patient-reported health information is not yet common ...

العلاقة: cdc:38363; http://stacks.cdc.gov/view/cdc/38363Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/38363Test/

المساهمون: Strickland, Bonnie B., Jones, Jessica R., Newacheck, Paul W., Bethell, Christina D., Blumberg, Stephen J., Kogan, Michael D.

المصدر: Matern Child Health J. 19(2):353-361.

مصطلحات موضوعية: Article, Children with special health care needs, Health care quality, Systems of care, Access, Disparities, Adolescent, Child, Child Health Services, Preschool, Confidence Intervals, Cross-Sectional Studies, Delivery of Health Care, Disabled Children, Female, Health Care Surveys, Health Services Accessibility, Health Services Needs and Demand, Humans, Infant, Newborn, Male, Minority Groups, Quality of Health Care, Risk Assessment, Socioeconomic Factors, United States, Vulnerable Populations

الوصف: To provide a national, population-based assessment of the quality of the health care system for children and youth with special health care needs using a framework of six health care system quality indicators. 49,242 interviews with parents of children with special health care needs from the 2009-10 National Survey of Children with Special Health Care Needs (NS-CSHCN) were examined to determine the extent to which CSHCN had access to six quality indicators of a well-functioning system of services. Criteria for determining access to each indicator were established and applied to the survey data to estimate the proportion of CSHCN meeting each quality indicator by socio-demographic status and functional limitations. 17.6% of CSHCN received care consistent with all six quality indicators. Results for each component of the system quality framework ranged from a high of 70.3% of parents reporting that they shared decision-making with healthcare providers to a low of 40% of parents reporting receipt of services needed for transition to adult health care. Attainment rates were lower for CSHCN of minority racial and ethnic groups, those residing in households where English was not the primary language, those in lower income households, and those most impacted by their health condition. Only a small proportion of CSHCN receive all identified attributes of a high-quality system of services. Moreover, significant disparities exist whereby those most impacted by their conditions and those in traditionally disadvantaged groups are served least well by the current system. A small proportion of CSHCN appear to remain essentially outside of the system, having met few if any of the elements studied. ; CC999999/Intramural CDC HHS/United States ; 2016-07-07T00:00:00Z ; 24912943 ; PMC4936897

العلاقة: cdc:40406; http://stacks.cdc.gov/view/cdc/40406Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/40406Test/

المساهمون: Ghandour, Reem M., Hirai, Ashley H., Blumberg, Stephen J., Strickland, Bonnie B., Kogan, Michael D.

المصدر: Acad Pediatr. 14(1):92-100.

مصطلحات موضوعية: Article, children with special health care needs, family burden, financial burden, trends, Adolescent, Child, Exceptional, Preschool, Chronic Disease, Cost of Illness, Disabled Children, Family Health, Female, Humans, Infant, Male, Needs Assessment, United States

الوصف: Objective ; We use the latest data to explore multiple dimensions of financial burden among children with special health care needs (CSHCN) and their families in 2009–2010 and changes since 2001. ; Methods ; Five burden indicators were assessed using the 2001 and 2009–2010 National Surveys of CSHCN: past-year health-related out-of-pocket expenses of ≥$1,000 or ≥3% of household income; perceived financial problems; changes in family employment; and >10 hours of weekly care provision/coordination. Unadjusted and adjusted prevalence estimates were used to assess burden in 2009–2010 and calculate absolute and relative measures of change since 2001. Prevalence rate ratios for each burden type in 2009–2010 compared to 2001 were estimated by logistic regression. ; Results ; Nearly half of CSHCN and their families experienced some form of burden in 2009–2010. The percentage of CSHCN living in families that paid ≥$1,000 or ≥3% of household income out of pocket for health care rose 120% and 35%, respectively, between 2001 and 2009–2010, while the prevalence of caregiving and employment burdens declined. Relative to 2001, in 2009–2010, CSHCN who were privately insured or least affected by their conditions were 1.7 times as likely to live in families that paid ≥3% of household income out of pocket, while publicly insured children were 20% less likely to do so and those most severely affected were 12% more likely to do so. ; Conclusions ; Over the past decade, increases in financial burden and declines in employment and caregiving burdens were observed for CSHCN families. Public insurance expansions may have buffered increases in financial burden, yet disparities persist. ; CC999999/Intramural CDC HHS/United States ; 2016-07-01T00:00:00Z ; 24369874 ; PMC4930276

العلاقة: cdc:40324; http://stacks.cdc.gov/view/cdc/40324Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/40324Test/

المساهمون: Ouyang, Lijing, Grosse, Scott D., Fox, Michael H., Bolen, Julie

المصدر: J Child Neurol. 27(5):569-576.

مصطلحات موضوعية: Article, muscular dystrophy, National Survey of Children with Special Health Care Needs, medical home, family impact, Duchenne, Emery-Dreifuss, Adolescent, Child, Child Health Services, Preschool, Demography, Family Characteristics, Female, Health Services Accessibility, Health Surveys, Humans, Infant, Newborn, Logistic Models, Male, Muscular Dystrophies, Needs Assessment, Retrospective Studies, United States

الوصف: We used the 2005-2006 National Survey of Children with Special Health Care Needs to compare 3 types of outcomes between children with and those without parental reported muscular dystrophy: (1) functional limitations; (2) health care experiences in terms of the 5 components of a medical home; and (3) family impacts, including financial or out-of-pocket costs and parental employment and time use. We used weighted logistic regression to examine their associations with muscular dystrophy after adjustment for socio-demographic characteristics. Among children with special health care needs, children with reported muscular dystrophy were much more likely to have difficulties with ambulation and self-care. They were more likely to have family members who reported financial problems, reduced or stopped employment, and spent more than 10 hours weekly providing or coordinating care. Muscular dystrophy was not associated with the likelihood of having a medical home after adjustment for socioeconomic status and other socio-demographic characteristics. ; CC999999/Intramural CDC HHS/United States ; 2015-10-14T00:00:00Z ; 21954427 ; PMC4605438

العلاقة: cdc:34968; http://stacks.cdc.gov/view/cdc/34968Test/

الإتاحة: http://stacks.cdc.gov/view/cdc/34968Test/