التفاصيل البيبلوغرافية
| العنوان: |
Cross-Regional Data Initiative for the Assessment and Development of Treatment for Neurological and Mental Disorders. |
| المؤلفون: |
Tsai, Daniel Hsiang-Te, Bell, J Simon, Abtahi, Shahab, Baak, Brenda N, Bazelier, Marloes T, Brauer, Ruth, Chan, Adrienne YL, Chan, Esther W, Chen, Haoqian, Chui, Celine SL, Cook, Sharon, Crystal, Stephen, Gandhi, Poonam, Hartikainen, Sirpa, Ho, Frederick K, Hsu, Shao-Ti, Ilomäki, Jenni, Kim, Ju Hwan, Klungel, Olaf H, Koponen, Marjaana |
| المصدر: |
Clinical Epidemiology; Dec2023, Vol. 15, p1241-1252, 12p |
| مصطلحات موضوعية: |
PUBLIC health infrastructure, MENTAL illness, NEUROLOGICAL disorders, ELECTRONIC health records, DATA libraries |
| مصطلحات جغرافية: |
TAIWAN |
| مستخلص: |
Purpose: To describe and categorize detailed components of databases in the Neurological and Mental Health Global Epidemiology Network (NeuroGEN).Methods: An online 132-item questionnaire was sent to key researchers and data custodians of NeuroGEN in North America, Europe, Asia and Oceania. From the responses, we assessed data characteristics including population coverage, data follow-up, clinical information, validity of diagnoses, medication use and data latency. We also evaluated the possibility of conversion into a common data model (CDM) to implement a federated network approach. Moreover, we used radar charts to visualize the data capacity assessments, based on different perspectives.Results: The results indicated that the 15 databases covered approximately 320 million individuals, included in 7 nationwide claims databases from Australia, Finland, South Korea, Taiwan and the US, 6 population-based electronic health record databases from Hong Kong, Scotland, Taiwan, the Netherlands and the UK, and 2 biomedical databases from Taiwan and the UK.Conclusion: The 15 databases showed good potential for a federated network approach using a common data model. Our study provided publicly accessible information on these databases for those seeking to employ real-world data to facilitate current assessment and future development of treatments for neurological and mental disorders. [ABSTRACT FROM AUTHOR] |
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| قاعدة البيانات: |
Complementary Index |
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